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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

going downhill

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going downhill

Post  Remi88 on Sun Jul 29, 2012 10:56 am

After being pain free for a few months it was obviously too good to be true. To think that i could take a couple of pills a day and get on with my life. The pain started coming back in september last year and has been constant since. I have a job in retail management and every day I'm there I feel as though I'm putting in 60%, I have no energy or enthusiasm. I feel that the V is finally getting the better of me and that it is only down hill from here. My boyfriend is patient and understanding. Right now he is over seas and will be there for 2 months. I find myself incredibly emotional and teary without him here. And since having the V I have become a weak and insecure wreck. I am afraid that with him being away for so long he will realise how much of a burden I am. We have attempted to have sex a couple of times but have been unsuccessfull. It has been 10 months since we have had painless sex and I'm scared that eventually he will need more than i can give him. I'm sure he must feel like he is constantly caring for me like a sick puppy. I have just gotten over a bad case of cellulitis and I am also due to have surgery to have a dermoid cyst and possibly an ovary removed. I am so desperately depressed and I don't know where to turn. I am trying botox but I'm not optomistic. No one here and no woman deserves to live with such a curse.


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Post  cba321 on Sun Aug 05, 2012 7:17 am

Thanks for sharing your story, I understand how debilitating it can be. I just had a Botox injection yesterday and will be starting Physio next week. Although Botox will not cure it completely, it can possibly get you to a point where it is manageable...and it what I am hoping for. You might want to have a read through this randomised control trial on Botox. http://www.rima.org/web/medline_pdf/ObstetGynecol2006-108-915-23.pdf


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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:32 am

Hi Remi88,

I'm so sorry for your pain. Thank you for sharing your story I know first hand how depressing and debilitating all of these things can be, both emotionally and physically!

As something to think about. I have had successful treatment through a vuvladynia trained physio/chiropracter.
It sounds like you have had a lot of trauma to your internal organs and are about to have more. Often when our internal organs receive a shock or damage they can tense and pull up/back or twist sideways as a result. If you leave this untreated it can often not correct itself (much like an untreated sports injury). When our internal organs (kidneys, bladder, uterus) do this it places direct pressure on the nerve endings in our pelvic area which can directly cause painful sex!!

I don't know the causes of your problems that require surgery and I certainly am not suggesting a physio can cure all your problems but I'm fairly certain they could help you ease pain related to sex and burning around the vulval area. If your able you should try to find a vulvadynia trained physio/chiro and see if they can help you at all!

I wish you all the best of luck and please know you are not alone! Many of us are walking similar paths to you and feel for you with all our hearts! xx


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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:39 am

as a quick note... were you pain free because they put you on an anti-depressant like Endep?
If yes then I can explain that. Anti-depressants 'happen' to work like advil(head ache tablets) BUT specifically for nerve pain. So if you take them for a long time you build up an immunity to them.

Because the are 'just' a nerve ending pain killer the tablets never 'cured' you of anything. The underlying problem was still there. So once your body became immune to the effects of the particular 'nerve' tablet you are on the pain would have started to creep back.

I had the exact same experience and was totally devastated. My gynocologist couldn't even explain it as she didn't really understand WHY it worked in the first place. My physio explained it because she understands how nerve pain killers/anti depressants work on nerve pain.

The upside is, if this is your experience, it supports the idea that maybe you are experiencing nerve pain that a physio/chiropracter could help with.


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Re: going downhill

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