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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

going downhill

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going downhill

Post  Remi88 on Sun Jul 29, 2012 10:56 am

After being pain free for a few months it was obviously too good to be true. To think that i could take a couple of pills a day and get on with my life. The pain started coming back in september last year and has been constant since. I have a job in retail management and every day I'm there I feel as though I'm putting in 60%, I have no energy or enthusiasm. I feel that the V is finally getting the better of me and that it is only down hill from here. My boyfriend is patient and understanding. Right now he is over seas and will be there for 2 months. I find myself incredibly emotional and teary without him here. And since having the V I have become a weak and insecure wreck. I am afraid that with him being away for so long he will realise how much of a burden I am. We have attempted to have sex a couple of times but have been unsuccessfull. It has been 10 months since we have had painless sex and I'm scared that eventually he will need more than i can give him. I'm sure he must feel like he is constantly caring for me like a sick puppy. I have just gotten over a bad case of cellulitis and I am also due to have surgery to have a dermoid cyst and possibly an ovary removed. I am so desperately depressed and I don't know where to turn. I am trying botox but I'm not optomistic. No one here and no woman deserves to live with such a curse.


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Post  cba321 on Sun Aug 05, 2012 7:17 am

Thanks for sharing your story, I understand how debilitating it can be. I just had a Botox injection yesterday and will be starting Physio next week. Although Botox will not cure it completely, it can possibly get you to a point where it is manageable...and it what I am hoping for. You might want to have a read through this randomised control trial on Botox. http://www.rima.org/web/medline_pdf/ObstetGynecol2006-108-915-23.pdf


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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:32 am

Hi Remi88,

I'm so sorry for your pain. Thank you for sharing your story I know first hand how depressing and debilitating all of these things can be, both emotionally and physically!

As something to think about. I have had successful treatment through a vuvladynia trained physio/chiropracter.
It sounds like you have had a lot of trauma to your internal organs and are about to have more. Often when our internal organs receive a shock or damage they can tense and pull up/back or twist sideways as a result. If you leave this untreated it can often not correct itself (much like an untreated sports injury). When our internal organs (kidneys, bladder, uterus) do this it places direct pressure on the nerve endings in our pelvic area which can directly cause painful sex!!

I don't know the causes of your problems that require surgery and I certainly am not suggesting a physio can cure all your problems but I'm fairly certain they could help you ease pain related to sex and burning around the vulval area. If your able you should try to find a vulvadynia trained physio/chiro and see if they can help you at all!

I wish you all the best of luck and please know you are not alone! Many of us are walking similar paths to you and feel for you with all our hearts! xx


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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:39 am

as a quick note... were you pain free because they put you on an anti-depressant like Endep?
If yes then I can explain that. Anti-depressants 'happen' to work like advil(head ache tablets) BUT specifically for nerve pain. So if you take them for a long time you build up an immunity to them.

Because the are 'just' a nerve ending pain killer the tablets never 'cured' you of anything. The underlying problem was still there. So once your body became immune to the effects of the particular 'nerve' tablet you are on the pain would have started to creep back.

I had the exact same experience and was totally devastated. My gynocologist couldn't even explain it as she didn't really understand WHY it worked in the first place. My physio explained it because she understands how nerve pain killers/anti depressants work on nerve pain.

The upside is, if this is your experience, it supports the idea that maybe you are experiencing nerve pain that a physio/chiropracter could help with.


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Re: going downhill

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