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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


going downhill

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going downhill

Post  Remi88 on Sun Jul 29, 2012 10:56 am

After being pain free for a few months it was obviously too good to be true. To think that i could take a couple of pills a day and get on with my life. The pain started coming back in september last year and has been constant since. I have a job in retail management and every day I'm there I feel as though I'm putting in 60%, I have no energy or enthusiasm. I feel that the V is finally getting the better of me and that it is only down hill from here. My boyfriend is patient and understanding. Right now he is over seas and will be there for 2 months. I find myself incredibly emotional and teary without him here. And since having the V I have become a weak and insecure wreck. I am afraid that with him being away for so long he will realise how much of a burden I am. We have attempted to have sex a couple of times but have been unsuccessfull. It has been 10 months since we have had painless sex and I'm scared that eventually he will need more than i can give him. I'm sure he must feel like he is constantly caring for me like a sick puppy. I have just gotten over a bad case of cellulitis and I am also due to have surgery to have a dermoid cyst and possibly an ovary removed. I am so desperately depressed and I don't know where to turn. I am trying botox but I'm not optomistic. No one here and no woman deserves to live with such a curse.

Remi88

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Age : 30
Location : melbourne

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Botox

Post  cba321 on Sun Aug 05, 2012 7:17 am

Thanks for sharing your story, I understand how debilitating it can be. I just had a Botox injection yesterday and will be starting Physio next week. Although Botox will not cure it completely, it can possibly get you to a point where it is manageable...and it what I am hoping for. You might want to have a read through this randomised control trial on Botox. http://www.rima.org/web/medline_pdf/ObstetGynecol2006-108-915-23.pdf

cba321

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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:32 am

Hi Remi88,

I'm so sorry for your pain. Thank you for sharing your story I know first hand how depressing and debilitating all of these things can be, both emotionally and physically!

As something to think about. I have had successful treatment through a vuvladynia trained physio/chiropracter.
It sounds like you have had a lot of trauma to your internal organs and are about to have more. Often when our internal organs receive a shock or damage they can tense and pull up/back or twist sideways as a result. If you leave this untreated it can often not correct itself (much like an untreated sports injury). When our internal organs (kidneys, bladder, uterus) do this it places direct pressure on the nerve endings in our pelvic area which can directly cause painful sex!!

I don't know the causes of your problems that require surgery and I certainly am not suggesting a physio can cure all your problems but I'm fairly certain they could help you ease pain related to sex and burning around the vulval area. If your able you should try to find a vulvadynia trained physio/chiro and see if they can help you at all!

I wish you all the best of luck and please know you are not alone! Many of us are walking similar paths to you and feel for you with all our hearts! xx

bCherie

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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:39 am

as a quick note... were you pain free because they put you on an anti-depressant like Endep?
If yes then I can explain that. Anti-depressants 'happen' to work like advil(head ache tablets) BUT specifically for nerve pain. So if you take them for a long time you build up an immunity to them.

Because the are 'just' a nerve ending pain killer the tablets never 'cured' you of anything. The underlying problem was still there. So once your body became immune to the effects of the particular 'nerve' tablet you are on the pain would have started to creep back.

I had the exact same experience and was totally devastated. My gynocologist couldn't even explain it as she didn't really understand WHY it worked in the first place. My physio explained it because she understands how nerve pain killers/anti depressants work on nerve pain.

The upside is, if this is your experience, it supports the idea that maybe you are experiencing nerve pain that a physio/chiropracter could help with.

bCherie

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Re: going downhill

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