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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


going downhill

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going downhill

Post  Remi88 on Sun Jul 29, 2012 10:56 am

After being pain free for a few months it was obviously too good to be true. To think that i could take a couple of pills a day and get on with my life. The pain started coming back in september last year and has been constant since. I have a job in retail management and every day I'm there I feel as though I'm putting in 60%, I have no energy or enthusiasm. I feel that the V is finally getting the better of me and that it is only down hill from here. My boyfriend is patient and understanding. Right now he is over seas and will be there for 2 months. I find myself incredibly emotional and teary without him here. And since having the V I have become a weak and insecure wreck. I am afraid that with him being away for so long he will realise how much of a burden I am. We have attempted to have sex a couple of times but have been unsuccessfull. It has been 10 months since we have had painless sex and I'm scared that eventually he will need more than i can give him. I'm sure he must feel like he is constantly caring for me like a sick puppy. I have just gotten over a bad case of cellulitis and I am also due to have surgery to have a dermoid cyst and possibly an ovary removed. I am so desperately depressed and I don't know where to turn. I am trying botox but I'm not optomistic. No one here and no woman deserves to live with such a curse.

Remi88

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Botox

Post  cba321 on Sun Aug 05, 2012 7:17 am

Thanks for sharing your story, I understand how debilitating it can be. I just had a Botox injection yesterday and will be starting Physio next week. Although Botox will not cure it completely, it can possibly get you to a point where it is manageable...and it what I am hoping for. You might want to have a read through this randomised control trial on Botox. http://www.rima.org/web/medline_pdf/ObstetGynecol2006-108-915-23.pdf

cba321

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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:32 am

Hi Remi88,

I'm so sorry for your pain. Thank you for sharing your story I know first hand how depressing and debilitating all of these things can be, both emotionally and physically!

As something to think about. I have had successful treatment through a vuvladynia trained physio/chiropracter.
It sounds like you have had a lot of trauma to your internal organs and are about to have more. Often when our internal organs receive a shock or damage they can tense and pull up/back or twist sideways as a result. If you leave this untreated it can often not correct itself (much like an untreated sports injury). When our internal organs (kidneys, bladder, uterus) do this it places direct pressure on the nerve endings in our pelvic area which can directly cause painful sex!!

I don't know the causes of your problems that require surgery and I certainly am not suggesting a physio can cure all your problems but I'm fairly certain they could help you ease pain related to sex and burning around the vulval area. If your able you should try to find a vulvadynia trained physio/chiro and see if they can help you at all!

I wish you all the best of luck and please know you are not alone! Many of us are walking similar paths to you and feel for you with all our hearts! xx

bCherie

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Re: going downhill

Post  bCherie on Tue Aug 21, 2012 2:39 am

as a quick note... were you pain free because they put you on an anti-depressant like Endep?
If yes then I can explain that. Anti-depressants 'happen' to work like advil(head ache tablets) BUT specifically for nerve pain. So if you take them for a long time you build up an immunity to them.

Because the are 'just' a nerve ending pain killer the tablets never 'cured' you of anything. The underlying problem was still there. So once your body became immune to the effects of the particular 'nerve' tablet you are on the pain would have started to creep back.

I had the exact same experience and was totally devastated. My gynocologist couldn't even explain it as she didn't really understand WHY it worked in the first place. My physio explained it because she understands how nerve pain killers/anti depressants work on nerve pain.

The upside is, if this is your experience, it supports the idea that maybe you are experiencing nerve pain that a physio/chiropracter could help with.

bCherie

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Re: going downhill

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