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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

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Femdophilus

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Femdophilus

Post  shortstuff on Mon Jul 30, 2012 10:48 am

Hi everyone! I have not been on here in a long time, but I had some amazing results with a probiotic I tried and I felt the need to share.

I had been suffering from constant vestibular burning for about a year. During that time, I was also diagnosed with HSVII and assumed that my symptoms were related to that, but after being put on suppressive therapy and realizing I only had ONE real outbreak, and still had constant burning.. I knew it was more than that. About a month ago, I also had PID from a BV infection. I have suffered frequent yeast infections, but even after these were treated I still have the burning sensations. I was unable to have sex for over 8 months... probably about 10 months really.

I read about Jarrow Formulas Femdophilus, for treating my yeast and BV. The reviews were extremely positive so I felt like anything was worth a shot. I had tried probiotics before (Acidipholus) with no results, but these are forumulated especially for women's vaginal health and the tablets don't disolve until after they pass through your stomach. They are not cheap, $25 for 30 pills, but I bought a bottle. It's been a month and I AM COMPLETELY NORMAL AGAIN!!! I've been able to have unpainful sex, multiple times, these past three weeks, with NO PROBLEMS afterwards. And not just tender slow love, but rough sex. I didn't have to say, "wait wait OMG IT HURTS", it was just enjoyable again. you have no idea how happy I am!!!

I started taking them once daily, but was still having some discomfort although noticably less. So I inserted one pill at night (I opened it and inserted the powder with my finger) and took two a day. The day after inserting the pill, I had some scratchiness but the following day was 50% better. So I did the same thing one more time (inserted a pill, took two orally) and two days later, NORMALCY!! I have been taking two pills orally for about two weeks now, and plan on going down to one as suggested (the bottle says take 1 orally, 2 as needed). These pills were a miracle for me, for the first time in a year I feel like a real woman again.

Even though all of us on here have been told it's not yeast or BV related (I was told the same thing), I know many of you have theorized that it was the yeast cream treatments that started this whole mess. I have no idea why these pills worked for me since at the time I started taking them I had just been cleared by the dr. of yeast or bv, and was honestly trying them to just keep those two infections away. But no more burning, no more uncomfortableness, I can even wear sexy panties with no problems. Girls, it is worth a shot! My dr. had never heard of these supplements, but look them up online.. Amazon has a ton of reviews, nearly all of them positive. The only thing is they HAVE to be refrigerated, if they aren't the bacterium die. Whole foods stores sells them refrigerated, and I know there are a couple sites online that deliver them in ice packs. I recently ordered some from herbspro.com, but have not received them yet.. I will let you know if they arrive cold or not.

Anyone else try these?

shortstuff

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Re: Femdophilus

Post  shortstuff on Sun Aug 05, 2012 11:41 am

I can't believe no one has responded yet...

I just wanted to give an update on herbspro.com. don't order from them! My package got lost and instead of sending me a new shipment they rerouted the original so I can almost guarantee it will arrive dead since its been a week or more now and they have to stay cold.

On the bright side, I have been out of it for 3 days and I still feel normal.

shortstuff

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Re: Femdophilus

Post  ringostarr26 on Sun Aug 05, 2012 5:05 pm

was your burning constant? I suffer from gereralized V which started after a nasty yeast infection that seemed to inflame my skin post treatment. I too take probiotics. The are called Ultimate Flora Vaginal Support. I haven't notice much difference yet though my doctor did say my pelvic floor is super tight in response from the infection.

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Re: Femdophilus

Post  shortstuff on Tue Aug 07, 2012 2:32 am

Yes my burning was constant. I couldn't wear underwear it was so bad. It was not until I inserted the powder from the pill directly into my vagina that I felt normal. I was already feeling better than when it all first started though, the burning wasn't nearly as bad, I honestly started the probiotics just to ward off bv and yeast and try to get my system back to regular. But I now have NO pain, and I feel it had to be something to do with my ph or bacteria even though I kept testing negative. Hopefully this post makes sense lol I'm exhausted right now.

Are you taking the probiotics only orally?

shortstuff

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Re: Femdophilus

Post  shortstuff on Tue Aug 07, 2012 10:21 am

Alright, I'm awake now and I just want to clarify my post from lastnight.

I was still having burning sensations when I started the probiotics, but it was not nearly as intense as it had been 9 months ago. I think it had subsided partially because I stopped all hormone treatments they had put me on, including BC. I did not feel normal though, and sex was still very very very iffy, partly because i was so afraid of it at that point. I started taking the probiotic because I had a BV infection that turned into PID, and then the antibiotics caused a yeast infection, and I did not want to fall into that cycle of BV then yeast, BV then yeast, so I wanted to do all I could to ward it off. So I took two difulcans to get rid of the yeast, still had the burning but no yeast or BV, according to the doctor. So I started taking the Femdophilus. After inserting the contents of the pill (not the coating, just the inside powder), within two days my burning had subsided almost 100%, I inserted a second pill and two days later no pain at all. I wasn't even trying to get rid of the vulvodynia, I was simply trying to ward off another infection.

I have no idea why this worked for me. The only thing I can think of is that the V was caused by some kind of imbalance down there, not nerve issues like I thought, or perhaps I had a yeast infection in the skin all along that wasn't being picked up on. I honestly have no idea, and I don't really care.. I'm just so grateful to feel normal again! I don't know if this will work for anyone else, but I feel the need to share it with everyone since I know how hard and painful it is emotionally to feel like you ran out of options. I had tried probiotics in the past (acidophilus) but they did nothing for my yeast issues or the V. Perhaps this will work for someone else who had all this start with a yeast infection....The femdophilus was honestly just something I felt couldn't make things any worse and was worth a shot after reading all the positive reviews of it on Amazon.

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Re: Femdophilus

Post  Loulou on Wed Aug 08, 2012 7:49 pm

Sooooooo pleased for you shortstuff! And thanks for letting us know - I've ordered some of these now.

But have found out that they're being send from US to UK and will take 9 -12 business days to arrive!!!! So don't know how effective they will be as I doubt they will be refrigerated :-( Ho hum.
Will let you know how I get on.

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Re: Femdophilus

Post  shortstuff on Fri Aug 10, 2012 10:41 am

LouLou,

if they are warm, send them back!

I ordered off of herbspro.com. The product arrived warm, because of a shipping error, but it was sent properly packaged in icepacks in a perishable box... when I emailed them to tell them the product was ruined, they immediately refunded my money without any hassels, and I didn't even have to ship the product back to them. So I only lost the initial shipping charge. They ship from California (I'm not sure where you live), so they might be worth a shot if yours are ruined.

I've also heard that the Vitamin Shoppe chain carries them, but I don't have one near me.

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Re: Femdophilus

Post  mrs.optimistic on Sat May 16, 2015 9:42 am

I'm taking this! My vulva specialist had me try it- but I've only been taking one a day and haven't noticed a difference. Since I have the same exact symptoms you did, I will double the dose and insert vaginally. THANK YOU! Wish me luck <3

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did it work

Post  Ouch123 on Mon Aug 31, 2015 5:51 pm

Hi All,
Did anyone else have luck with this. I'm on antibiotics now so there is not point. But I finish Wednesday and have them sitting in my fridge waiting. I am very hopeful. I thing there are many causes to vulvodnia, but I truly believe mine is an imbalance of some kind. I have high hopes.

Thanks
Stacey

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..

Post  lavrose on Sat Sep 05, 2015 3:22 am

It helps, it really does help. And prevents UTIs for me too. Its a really great product I do not do without.
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Re: Femdophilus

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