Log in

I forgot my password

Latest topics
» I don't know what to do anymore
Yesterday at 5:05 am by SinclairSassy

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Femdophilus

Go down

Femdophilus

Post  shortstuff on Mon Jul 30, 2012 10:48 am

Hi everyone! I have not been on here in a long time, but I had some amazing results with a probiotic I tried and I felt the need to share.

I had been suffering from constant vestibular burning for about a year. During that time, I was also diagnosed with HSVII and assumed that my symptoms were related to that, but after being put on suppressive therapy and realizing I only had ONE real outbreak, and still had constant burning.. I knew it was more than that. About a month ago, I also had PID from a BV infection. I have suffered frequent yeast infections, but even after these were treated I still have the burning sensations. I was unable to have sex for over 8 months... probably about 10 months really.

I read about Jarrow Formulas Femdophilus, for treating my yeast and BV. The reviews were extremely positive so I felt like anything was worth a shot. I had tried probiotics before (Acidipholus) with no results, but these are forumulated especially for women's vaginal health and the tablets don't disolve until after they pass through your stomach. They are not cheap, $25 for 30 pills, but I bought a bottle. It's been a month and I AM COMPLETELY NORMAL AGAIN!!! I've been able to have unpainful sex, multiple times, these past three weeks, with NO PROBLEMS afterwards. And not just tender slow love, but rough sex. I didn't have to say, "wait wait OMG IT HURTS", it was just enjoyable again. you have no idea how happy I am!!!

I started taking them once daily, but was still having some discomfort although noticably less. So I inserted one pill at night (I opened it and inserted the powder with my finger) and took two a day. The day after inserting the pill, I had some scratchiness but the following day was 50% better. So I did the same thing one more time (inserted a pill, took two orally) and two days later, NORMALCY!! I have been taking two pills orally for about two weeks now, and plan on going down to one as suggested (the bottle says take 1 orally, 2 as needed). These pills were a miracle for me, for the first time in a year I feel like a real woman again.

Even though all of us on here have been told it's not yeast or BV related (I was told the same thing), I know many of you have theorized that it was the yeast cream treatments that started this whole mess. I have no idea why these pills worked for me since at the time I started taking them I had just been cleared by the dr. of yeast or bv, and was honestly trying them to just keep those two infections away. But no more burning, no more uncomfortableness, I can even wear sexy panties with no problems. Girls, it is worth a shot! My dr. had never heard of these supplements, but look them up online.. Amazon has a ton of reviews, nearly all of them positive. The only thing is they HAVE to be refrigerated, if they aren't the bacterium die. Whole foods stores sells them refrigerated, and I know there are a couple sites online that deliver them in ice packs. I recently ordered some from herbspro.com, but have not received them yet.. I will let you know if they arrive cold or not.

Anyone else try these?

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 30
Location : Florida, United States

View user profile

Back to top Go down

Re: Femdophilus

Post  shortstuff on Sun Aug 05, 2012 11:41 am

I can't believe no one has responded yet...

I just wanted to give an update on herbspro.com. don't order from them! My package got lost and instead of sending me a new shipment they rerouted the original so I can almost guarantee it will arrive dead since its been a week or more now and they have to stay cold.

On the bright side, I have been out of it for 3 days and I still feel normal.

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 30
Location : Florida, United States

View user profile

Back to top Go down

Re: Femdophilus

Post  ringostarr26 on Sun Aug 05, 2012 5:05 pm

was your burning constant? I suffer from gereralized V which started after a nasty yeast infection that seemed to inflame my skin post treatment. I too take probiotics. The are called Ultimate Flora Vaginal Support. I haven't notice much difference yet though my doctor did say my pelvic floor is super tight in response from the infection.

ringostarr26

Posts : 58
Join date : 2012-07-31

View user profile

Back to top Go down

Re: Femdophilus

Post  shortstuff on Tue Aug 07, 2012 2:32 am

Yes my burning was constant. I couldn't wear underwear it was so bad. It was not until I inserted the powder from the pill directly into my vagina that I felt normal. I was already feeling better than when it all first started though, the burning wasn't nearly as bad, I honestly started the probiotics just to ward off bv and yeast and try to get my system back to regular. But I now have NO pain, and I feel it had to be something to do with my ph or bacteria even though I kept testing negative. Hopefully this post makes sense lol I'm exhausted right now.

Are you taking the probiotics only orally?

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 30
Location : Florida, United States

View user profile

Back to top Go down

Re: Femdophilus

Post  shortstuff on Tue Aug 07, 2012 10:21 am

Alright, I'm awake now and I just want to clarify my post from lastnight.

I was still having burning sensations when I started the probiotics, but it was not nearly as intense as it had been 9 months ago. I think it had subsided partially because I stopped all hormone treatments they had put me on, including BC. I did not feel normal though, and sex was still very very very iffy, partly because i was so afraid of it at that point. I started taking the probiotic because I had a BV infection that turned into PID, and then the antibiotics caused a yeast infection, and I did not want to fall into that cycle of BV then yeast, BV then yeast, so I wanted to do all I could to ward it off. So I took two difulcans to get rid of the yeast, still had the burning but no yeast or BV, according to the doctor. So I started taking the Femdophilus. After inserting the contents of the pill (not the coating, just the inside powder), within two days my burning had subsided almost 100%, I inserted a second pill and two days later no pain at all. I wasn't even trying to get rid of the vulvodynia, I was simply trying to ward off another infection.

I have no idea why this worked for me. The only thing I can think of is that the V was caused by some kind of imbalance down there, not nerve issues like I thought, or perhaps I had a yeast infection in the skin all along that wasn't being picked up on. I honestly have no idea, and I don't really care.. I'm just so grateful to feel normal again! I don't know if this will work for anyone else, but I feel the need to share it with everyone since I know how hard and painful it is emotionally to feel like you ran out of options. I had tried probiotics in the past (acidophilus) but they did nothing for my yeast issues or the V. Perhaps this will work for someone else who had all this start with a yeast infection....The femdophilus was honestly just something I felt couldn't make things any worse and was worth a shot after reading all the positive reviews of it on Amazon.

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 30
Location : Florida, United States

View user profile

Back to top Go down

Re: Femdophilus

Post  Loulou on Wed Aug 08, 2012 7:49 pm

Sooooooo pleased for you shortstuff! And thanks for letting us know - I've ordered some of these now.

But have found out that they're being send from US to UK and will take 9 -12 business days to arrive!!!! So don't know how effective they will be as I doubt they will be refrigerated :-( Ho hum.
Will let you know how I get on.

Loulou

Posts : 124
Join date : 2012-01-18

View user profile

Back to top Go down

Re: Femdophilus

Post  shortstuff on Fri Aug 10, 2012 10:41 am

LouLou,

if they are warm, send them back!

I ordered off of herbspro.com. The product arrived warm, because of a shipping error, but it was sent properly packaged in icepacks in a perishable box... when I emailed them to tell them the product was ruined, they immediately refunded my money without any hassels, and I didn't even have to ship the product back to them. So I only lost the initial shipping charge. They ship from California (I'm not sure where you live), so they might be worth a shot if yours are ruined.

I've also heard that the Vitamin Shoppe chain carries them, but I don't have one near me.

shortstuff

Posts : 41
Join date : 2012-01-22
Age : 30
Location : Florida, United States

View user profile

Back to top Go down

Re: Femdophilus

Post  mrs.optimistic on Sat May 16, 2015 9:42 am

I'm taking this! My vulva specialist had me try it- but I've only been taking one a day and haven't noticed a difference. Since I have the same exact symptoms you did, I will double the dose and insert vaginally. THANK YOU! Wish me luck <3

mrs.optimistic

Posts : 33
Join date : 2015-05-14

View user profile

Back to top Go down

did it work

Post  Ouch123 on Mon Aug 31, 2015 5:51 pm

Hi All,
Did anyone else have luck with this. I'm on antibiotics now so there is not point. But I finish Wednesday and have them sitting in my fridge waiting. I am very hopeful. I thing there are many causes to vulvodnia, but I truly believe mine is an imbalance of some kind. I have high hopes.

Thanks
Stacey

Ouch123

Posts : 19
Join date : 2015-08-29

View user profile

Back to top Go down

..

Post  lavrose on Sat Sep 05, 2015 3:22 am

It helps, it really does help. And prevents UTIs for me too. Its a really great product I do not do without.
avatar
lavrose

Posts : 152
Join date : 2012-04-28

View user profile

Back to top Go down

Re: Femdophilus

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum