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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Femdophilus

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Femdophilus

Post  shortstuff on Mon Jul 30, 2012 10:48 am

Hi everyone! I have not been on here in a long time, but I had some amazing results with a probiotic I tried and I felt the need to share.

I had been suffering from constant vestibular burning for about a year. During that time, I was also diagnosed with HSVII and assumed that my symptoms were related to that, but after being put on suppressive therapy and realizing I only had ONE real outbreak, and still had constant burning.. I knew it was more than that. About a month ago, I also had PID from a BV infection. I have suffered frequent yeast infections, but even after these were treated I still have the burning sensations. I was unable to have sex for over 8 months... probably about 10 months really.

I read about Jarrow Formulas Femdophilus, for treating my yeast and BV. The reviews were extremely positive so I felt like anything was worth a shot. I had tried probiotics before (Acidipholus) with no results, but these are forumulated especially for women's vaginal health and the tablets don't disolve until after they pass through your stomach. They are not cheap, $25 for 30 pills, but I bought a bottle. It's been a month and I AM COMPLETELY NORMAL AGAIN!!! I've been able to have unpainful sex, multiple times, these past three weeks, with NO PROBLEMS afterwards. And not just tender slow love, but rough sex. I didn't have to say, "wait wait OMG IT HURTS", it was just enjoyable again. you have no idea how happy I am!!!

I started taking them once daily, but was still having some discomfort although noticably less. So I inserted one pill at night (I opened it and inserted the powder with my finger) and took two a day. The day after inserting the pill, I had some scratchiness but the following day was 50% better. So I did the same thing one more time (inserted a pill, took two orally) and two days later, NORMALCY!! I have been taking two pills orally for about two weeks now, and plan on going down to one as suggested (the bottle says take 1 orally, 2 as needed). These pills were a miracle for me, for the first time in a year I feel like a real woman again.

Even though all of us on here have been told it's not yeast or BV related (I was told the same thing), I know many of you have theorized that it was the yeast cream treatments that started this whole mess. I have no idea why these pills worked for me since at the time I started taking them I had just been cleared by the dr. of yeast or bv, and was honestly trying them to just keep those two infections away. But no more burning, no more uncomfortableness, I can even wear sexy panties with no problems. Girls, it is worth a shot! My dr. had never heard of these supplements, but look them up online.. Amazon has a ton of reviews, nearly all of them positive. The only thing is they HAVE to be refrigerated, if they aren't the bacterium die. Whole foods stores sells them refrigerated, and I know there are a couple sites online that deliver them in ice packs. I recently ordered some from herbspro.com, but have not received them yet.. I will let you know if they arrive cold or not.

Anyone else try these?

shortstuff

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Re: Femdophilus

Post  shortstuff on Sun Aug 05, 2012 11:41 am

I can't believe no one has responded yet...

I just wanted to give an update on herbspro.com. don't order from them! My package got lost and instead of sending me a new shipment they rerouted the original so I can almost guarantee it will arrive dead since its been a week or more now and they have to stay cold.

On the bright side, I have been out of it for 3 days and I still feel normal.

shortstuff

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Re: Femdophilus

Post  ringostarr26 on Sun Aug 05, 2012 5:05 pm

was your burning constant? I suffer from gereralized V which started after a nasty yeast infection that seemed to inflame my skin post treatment. I too take probiotics. The are called Ultimate Flora Vaginal Support. I haven't notice much difference yet though my doctor did say my pelvic floor is super tight in response from the infection.

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Re: Femdophilus

Post  shortstuff on Tue Aug 07, 2012 2:32 am

Yes my burning was constant. I couldn't wear underwear it was so bad. It was not until I inserted the powder from the pill directly into my vagina that I felt normal. I was already feeling better than when it all first started though, the burning wasn't nearly as bad, I honestly started the probiotics just to ward off bv and yeast and try to get my system back to regular. But I now have NO pain, and I feel it had to be something to do with my ph or bacteria even though I kept testing negative. Hopefully this post makes sense lol I'm exhausted right now.

Are you taking the probiotics only orally?

shortstuff

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Re: Femdophilus

Post  shortstuff on Tue Aug 07, 2012 10:21 am

Alright, I'm awake now and I just want to clarify my post from lastnight.

I was still having burning sensations when I started the probiotics, but it was not nearly as intense as it had been 9 months ago. I think it had subsided partially because I stopped all hormone treatments they had put me on, including BC. I did not feel normal though, and sex was still very very very iffy, partly because i was so afraid of it at that point. I started taking the probiotic because I had a BV infection that turned into PID, and then the antibiotics caused a yeast infection, and I did not want to fall into that cycle of BV then yeast, BV then yeast, so I wanted to do all I could to ward it off. So I took two difulcans to get rid of the yeast, still had the burning but no yeast or BV, according to the doctor. So I started taking the Femdophilus. After inserting the contents of the pill (not the coating, just the inside powder), within two days my burning had subsided almost 100%, I inserted a second pill and two days later no pain at all. I wasn't even trying to get rid of the vulvodynia, I was simply trying to ward off another infection.

I have no idea why this worked for me. The only thing I can think of is that the V was caused by some kind of imbalance down there, not nerve issues like I thought, or perhaps I had a yeast infection in the skin all along that wasn't being picked up on. I honestly have no idea, and I don't really care.. I'm just so grateful to feel normal again! I don't know if this will work for anyone else, but I feel the need to share it with everyone since I know how hard and painful it is emotionally to feel like you ran out of options. I had tried probiotics in the past (acidophilus) but they did nothing for my yeast issues or the V. Perhaps this will work for someone else who had all this start with a yeast infection....The femdophilus was honestly just something I felt couldn't make things any worse and was worth a shot after reading all the positive reviews of it on Amazon.

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Re: Femdophilus

Post  Loulou on Wed Aug 08, 2012 7:49 pm

Sooooooo pleased for you shortstuff! And thanks for letting us know - I've ordered some of these now.

But have found out that they're being send from US to UK and will take 9 -12 business days to arrive!!!! So don't know how effective they will be as I doubt they will be refrigerated :-( Ho hum.
Will let you know how I get on.

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Re: Femdophilus

Post  shortstuff on Fri Aug 10, 2012 10:41 am

LouLou,

if they are warm, send them back!

I ordered off of herbspro.com. The product arrived warm, because of a shipping error, but it was sent properly packaged in icepacks in a perishable box... when I emailed them to tell them the product was ruined, they immediately refunded my money without any hassels, and I didn't even have to ship the product back to them. So I only lost the initial shipping charge. They ship from California (I'm not sure where you live), so they might be worth a shot if yours are ruined.

I've also heard that the Vitamin Shoppe chain carries them, but I don't have one near me.

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Re: Femdophilus

Post  mrs.optimistic on Sat May 16, 2015 9:42 am

I'm taking this! My vulva specialist had me try it- but I've only been taking one a day and haven't noticed a difference. Since I have the same exact symptoms you did, I will double the dose and insert vaginally. THANK YOU! Wish me luck <3

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did it work

Post  Ouch123 on Mon Aug 31, 2015 5:51 pm

Hi All,
Did anyone else have luck with this. I'm on antibiotics now so there is not point. But I finish Wednesday and have them sitting in my fridge waiting. I am very hopeful. I thing there are many causes to vulvodnia, but I truly believe mine is an imbalance of some kind. I have high hopes.

Thanks
Stacey

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..

Post  lavrose on Sat Sep 05, 2015 3:22 am

It helps, it really does help. And prevents UTIs for me too. Its a really great product I do not do without.
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Re: Femdophilus

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