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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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New Vulvodynia Support Group in Dallas area

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New Vulvodynia Support Group in Dallas area

Post  Debbie627 on Mon Jul 30, 2012 8:59 pm

When I was officially diagnosed with vulvodynia 2 years ago, I had no one to talk to except my doctor. I tried to discuss and find answers through the various message boards, but found them to be too slow and in some cases outdated. I have 30 years in the computer industry and have pretty good analytical skills, so I set out on a journey to determine the root cause of my condition. I succeeded! Now I feel compelled to work with other women who have this condition to offer some hope, help and comfort.

As such I am starting up a new support group here in the Dallas area for women to actually meet face to face in a nurturing environment to discuss this condition. I believe through an open exchange of ideas and education, we all have the power to find the answers. We know the doctors don't have the answers...it's up to us.

If you live in the area and are interested in participating, please let me know.

Debbie

Debbie627

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Location : Dallas TX

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Seeking help in Dallas Area

Post  rl2091 on Thu Jan 10, 2013 5:25 pm

Debbie,

I also live in the Dallas area (Lucas/Allen), to be exact. I have also worked in IT for almost 30 years. I've been struggling with vulvodynia for almost 2 years. My ob/gyn struggled with it and finally sent me to a physiologist, telling me that we have to fix what's 'up hear' (pointing to my head) before we can fix what's going on down there. I then went to a doctor at UTSouthwestern, which only really sent me to physical thearpy. I've now have gone to a 3rd doctor, which did order blood tests (after my urging) that showed my free testosterone is below normal and my SHBG is way high. However, this doctor knows that is not good, but has no idea what to prescribe. I would like to know how you got help and what doctor you visited.

I'm desperate!!!!!!!!!
Roseann

rl2091

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Re: New Vulvodynia Support Group in Dallas area

Post  C'smom on Sun Aug 04, 2013 5:40 pm

We have also seen several doctors.  (Locally & out of state)  Last week saw a new dr.  I have some hope again.  She seemed to have a few more tools in her tool chest.  If nothing else works, we may fly to New York for a consult.  Would be interested in visiting with others !
We live in the North Dallas area. I am close to Allen, McKinney, Frisco and Plano.

C'smom

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i live in abilene

Post  dewayned on Tue Nov 05, 2013 5:39 pm

i live in abilene , i want to find someone who knows what the heck they are doing , but no one in dallas seems to take my insurance . i found a place in midland a texas tech center where they are specialist in vulvodynia. i have an appt but not till jan, i have been dealing with this for almost 7 yrs and now my 15 yr old has it .... i am so sad for her . i pray it goes away. good luck starting a group . wish i lived closer .

dewayned

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Re: New Vulvodynia Support Group in Dallas area

Post  Alana3 on Tue Nov 05, 2013 6:06 pm

Sometimes you gotta go wherever even if ur insurance doesnt cover. My doc didn't accept my insurance but I'm cured don't let that good you back from a potential fix

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interested

Post  Willabel on Wed Feb 05, 2014 10:09 pm

Hi, I am Dallas, and interested in joining the group, thank you

Willabel

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Still here for you

Post  Debbie627 on Wed Feb 08, 2017 5:22 am

I have to apologize to all of you. After posting my message about starting a support group in the Dallas area, I stopped looking at this board when I didn't receive any immediate responses. Please know I am still here for you and wanting to do this. Contact me directly at ddc627@gmail.com. We can meet and share experiences. I can share with you what I did and hopefully help you as well.

Debbie627

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Re: New Vulvodynia Support Group in Dallas area

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