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» Vestibulectory removes 85% of pain, Birth removes 15%
Yesterday at 8:27 pm by pangea

» Recovered! It gets better!
Fri May 26, 2017 9:40 pm by mary jane

» Pain management - what works for me
Fri May 26, 2017 6:21 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


New Vulvodynia Support Group in Dallas area

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New Vulvodynia Support Group in Dallas area

Post  Debbie627 on Mon Jul 30, 2012 8:59 pm

When I was officially diagnosed with vulvodynia 2 years ago, I had no one to talk to except my doctor. I tried to discuss and find answers through the various message boards, but found them to be too slow and in some cases outdated. I have 30 years in the computer industry and have pretty good analytical skills, so I set out on a journey to determine the root cause of my condition. I succeeded! Now I feel compelled to work with other women who have this condition to offer some hope, help and comfort.

As such I am starting up a new support group here in the Dallas area for women to actually meet face to face in a nurturing environment to discuss this condition. I believe through an open exchange of ideas and education, we all have the power to find the answers. We know the doctors don't have the answers...it's up to us.

If you live in the area and are interested in participating, please let me know.

Debbie

Debbie627

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Join date : 2012-07-10
Location : Dallas TX

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Seeking help in Dallas Area

Post  rl2091 on Thu Jan 10, 2013 5:25 pm

Debbie,

I also live in the Dallas area (Lucas/Allen), to be exact. I have also worked in IT for almost 30 years. I've been struggling with vulvodynia for almost 2 years. My ob/gyn struggled with it and finally sent me to a physiologist, telling me that we have to fix what's 'up hear' (pointing to my head) before we can fix what's going on down there. I then went to a doctor at UTSouthwestern, which only really sent me to physical thearpy. I've now have gone to a 3rd doctor, which did order blood tests (after my urging) that showed my free testosterone is below normal and my SHBG is way high. However, this doctor knows that is not good, but has no idea what to prescribe. I would like to know how you got help and what doctor you visited.

I'm desperate!!!!!!!!!
Roseann

rl2091

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Re: New Vulvodynia Support Group in Dallas area

Post  C'smom on Sun Aug 04, 2013 5:40 pm

We have also seen several doctors.  (Locally & out of state)  Last week saw a new dr.  I have some hope again.  She seemed to have a few more tools in her tool chest.  If nothing else works, we may fly to New York for a consult.  Would be interested in visiting with others !
We live in the North Dallas area. I am close to Allen, McKinney, Frisco and Plano.

C'smom

Posts : 1
Join date : 2013-08-04
Location : texas

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i live in abilene

Post  dewayned on Tue Nov 05, 2013 5:39 pm

i live in abilene , i want to find someone who knows what the heck they are doing , but no one in dallas seems to take my insurance . i found a place in midland a texas tech center where they are specialist in vulvodynia. i have an appt but not till jan, i have been dealing with this for almost 7 yrs and now my 15 yr old has it .... i am so sad for her . i pray it goes away. good luck starting a group . wish i lived closer .

dewayned

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Re: New Vulvodynia Support Group in Dallas area

Post  Alana3 on Tue Nov 05, 2013 6:06 pm

Sometimes you gotta go wherever even if ur insurance doesnt cover. My doc didn't accept my insurance but I'm cured don't let that good you back from a potential fix

Alana3

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interested

Post  Willabel on Wed Feb 05, 2014 10:09 pm

Hi, I am Dallas, and interested in joining the group, thank you

Willabel

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Still here for you

Post  Debbie627 on Wed Feb 08, 2017 5:22 am

I have to apologize to all of you. After posting my message about starting a support group in the Dallas area, I stopped looking at this board when I didn't receive any immediate responses. Please know I am still here for you and wanting to do this. Contact me directly at ddc627@gmail.com. We can meet and share experiences. I can share with you what I did and hopefully help you as well.

Debbie627

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Location : Dallas TX

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Re: New Vulvodynia Support Group in Dallas area

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