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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

My 6 year story

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My 6 year story

Post  ringostarr26 on Tue Jul 31, 2012 6:18 pm

Hi Ladies,

I am new to this forum and I figured this would be a great place for my first post. I am 22 years old and have had vulvodynia for approximately 6 years. It has definitely been a struggle with many up ands far too many downs, but I'm still fighting everyday. My story began much like many of yours. A nasty yeast infection and UTI that never seemed to go away. I wasn't sexually active at the time so STI's did not play a role. I saw countless doctors who all dismissed my pain and even had a family doctor tell me she would no longer accept me as her patient. As a woman who had female doctor I was repulsed by how quickly she dismissed my concerns and referred me to a councillor because she thought it was all in my head. Crazy right? We have all been there and I want you all to know that although I have been in a nasty flare recently, I am beginning to feel a lot better. Elavil was no help to me, though it was the first choice of treatment from my Gyn. The first year of pain was probably the worst, because like all of you, i tried osteopaths, was on way too much diflucan and flagy, and was in a relationship with a guy who was extremely hormonal like most teens are. Sex with his was coexistent, not because I didn't want it, but because it was too freakin PAINFUL! Here is where my story changes. After developing TMJ after a wisdom teeth surgery gone wrong, I was referred to a pain specialist who was very knowledgeable about pelvic pain as well. He connected my pelvic pain to a nasty fall I had while cheerleading in high school and discussed the possibility of a tail bone injury as well as pelvic floor weakness. Unlike many other doctors, HE CARED. I can't pinpoint exactly what got me to a point of remission but i can tell you all that it lasted 4 years! 4 years of no pain! My most recent flare seemed to have been set off by the same yeast and UTI combo and I have been feeling it for about 2 months. Back to my pain specialist, who believes that my muscles are so tight they are compressing my pelvic nerves. I am now getting treated with compounded vaginal suppositories which contain valium, lidocaine and one other anti-spozmadic? sorry my spelling is terrible. I have the most supportive boyfriend, and my family is right there by my side. I think the meds may be helping but it is too early in the treatment to tell.

IM SO SO SORRY for the long post but i needed to vent and I finally had the guts to join this forum and tell my story. I believe we can all get better, we just need to find a doctor who won't give up; much like my pain specialist. Here is to a pain free future for us all!


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Tail bone

Post  Rainy Day on Tue Jul 31, 2012 6:47 pm

I also have a tailbone injury---broken in 2 spots. I am wondering if I should see a pelvic floor therapy person or a pain specialist for this. It's interesting that this sort of thign can cause all of these issues. Mine also started with a UTI and yeast infection...but I was having some tail bone issues before that somewhat...and then I actually 'broke' my tailbone a month after my problems started...

Rainy Day

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Re: My 6 year story

Post  ringostarr26 on Tue Jul 31, 2012 7:22 pm

My pain specialist said he sees many women and surprisingly men who are snowboarders, bicyclists etc that have these sorts of injuries, which inevitably lead to weak pelvic floor muscles. He believes I was pain free for so many years because I hadn't had any subsequent infections. UTI's and Yeast can cause the muscles to tense up and cause pain that mimics other conditions. I am looking into started PT after my treatment with the suppositories hopefully helps release the muscles. I feel like as much a GYN's can help with the exterior pain issues that they CAN see... a specialist who knows about pelvic floor muscles may be more helpful in diagnosing what could be the root of our pelvic pain. Definitely see if you can get an internal vaginal and rectal exam.... you will be surprised as to how much more painful it is when a doctor knows which muscles are is spasm.


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Re: My 6 year story

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