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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

My 6 year story

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My 6 year story

Post  ringostarr26 on Tue Jul 31, 2012 6:18 pm

Hi Ladies,

I am new to this forum and I figured this would be a great place for my first post. I am 22 years old and have had vulvodynia for approximately 6 years. It has definitely been a struggle with many up ands far too many downs, but I'm still fighting everyday. My story began much like many of yours. A nasty yeast infection and UTI that never seemed to go away. I wasn't sexually active at the time so STI's did not play a role. I saw countless doctors who all dismissed my pain and even had a family doctor tell me she would no longer accept me as her patient. As a woman who had female doctor I was repulsed by how quickly she dismissed my concerns and referred me to a councillor because she thought it was all in my head. Crazy right? We have all been there and I want you all to know that although I have been in a nasty flare recently, I am beginning to feel a lot better. Elavil was no help to me, though it was the first choice of treatment from my Gyn. The first year of pain was probably the worst, because like all of you, i tried osteopaths, was on way too much diflucan and flagy, and was in a relationship with a guy who was extremely hormonal like most teens are. Sex with his was coexistent, not because I didn't want it, but because it was too freakin PAINFUL! Here is where my story changes. After developing TMJ after a wisdom teeth surgery gone wrong, I was referred to a pain specialist who was very knowledgeable about pelvic pain as well. He connected my pelvic pain to a nasty fall I had while cheerleading in high school and discussed the possibility of a tail bone injury as well as pelvic floor weakness. Unlike many other doctors, HE CARED. I can't pinpoint exactly what got me to a point of remission but i can tell you all that it lasted 4 years! 4 years of no pain! My most recent flare seemed to have been set off by the same yeast and UTI combo and I have been feeling it for about 2 months. Back to my pain specialist, who believes that my muscles are so tight they are compressing my pelvic nerves. I am now getting treated with compounded vaginal suppositories which contain valium, lidocaine and one other anti-spozmadic? sorry my spelling is terrible. I have the most supportive boyfriend, and my family is right there by my side. I think the meds may be helping but it is too early in the treatment to tell.

IM SO SO SORRY for the long post but i needed to vent and I finally had the guts to join this forum and tell my story. I believe we can all get better, we just need to find a doctor who won't give up; much like my pain specialist. Here is to a pain free future for us all!


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Join date : 2012-07-31

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Tail bone

Post  Rainy Day on Tue Jul 31, 2012 6:47 pm

I also have a tailbone injury---broken in 2 spots. I am wondering if I should see a pelvic floor therapy person or a pain specialist for this. It's interesting that this sort of thign can cause all of these issues. Mine also started with a UTI and yeast infection...but I was having some tail bone issues before that somewhat...and then I actually 'broke' my tailbone a month after my problems started...

Rainy Day

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Re: My 6 year story

Post  ringostarr26 on Tue Jul 31, 2012 7:22 pm

My pain specialist said he sees many women and surprisingly men who are snowboarders, bicyclists etc that have these sorts of injuries, which inevitably lead to weak pelvic floor muscles. He believes I was pain free for so many years because I hadn't had any subsequent infections. UTI's and Yeast can cause the muscles to tense up and cause pain that mimics other conditions. I am looking into started PT after my treatment with the suppositories hopefully helps release the muscles. I feel like as much a GYN's can help with the exterior pain issues that they CAN see... a specialist who knows about pelvic floor muscles may be more helpful in diagnosing what could be the root of our pelvic pain. Definitely see if you can get an internal vaginal and rectal exam.... you will be surprised as to how much more painful it is when a doctor knows which muscles are is spasm.


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Re: My 6 year story

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