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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

My 6 year story

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My 6 year story

Post  ringostarr26 on Tue Jul 31, 2012 6:18 pm

Hi Ladies,

I am new to this forum and I figured this would be a great place for my first post. I am 22 years old and have had vulvodynia for approximately 6 years. It has definitely been a struggle with many up ands far too many downs, but I'm still fighting everyday. My story began much like many of yours. A nasty yeast infection and UTI that never seemed to go away. I wasn't sexually active at the time so STI's did not play a role. I saw countless doctors who all dismissed my pain and even had a family doctor tell me she would no longer accept me as her patient. As a woman who had female doctor I was repulsed by how quickly she dismissed my concerns and referred me to a councillor because she thought it was all in my head. Crazy right? We have all been there and I want you all to know that although I have been in a nasty flare recently, I am beginning to feel a lot better. Elavil was no help to me, though it was the first choice of treatment from my Gyn. The first year of pain was probably the worst, because like all of you, i tried osteopaths, was on way too much diflucan and flagy, and was in a relationship with a guy who was extremely hormonal like most teens are. Sex with his was coexistent, not because I didn't want it, but because it was too freakin PAINFUL! Here is where my story changes. After developing TMJ after a wisdom teeth surgery gone wrong, I was referred to a pain specialist who was very knowledgeable about pelvic pain as well. He connected my pelvic pain to a nasty fall I had while cheerleading in high school and discussed the possibility of a tail bone injury as well as pelvic floor weakness. Unlike many other doctors, HE CARED. I can't pinpoint exactly what got me to a point of remission but i can tell you all that it lasted 4 years! 4 years of no pain! My most recent flare seemed to have been set off by the same yeast and UTI combo and I have been feeling it for about 2 months. Back to my pain specialist, who believes that my muscles are so tight they are compressing my pelvic nerves. I am now getting treated with compounded vaginal suppositories which contain valium, lidocaine and one other anti-spozmadic? sorry my spelling is terrible. I have the most supportive boyfriend, and my family is right there by my side. I think the meds may be helping but it is too early in the treatment to tell.

IM SO SO SORRY for the long post but i needed to vent and I finally had the guts to join this forum and tell my story. I believe we can all get better, we just need to find a doctor who won't give up; much like my pain specialist. Here is to a pain free future for us all!


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Tail bone

Post  Rainy Day on Tue Jul 31, 2012 6:47 pm

I also have a tailbone injury---broken in 2 spots. I am wondering if I should see a pelvic floor therapy person or a pain specialist for this. It's interesting that this sort of thign can cause all of these issues. Mine also started with a UTI and yeast infection...but I was having some tail bone issues before that somewhat...and then I actually 'broke' my tailbone a month after my problems started...

Rainy Day

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Re: My 6 year story

Post  ringostarr26 on Tue Jul 31, 2012 7:22 pm

My pain specialist said he sees many women and surprisingly men who are snowboarders, bicyclists etc that have these sorts of injuries, which inevitably lead to weak pelvic floor muscles. He believes I was pain free for so many years because I hadn't had any subsequent infections. UTI's and Yeast can cause the muscles to tense up and cause pain that mimics other conditions. I am looking into started PT after my treatment with the suppositories hopefully helps release the muscles. I feel like as much a GYN's can help with the exterior pain issues that they CAN see... a specialist who knows about pelvic floor muscles may be more helpful in diagnosing what could be the root of our pelvic pain. Definitely see if you can get an internal vaginal and rectal exam.... you will be surprised as to how much more painful it is when a doctor knows which muscles are is spasm.


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Re: My 6 year story

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