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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


It's Not Just Me?

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It's Not Just Me?

Post  Think Inside The Box on Fri Aug 10, 2012 7:50 pm

I have suffered from pain at the opening of my vagina on and off for over 30 years. Shocked I've not been officially diagnosed with anything as I've kept this fact to myself, and I'm really grateful that I don't have the extreme symptoms of many women here, but I've gone from occasional discomfort to a state in which areas on the first 1/2" or so of my vagina are perpetually raw. Intercourse is excruciating, I avoid using tampons, birth control foam stings like mad, it's even uncomfortable to wash the area gently with regular soap. Again, I'm hugely thankful that as long as I completely ignore my vagina it ignores me, but ... not exactly the relationship I was hoping for.

My gut feeling is that this is somehow tied to a transmissible disease. The second man I ever slept with gave me trichomonas (and crabs, and possibly chlamydia, thank you Andrew), which was the first time I ever had this discomfort. Is it possible that a disease I had thirty years ago is somehow latent but still causing this oversensitivity? I test negative for everything, but it just doesn't seem like it's simply a matter of thinning or delicate, vulnerable skin. I went six months without intercourse and very little vaginal interaction of any kind other than gentle rinsing without touching, and intercourse last week was instantly, hugely painful. Yes, as I age and my estrogen levels drop I become more and more vulnerable to abrasion, but this has been going on "forever", long before I approached menopause. And it's most definitely NOT in my head. Intercourse I wasn't properly lubricated for definitely makes it worse, but what makes these uber-sensitive, reactive patches in the first place???

Anyone else have the same suspicions? Do you know if there is ongoing research into a biological agent as a cause of vulvodynia?

Weird little aside: my vet was suspicious that my cat (no not my pussy, my cat Laughing ) might have ringworm so I was checking him with a blacklight the other night, because ringworm sometimes fluoresces under ultraviolet. Being the geek I am, I started looking at all sorts of things with the light. since my bout of intercourse a few days ago I've started feeling a bit itchy in addition to raw. I took a look at a vaginal secretion that looked normal, maybe a little yellowish, and it was a salmony pink color under the blacklight. ??? Is there a fungus among-us? Has Dr. Box discovered a new disease?


Last edited by Think Inside The Box on Fri Aug 10, 2012 8:16 pm; edited 1 time in total (Reason for editing : added a paragraph)

Think Inside The Box

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Join date : 2012-08-10

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