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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


It's Not Just Me?

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It's Not Just Me?

Post  Think Inside The Box on Fri Aug 10, 2012 7:50 pm

I have suffered from pain at the opening of my vagina on and off for over 30 years. Shocked I've not been officially diagnosed with anything as I've kept this fact to myself, and I'm really grateful that I don't have the extreme symptoms of many women here, but I've gone from occasional discomfort to a state in which areas on the first 1/2" or so of my vagina are perpetually raw. Intercourse is excruciating, I avoid using tampons, birth control foam stings like mad, it's even uncomfortable to wash the area gently with regular soap. Again, I'm hugely thankful that as long as I completely ignore my vagina it ignores me, but ... not exactly the relationship I was hoping for.

My gut feeling is that this is somehow tied to a transmissible disease. The second man I ever slept with gave me trichomonas (and crabs, and possibly chlamydia, thank you Andrew), which was the first time I ever had this discomfort. Is it possible that a disease I had thirty years ago is somehow latent but still causing this oversensitivity? I test negative for everything, but it just doesn't seem like it's simply a matter of thinning or delicate, vulnerable skin. I went six months without intercourse and very little vaginal interaction of any kind other than gentle rinsing without touching, and intercourse last week was instantly, hugely painful. Yes, as I age and my estrogen levels drop I become more and more vulnerable to abrasion, but this has been going on "forever", long before I approached menopause. And it's most definitely NOT in my head. Intercourse I wasn't properly lubricated for definitely makes it worse, but what makes these uber-sensitive, reactive patches in the first place???

Anyone else have the same suspicions? Do you know if there is ongoing research into a biological agent as a cause of vulvodynia?

Weird little aside: my vet was suspicious that my cat (no not my pussy, my cat Laughing ) might have ringworm so I was checking him with a blacklight the other night, because ringworm sometimes fluoresces under ultraviolet. Being the geek I am, I started looking at all sorts of things with the light. since my bout of intercourse a few days ago I've started feeling a bit itchy in addition to raw. I took a look at a vaginal secretion that looked normal, maybe a little yellowish, and it was a salmony pink color under the blacklight. ??? Is there a fungus among-us? Has Dr. Box discovered a new disease?


Last edited by Think Inside The Box on Fri Aug 10, 2012 8:16 pm; edited 1 time in total (Reason for editing : added a paragraph)

Think Inside The Box

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