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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


It's Not Just Me?

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It's Not Just Me?

Post  Think Inside The Box on Fri Aug 10, 2012 7:50 pm

I have suffered from pain at the opening of my vagina on and off for over 30 years. Shocked I've not been officially diagnosed with anything as I've kept this fact to myself, and I'm really grateful that I don't have the extreme symptoms of many women here, but I've gone from occasional discomfort to a state in which areas on the first 1/2" or so of my vagina are perpetually raw. Intercourse is excruciating, I avoid using tampons, birth control foam stings like mad, it's even uncomfortable to wash the area gently with regular soap. Again, I'm hugely thankful that as long as I completely ignore my vagina it ignores me, but ... not exactly the relationship I was hoping for.

My gut feeling is that this is somehow tied to a transmissible disease. The second man I ever slept with gave me trichomonas (and crabs, and possibly chlamydia, thank you Andrew), which was the first time I ever had this discomfort. Is it possible that a disease I had thirty years ago is somehow latent but still causing this oversensitivity? I test negative for everything, but it just doesn't seem like it's simply a matter of thinning or delicate, vulnerable skin. I went six months without intercourse and very little vaginal interaction of any kind other than gentle rinsing without touching, and intercourse last week was instantly, hugely painful. Yes, as I age and my estrogen levels drop I become more and more vulnerable to abrasion, but this has been going on "forever", long before I approached menopause. And it's most definitely NOT in my head. Intercourse I wasn't properly lubricated for definitely makes it worse, but what makes these uber-sensitive, reactive patches in the first place???

Anyone else have the same suspicions? Do you know if there is ongoing research into a biological agent as a cause of vulvodynia?

Weird little aside: my vet was suspicious that my cat (no not my pussy, my cat Laughing ) might have ringworm so I was checking him with a blacklight the other night, because ringworm sometimes fluoresces under ultraviolet. Being the geek I am, I started looking at all sorts of things with the light. since my bout of intercourse a few days ago I've started feeling a bit itchy in addition to raw. I took a look at a vaginal secretion that looked normal, maybe a little yellowish, and it was a salmony pink color under the blacklight. ??? Is there a fungus among-us? Has Dr. Box discovered a new disease?


Last edited by Think Inside The Box on Fri Aug 10, 2012 8:16 pm; edited 1 time in total (Reason for editing : added a paragraph)

Think Inside The Box

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