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» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


newbie need advice please

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newbie need advice please

Post  julieannboo on Mon Aug 13, 2012 9:51 am

hello,

i was wondering if anyone can help me.

Back in June i had thrush - so i used two pessaries which stung like hell. The thrush cleared up.

About a week later i was due for my period and i remember wiping myself hard about a few times to see if i had started yet. This was about 6 weeks ago.

That made it sting. It has been pretty much stinging ever since and just generally uncomfortable.

i went to the docs they had a look and thought it might have been a cyst then turned to a boil and gave me antibiotics.

That didnt work.

I went back and i asked for a swab to be taken - they said they cant see any infection but did it anyway. I am waiting for the results to see if their is an infection.

The doc also gave me some steriod cream - which i started using yesterday.

I suffer from massive anxiety and depression - i am currently weaning off of anti depressants - so all i am doing is focusing on the pain down there at the moment and it is making me miserable.

is there any advice or tips you can give me please.

i am desperate.

thank you x


Last edited by julieannboo on Fri Aug 17, 2012 10:49 am; edited 1 time in total

julieannboo

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Julieannboo

Post  BpCookie on Thu Aug 16, 2012 6:50 pm

Hello Julie, You poor sweetie. I think you should go to a Gyno. Reg. Dr.s really dont have much of a clue when it comes to vagina's. They used to tell me "Everything looks fine." But I was thinking "then why in the Hell does it hurt so much". A Gyno can diagnose the problem much better. You could have a number of things going on. Bacterial inf., strep, fissure, you could have irritated it by wiping hard, etc. It could be anything. Try not to worry too much until you get a diagnosis.

For the time being buy some oatmeal bath stuff, run some cool water in the tub and sit in it for 15 mins. You can do that twice a day. You can buy it at CVS or Walgreens. Also try using an ice pack. You can sit on it, but only use it for a few minutes. You can use some A and D ointment on the vulva area only, dont put it inside the vagina. If possible, dont wear underwear and wear skirts instead of pants.

I hope that helps. Good luck to you. hugs
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Re: newbie need advice please

Post  julieannboo on Fri Aug 17, 2012 8:37 am

Thank you.

Swabs came back and said thrush. Took an oral tablet 150mg two days ago. still stings though.

Want this to stop.

Is replens any good for dryness and stinging?

i am in the uk.

i have ordered some aveeno oatmeal bath from the internet x

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re-Julie

Post  BpCookie on Fri Aug 17, 2012 2:14 pm

Im not familiar with Replens. Im 47 yrs old and I have dryness on the outside as well as the inside. For the inside I just use K-Jelly or Astro Lube or any other kind of intercourse lube. I pour some into a small plunger (same thing you use when you use the cream YI med) and put it in that way. For the outside I use a bit of A and D ointment.

I noticed that you said you suffer from anxiety and Depression. I used to suffer from depression too. Im Bipolar and my meds have kept me pretty stable. Are you taking anything for the anxiety? Anxiety feels just horrible, I suffer from that as well. I take Lorazepam for my anxiety.

Anyways, I hope you feel better soon. Take care. hugs
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Re: newbie need advice please

Post  julieannboo on Fri Aug 17, 2012 3:24 pm

BpCookie wrote:Im not familiar with Replens. Im 47 yrs old and I have dryness on the outside as well as the inside. For the inside I just use K-Jelly or Astro Lube or any other kind of intercourse lube. I pour some into a small plunger (same thing you use when you use the cream YI med) and put it in that way. For the outside I use a bit of A and D ointment.

I noticed that you said you suffer from anxiety and Depression. I used to suffer from depression too. Im Bipolar and my meds have kept me pretty stable. Are you taking anything for the anxiety? Anxiety feels just horrible, I suffer from that as well. I take Lorazepam for my anxiety.

Anyways, I hope you feel better soon. Take care. hugs

yes i have been on paxil 20mg for almost 13 years.

i started withdrawing off the drug 12 months ago. i got down to 5.2mg but felt so low that today i went back up to 6mg.

maybe this has something to do with my pain down below?

it certainly isnt helping.

thank you - sending love from london x

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Re: newbie need advice please

Post  Loulou on Sun Aug 19, 2012 9:39 pm

Hi there - i've replied earlier to your other post about leaving things alone down there. I noticed from your first post here that you suffer from anxiety and depression. I was wondering if your anxiety causes you to tense your body? I'm a bit of a stress -head and often find myself clenching my teeth, tensing my abdomen/pelvis or generally holding tension somewhere in my body without realising i've done it (i've become much more aware of it since my vvd and now make a real effort to be more aware of my body). I think this tension has played a definite role in my vvd.

Vvd pain is awful and understandably could be affecting your depression. If upping your dosage a little helps you get through this then so be it. Once your pain is less (i'm sure you will find something on this forum that will help you) you can get back on track with your withdrawal plan.

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Re: newbie need advice please

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