Log in

I forgot my password

Latest topics
» Anyone have pain with urination?
Yesterday at 9:55 am by Gaby

» New member - just looking for feedback
Mon Oct 15, 2018 5:40 pm by mertzwl

» Will I ever be able to wear jeans?
Sun Oct 14, 2018 4:14 pm by Npage14

» Amitriptyline Success and new-found love
Thu Oct 11, 2018 8:29 pm by megaanx

» Diagnosed recently, looking for advice
Wed Oct 10, 2018 2:30 pm by wuhujen

» Dose HAVING VULVODYNIA MEANS YOU HAVE LUPUS?? HELP IM FREAKING OUT!
Wed Oct 10, 2018 2:01 pm by pussycat

» From a concerned husband
Wed Oct 10, 2018 1:46 pm by shope610

» Had this for 5 years, looking for people who understand
Wed Oct 10, 2018 1:55 am by Npage14

» 6 year sufferer but I’ve found some hope
Wed Oct 10, 2018 1:33 am by Npage14

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Vulvodynia Documentary

Go down

Vulvodynia Documentary

Post  sandra13 on Thu Aug 16, 2012 8:02 pm

Hello everybody,

My name is Sandra and I have vulvodynia since almost 3 years ago, but I was only diagnosed 6 months ago. I have tried many treatments, including antidepressants, but my condition is getting worse.

I am also a filmmaker and I have decided that I want to make a low budget documentary about Vulvodynia and its emotional implications in women's lives. I am still in the process of doing research and finding funding, and I am searching for women who would be willing to participate in the documentary. I live in London and for budget reasons I would prefer women that live here as well, but if you suffer from Vulvodynia and do not live here and want to participate contact me anyway, I would love to hear your story.

I hope this documentary will be a cathartic experience for me and will bring this subject to the public sphere, so no women have to wait two years before they are diagnosed.

sandra13

Posts : 2
Join date : 2012-08-16
Age : 35

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  JemimaSurrender on Wed Aug 22, 2012 11:19 am

Hey Sandra!

I've only just seen your post...

I live near Birmingham and I'd be interested to hear your ideas on this documentary. I'm a pretty shy person as it is, and when it comes to talking about something like this you can imagine it's a lot worse! But for a cause this good? I reckon I could be a part of it.

If I can be any help let me know!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 29
Location : Staffordshire, UK

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  sandra13 on Sat Aug 25, 2012 8:56 pm

Hi,

Thank you for replying to my post. I will send you an email with my sinopses and more details.

Thanks!

Sandra

sandra13

Posts : 2
Join date : 2012-08-16
Age : 35

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  LisaAlhadeff on Sat Sep 29, 2012 11:10 am

Hi,

How far have you got with this? I'd be really interested in getting involved.

I'm currently battling to find a solution and wish there was some sort of documentary.

I live in Leeds, but have family in London.

Lisa

LisaAlhadeff

Posts : 3
Join date : 2012-09-29

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  nova_chek on Sat Sep 29, 2012 4:00 pm

Unfortunately I don't live near you, but I wouldn't mind giving you my thoughts on how vulvodynia has affected me if you need me to. I think this is great what you are doing, people need to hear about this condition and understand the effects it has on women and their loved ones. Good luck!

nova_chek

Posts : 12
Join date : 2012-09-29

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  huigensa on Mon Feb 11, 2013 5:31 am

Sandra,

I think this documentary is a fantastic idea and much needed. I have experienced vulvodynia my whole life and only came to accept it/admit it to myself about two years ago. I go to college in Wisconsin (am originally from New York), so I would probably not be able to help you very much with your movie, but I would like to to speak to you more in depth about this. You see, I'm taking a course on women's health issues this semester, and have been assigned a qualitative research project. I am currently in the process of gathering volunteers to interview about their experiences with sexual pain. One of the requirements for interviewees is that I must speak with someone who identifies as a women's health activist. I think that by planning to make such a film in order to inform women about this disorder, you definitely qualify as an activist. I would really appreciate the chance to interview you and include you in my research paper. Please let me know if you would be willing to do so. Feel free to contact me anytime directly at huigensa@beloit.edu if you think you have the time or desire to be involved.

Thank you for your future plans and considering my request.

Audrey Huigens

huigensa

Posts : 7
Join date : 2012-12-23
Location : WI, USA

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  tinkerbelle2 on Mon Sep 30, 2013 10:39 am

Hi Sandra,

I am in Brighton so not too far!

I am also very shy but would be interested in getting involved.

EDIT: Just realised this was an old post! Did you guys manage to get anything together?! Smile 


Last edited by tinkerbelle2 on Thu Oct 03, 2013 2:09 pm; edited 1 time in total
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 26
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  Elc88 on Mon Sep 30, 2013 7:46 pm

Tinkerbelle's post brought this up to the top - I hadn't seen it before?

Are you still looking to do the documentary? I am in Cambridgeshire, only a £12 train ticket to London (on a weekend), and happy to help.

Personally I've been thinking of bringing this to the attention of some women's magazines. If 15% of the female population really do suffer from this, they have a really wide audience to speak to!

Elc88

Posts : 55
Join date : 2013-07-20

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  tinkerbelle2 on Thu Oct 03, 2013 2:11 pm

Elc88 wrote:Tinkerbelle's post brought this up to the top - I hadn't seen it before?

Are you still looking to do the documentary? I am in Cambridgeshire, only a £12 train ticket to London (on a weekend), and happy to help.

Personally I've been thinking of bringing this to the attention of some women's magazines. If 15% of the female population really do suffer from this, they have a really wide audience to speak to!
That would be a great idea! I remember seeing something about it on Channel 4 embarassing bodies but they didn't really go into a lot of detail. Magazine article would be a good way of reaching out to other suffering girls and women and spreading the word!
avatar
tinkerbelle2

Posts : 302
Join date : 2013-09-28
Age : 26
Location : Brighton, England, UK.

View user profile

Back to top Go down

Re: Vulvodynia Documentary

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum