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» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

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Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Numbing cream?

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Numbing cream?

Post  Julie on Mon Aug 02, 2010 2:30 pm

I was watching a TV show last night humorously enough called "Strange Sex"... usually, stories about people with odd experiences, etc. They had a segment on a girl with vulvodynia and she even went through surgery, but could find no relief. Hers seemed to be of the primary sort, I think it's called, in which intercourse was painful for her from the very first time, whereas mine developed years later, as I think many of your cases might have... and she discussed using lidocaine, some sort of topical anaesthetic. Anyone have any experience with this? I am hoping that this will be resolved at some point, but if I get to the point at which I can't find anything, I suppose temporary relief might have to do>..?

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Re: Numbing cream?

Post  Sarah001 on Mon Aug 02, 2010 7:11 pm

I've seen alot of women discuss it online and some have good results with it where they can't feel the pain any more but alot of them have a reaction to the actual cream either immediately or after time and it burns even worse so it's hit and miss I'm afraid. I don't think it would help me because anything in a cream base sets my skin off even worse than it already is, I can use so few topical treaments without an adverse reaction I just daren't try it. You can buy it online here in the UK but I haven't seen it in any high street chemists. American ladies have mentioned being prescribed it though so I'm not sure if you can buy it OTC in the US.
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Re: Numbing cream?

Post  maggie on Mon Aug 02, 2010 8:14 pm


Hi, i was given numbing cream when my vulvodynia first started, but it did nothing for me, but it might work for others. I was also given the cream by my gyne, when i told her how painful intercorse was, but to be honest where at the start of this nightmare, where my GP would not send me to see a gyne i had to go to harley st, where i was told i had 2nd degree burns from all the different creams i was given, i just so scared of creams,the only one i use is aqrous on the anus erea. The gyne said the numbing cream works for a lot of women, but for me where i used it before and it did't work ,to scared to use it again after the first time, but always make sure it's ok for you to use from your gyne, not your GP.

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Re: Numbing cream?

Post  tweety on Tue Aug 03, 2010 11:48 am

Hi Julie,

I find the lignocaine gel 2% works for me. The 5% strength one causes burning. As part of my treatment, I'm suppose to apply it 3-5 times daily. I think it's suppose to de-sensitise me a little but I haven't been doing it.

Sue

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Re: Numbing cream?

Post  lisa98 on Wed Aug 04, 2010 9:29 am

I tried it. It didnt seem to irritate my skin too much but it didnt do much for the pain, either. I had to smear loads of the stuff on and it did become numb enough to get some sex started. It felt uncomfortable and weird. As I am sensitive to condoms, my partner got it all over him too, went numb, lost his erection and we just decided to have dissapointed cuddles with our numb genitals and never try that again.

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Re: Numbing cream?

Post  Sebby (Admin) on Wed Aug 04, 2010 9:15 pm


Awww Lisa, thats the trouble with it cos it goes on the fella too. Is it the latex in condoms you are sensitive too? or justin general? they do non latex.
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Re: Numbing cream?

Post  Julie on Thu Aug 05, 2010 2:11 pm

ahh, doesn't sound too fun, haha! I was just wondering. I am nearly halfway through a 6-wk course of Diflucan to kill some yeast my latest doctor found, which I'm sure won't fix things, but could have been the root of all of this... persistent yeast...anyone think so? After that, if she doesn't have more to say, I'll have to look harder for a specialist...

the more I think about it, the less i want to use numbing cream. Though I have heard of local numbing injections-- thoughts?

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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 6:14 pm

I was in contact with this lady (see link below) regularly last year (phone consultations email etc) She's lovely. I think my condition def' sounds like her theory. If the consultants cant help my in Oxford I will continue with her ten step programme and hardcore antifungal treatments (with regular kidney function tests again).

Its worth buying the information pack from her its amazing how much research she has d one over the years and been in our position with similar symptoms when she was younger.

http://www.empowher.com/node/1002094/subscribe
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Re: Numbing cream?

Post  Sarah001 on Thu Aug 05, 2010 6:37 pm

I think her theory is interesting but I've got to say I don't think it's my problem, I haven't had a yeast infection in years and I always used to get some itching with them which I don't have with this. Does she work with your GP on this Naomi? Is that how the kidney function tests come about?
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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 6:53 pm

last year i tried it with about 3 months high strength fluconazole. Im not sure if it was the anti fungal or the stress (I got completely stressed when i was signed off work last year) but my hair feel out, id say about a 1/4 of it, i used to have thick hair. My GP read a bit of her info pack (it is about an inch thick) and agreed to try. She emailed my GP with guidance. But after 3 months no change and I realised that if I didnt try the UK treatment/consultants I stood no chance with claiming housing benefits, incapacity benefits and tribunals.

fluconazole in high doses aparently affects the Liver (sorry I meant liver not kidney!!), so I had to have weekly liver function tests at the hospital.

So I think I will def try it again with the diet, lifestyle changes, antifungals ( might have to buy a wig!) etc. As I dont hold out much hope with the present specialists...3 month wait for my biopsy results!!!! effing health service.
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Re: Numbing cream?

Post  Sarah001 on Thu Aug 05, 2010 7:30 pm

Three months on the yeast regime sounds like you gave it a fair trial last time. I'm a bit alarmed about the hair loss!! Shocked It sounds harsh, especially if a weekly liver function test is needed, I know for a fact my GP wouldn't agree to send me for weekly blood tests!

And 3 months for your biopsy results? I thought they said a couple of weeks? Surely they'll have them sooner than that! Rolling Eyes
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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 8:57 pm

the vulva clinic in oxford is only every 3 months!!! I know! stupid! as it is a joint clinic with a dermatologist and a gynae together. Ive been trying to chase up a private appointment instead but getting any answers out of the john radcliffe is like getting blood out of a stone!!!! GRRRRRRRRRR

....its not as if I'd like to have a life to lead!!!?!
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Re: Numbing cream?

Post  julia on Fri Aug 06, 2010 11:04 am

numbing cream - i'm currently prescribed dermovate which is a steroid cream (the one up from betnovate).... by no means a long term solution but it helps me massively when I use it. Unfortunately you can't use it in sex, but it's not harmful to your partner if there's still traces of it about.

and with biopsies, it took me just under 3 months to find out with a fully functioning gyno clinic!!!

Sadly though, despite the result it doesn't seem any closer to resolution.... and the boyfriend has been pressuring a bit for sex which I'm worried about as I'm just worried about the pain in general, and if I can't handle it the matter becomes even worse!

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Re: Numbing cream?

Post  Sarah001 on Fri Aug 06, 2010 11:19 am

Can I ask what your biopsy results showd julia? It seems odd the strong steroid cream works for you so do you have a skin condition? When I tried that potency of steroid cream it burnt a layer of skin off which wasn't at all helpful!
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Re: Numbing cream?

Post  julia on Fri Aug 13, 2010 6:33 pm

yeah sure, basically it showed that I had vulvodynia.

It was a toss up between vulvodynia and lichen schlerosis (skin condition) before the biopsy, but the results didn't show any skin conditions whatsoever.

weird huh?

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Re: Numbing cream?

Post  Sarah001 on Fri Aug 13, 2010 7:05 pm

That is odd, normally if there's no skin condition present the strong steroid creams don't help with the inflammation. I was given it after a GP thought I had Lichen Planus and she also gave me the ointment version so a cream base wasn't involved to irritate me and it really burnt a layer of skin off. I find the 1% hydrocortisone is useful if I get a huge worsening of symptoms but only to get me back to my normal pain level and not beyond that. It's very lucky it works for you!
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Re: Numbing cream?

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