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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Numbing cream?

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Numbing cream?

Post  Julie on Mon Aug 02, 2010 2:30 pm

I was watching a TV show last night humorously enough called "Strange Sex"... usually, stories about people with odd experiences, etc. They had a segment on a girl with vulvodynia and she even went through surgery, but could find no relief. Hers seemed to be of the primary sort, I think it's called, in which intercourse was painful for her from the very first time, whereas mine developed years later, as I think many of your cases might have... and she discussed using lidocaine, some sort of topical anaesthetic. Anyone have any experience with this? I am hoping that this will be resolved at some point, but if I get to the point at which I can't find anything, I suppose temporary relief might have to do>..?

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Re: Numbing cream?

Post  Sarah001 on Mon Aug 02, 2010 7:11 pm

I've seen alot of women discuss it online and some have good results with it where they can't feel the pain any more but alot of them have a reaction to the actual cream either immediately or after time and it burns even worse so it's hit and miss I'm afraid. I don't think it would help me because anything in a cream base sets my skin off even worse than it already is, I can use so few topical treaments without an adverse reaction I just daren't try it. You can buy it online here in the UK but I haven't seen it in any high street chemists. American ladies have mentioned being prescribed it though so I'm not sure if you can buy it OTC in the US.
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Re: Numbing cream?

Post  maggie on Mon Aug 02, 2010 8:14 pm


Hi, i was given numbing cream when my vulvodynia first started, but it did nothing for me, but it might work for others. I was also given the cream by my gyne, when i told her how painful intercorse was, but to be honest where at the start of this nightmare, where my GP would not send me to see a gyne i had to go to harley st, where i was told i had 2nd degree burns from all the different creams i was given, i just so scared of creams,the only one i use is aqrous on the anus erea. The gyne said the numbing cream works for a lot of women, but for me where i used it before and it did't work ,to scared to use it again after the first time, but always make sure it's ok for you to use from your gyne, not your GP.

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Re: Numbing cream?

Post  tweety on Tue Aug 03, 2010 11:48 am

Hi Julie,

I find the lignocaine gel 2% works for me. The 5% strength one causes burning. As part of my treatment, I'm suppose to apply it 3-5 times daily. I think it's suppose to de-sensitise me a little but I haven't been doing it.

Sue

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Re: Numbing cream?

Post  lisa98 on Wed Aug 04, 2010 9:29 am

I tried it. It didnt seem to irritate my skin too much but it didnt do much for the pain, either. I had to smear loads of the stuff on and it did become numb enough to get some sex started. It felt uncomfortable and weird. As I am sensitive to condoms, my partner got it all over him too, went numb, lost his erection and we just decided to have dissapointed cuddles with our numb genitals and never try that again.

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Re: Numbing cream?

Post  Sebby (Admin) on Wed Aug 04, 2010 9:15 pm


Awww Lisa, thats the trouble with it cos it goes on the fella too. Is it the latex in condoms you are sensitive too? or justin general? they do non latex.
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Re: Numbing cream?

Post  Julie on Thu Aug 05, 2010 2:11 pm

ahh, doesn't sound too fun, haha! I was just wondering. I am nearly halfway through a 6-wk course of Diflucan to kill some yeast my latest doctor found, which I'm sure won't fix things, but could have been the root of all of this... persistent yeast...anyone think so? After that, if she doesn't have more to say, I'll have to look harder for a specialist...

the more I think about it, the less i want to use numbing cream. Though I have heard of local numbing injections-- thoughts?

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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 6:14 pm

I was in contact with this lady (see link below) regularly last year (phone consultations email etc) She's lovely. I think my condition def' sounds like her theory. If the consultants cant help my in Oxford I will continue with her ten step programme and hardcore antifungal treatments (with regular kidney function tests again).

Its worth buying the information pack from her its amazing how much research she has d one over the years and been in our position with similar symptoms when she was younger.

http://www.empowher.com/node/1002094/subscribe
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Re: Numbing cream?

Post  Sarah001 on Thu Aug 05, 2010 6:37 pm

I think her theory is interesting but I've got to say I don't think it's my problem, I haven't had a yeast infection in years and I always used to get some itching with them which I don't have with this. Does she work with your GP on this Naomi? Is that how the kidney function tests come about?
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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 6:53 pm

last year i tried it with about 3 months high strength fluconazole. Im not sure if it was the anti fungal or the stress (I got completely stressed when i was signed off work last year) but my hair feel out, id say about a 1/4 of it, i used to have thick hair. My GP read a bit of her info pack (it is about an inch thick) and agreed to try. She emailed my GP with guidance. But after 3 months no change and I realised that if I didnt try the UK treatment/consultants I stood no chance with claiming housing benefits, incapacity benefits and tribunals.

fluconazole in high doses aparently affects the Liver (sorry I meant liver not kidney!!), so I had to have weekly liver function tests at the hospital.

So I think I will def try it again with the diet, lifestyle changes, antifungals ( might have to buy a wig!) etc. As I dont hold out much hope with the present specialists...3 month wait for my biopsy results!!!! effing health service.
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Re: Numbing cream?

Post  Sarah001 on Thu Aug 05, 2010 7:30 pm

Three months on the yeast regime sounds like you gave it a fair trial last time. I'm a bit alarmed about the hair loss!! Shocked It sounds harsh, especially if a weekly liver function test is needed, I know for a fact my GP wouldn't agree to send me for weekly blood tests!

And 3 months for your biopsy results? I thought they said a couple of weeks? Surely they'll have them sooner than that! Rolling Eyes
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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 8:57 pm

the vulva clinic in oxford is only every 3 months!!! I know! stupid! as it is a joint clinic with a dermatologist and a gynae together. Ive been trying to chase up a private appointment instead but getting any answers out of the john radcliffe is like getting blood out of a stone!!!! GRRRRRRRRRR

....its not as if I'd like to have a life to lead!!!?!
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Re: Numbing cream?

Post  julia on Fri Aug 06, 2010 11:04 am

numbing cream - i'm currently prescribed dermovate which is a steroid cream (the one up from betnovate).... by no means a long term solution but it helps me massively when I use it. Unfortunately you can't use it in sex, but it's not harmful to your partner if there's still traces of it about.

and with biopsies, it took me just under 3 months to find out with a fully functioning gyno clinic!!!

Sadly though, despite the result it doesn't seem any closer to resolution.... and the boyfriend has been pressuring a bit for sex which I'm worried about as I'm just worried about the pain in general, and if I can't handle it the matter becomes even worse!

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Re: Numbing cream?

Post  Sarah001 on Fri Aug 06, 2010 11:19 am

Can I ask what your biopsy results showd julia? It seems odd the strong steroid cream works for you so do you have a skin condition? When I tried that potency of steroid cream it burnt a layer of skin off which wasn't at all helpful!
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Re: Numbing cream?

Post  julia on Fri Aug 13, 2010 6:33 pm

yeah sure, basically it showed that I had vulvodynia.

It was a toss up between vulvodynia and lichen schlerosis (skin condition) before the biopsy, but the results didn't show any skin conditions whatsoever.

weird huh?

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Re: Numbing cream?

Post  Sarah001 on Fri Aug 13, 2010 7:05 pm

That is odd, normally if there's no skin condition present the strong steroid creams don't help with the inflammation. I was given it after a GP thought I had Lichen Planus and she also gave me the ointment version so a cream base wasn't involved to irritate me and it really burnt a layer of skin off. I find the 1% hydrocortisone is useful if I get a huge worsening of symptoms but only to get me back to my normal pain level and not beyond that. It's very lucky it works for you!
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Re: Numbing cream?

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