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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

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New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

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Numbing cream?

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Numbing cream?

Post  Julie on Mon Aug 02, 2010 2:30 pm

I was watching a TV show last night humorously enough called "Strange Sex"... usually, stories about people with odd experiences, etc. They had a segment on a girl with vulvodynia and she even went through surgery, but could find no relief. Hers seemed to be of the primary sort, I think it's called, in which intercourse was painful for her from the very first time, whereas mine developed years later, as I think many of your cases might have... and she discussed using lidocaine, some sort of topical anaesthetic. Anyone have any experience with this? I am hoping that this will be resolved at some point, but if I get to the point at which I can't find anything, I suppose temporary relief might have to do>..?

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Re: Numbing cream?

Post  Sarah001 on Mon Aug 02, 2010 7:11 pm

I've seen alot of women discuss it online and some have good results with it where they can't feel the pain any more but alot of them have a reaction to the actual cream either immediately or after time and it burns even worse so it's hit and miss I'm afraid. I don't think it would help me because anything in a cream base sets my skin off even worse than it already is, I can use so few topical treaments without an adverse reaction I just daren't try it. You can buy it online here in the UK but I haven't seen it in any high street chemists. American ladies have mentioned being prescribed it though so I'm not sure if you can buy it OTC in the US.
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Re: Numbing cream?

Post  maggie on Mon Aug 02, 2010 8:14 pm


Hi, i was given numbing cream when my vulvodynia first started, but it did nothing for me, but it might work for others. I was also given the cream by my gyne, when i told her how painful intercorse was, but to be honest where at the start of this nightmare, where my GP would not send me to see a gyne i had to go to harley st, where i was told i had 2nd degree burns from all the different creams i was given, i just so scared of creams,the only one i use is aqrous on the anus erea. The gyne said the numbing cream works for a lot of women, but for me where i used it before and it did't work ,to scared to use it again after the first time, but always make sure it's ok for you to use from your gyne, not your GP.

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Re: Numbing cream?

Post  tweety on Tue Aug 03, 2010 11:48 am

Hi Julie,

I find the lignocaine gel 2% works for me. The 5% strength one causes burning. As part of my treatment, I'm suppose to apply it 3-5 times daily. I think it's suppose to de-sensitise me a little but I haven't been doing it.

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Re: Numbing cream?

Post  lisa98 on Wed Aug 04, 2010 9:29 am

I tried it. It didnt seem to irritate my skin too much but it didnt do much for the pain, either. I had to smear loads of the stuff on and it did become numb enough to get some sex started. It felt uncomfortable and weird. As I am sensitive to condoms, my partner got it all over him too, went numb, lost his erection and we just decided to have dissapointed cuddles with our numb genitals and never try that again.

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Re: Numbing cream?

Post  Sebby (Admin) on Wed Aug 04, 2010 9:15 pm


Awww Lisa, thats the trouble with it cos it goes on the fella too. Is it the latex in condoms you are sensitive too? or justin general? they do non latex.
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Re: Numbing cream?

Post  Julie on Thu Aug 05, 2010 2:11 pm

ahh, doesn't sound too fun, haha! I was just wondering. I am nearly halfway through a 6-wk course of Diflucan to kill some yeast my latest doctor found, which I'm sure won't fix things, but could have been the root of all of this... persistent yeast...anyone think so? After that, if she doesn't have more to say, I'll have to look harder for a specialist...

the more I think about it, the less i want to use numbing cream. Though I have heard of local numbing injections-- thoughts?

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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 6:14 pm

I was in contact with this lady (see link below) regularly last year (phone consultations email etc) She's lovely. I think my condition def' sounds like her theory. If the consultants cant help my in Oxford I will continue with her ten step programme and hardcore antifungal treatments (with regular kidney function tests again).

Its worth buying the information pack from her its amazing how much research she has d one over the years and been in our position with similar symptoms when she was younger.

http://www.empowher.com/node/1002094/subscribe
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Re: Numbing cream?

Post  Sarah001 on Thu Aug 05, 2010 6:37 pm

I think her theory is interesting but I've got to say I don't think it's my problem, I haven't had a yeast infection in years and I always used to get some itching with them which I don't have with this. Does she work with your GP on this Naomi? Is that how the kidney function tests come about?
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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 6:53 pm

last year i tried it with about 3 months high strength fluconazole. Im not sure if it was the anti fungal or the stress (I got completely stressed when i was signed off work last year) but my hair feel out, id say about a 1/4 of it, i used to have thick hair. My GP read a bit of her info pack (it is about an inch thick) and agreed to try. She emailed my GP with guidance. But after 3 months no change and I realised that if I didnt try the UK treatment/consultants I stood no chance with claiming housing benefits, incapacity benefits and tribunals.

fluconazole in high doses aparently affects the Liver (sorry I meant liver not kidney!!), so I had to have weekly liver function tests at the hospital.

So I think I will def try it again with the diet, lifestyle changes, antifungals ( might have to buy a wig!) etc. As I dont hold out much hope with the present specialists...3 month wait for my biopsy results!!!! effing health service.
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Re: Numbing cream?

Post  Sarah001 on Thu Aug 05, 2010 7:30 pm

Three months on the yeast regime sounds like you gave it a fair trial last time. I'm a bit alarmed about the hair loss!! Shocked It sounds harsh, especially if a weekly liver function test is needed, I know for a fact my GP wouldn't agree to send me for weekly blood tests!

And 3 months for your biopsy results? I thought they said a couple of weeks? Surely they'll have them sooner than that! Rolling Eyes
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Re: Numbing cream?

Post  naomi on Thu Aug 05, 2010 8:57 pm

the vulva clinic in oxford is only every 3 months!!! I know! stupid! as it is a joint clinic with a dermatologist and a gynae together. Ive been trying to chase up a private appointment instead but getting any answers out of the john radcliffe is like getting blood out of a stone!!!! GRRRRRRRRRR

....its not as if I'd like to have a life to lead!!!?!
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Re: Numbing cream?

Post  julia on Fri Aug 06, 2010 11:04 am

numbing cream - i'm currently prescribed dermovate which is a steroid cream (the one up from betnovate).... by no means a long term solution but it helps me massively when I use it. Unfortunately you can't use it in sex, but it's not harmful to your partner if there's still traces of it about.

and with biopsies, it took me just under 3 months to find out with a fully functioning gyno clinic!!!

Sadly though, despite the result it doesn't seem any closer to resolution.... and the boyfriend has been pressuring a bit for sex which I'm worried about as I'm just worried about the pain in general, and if I can't handle it the matter becomes even worse!

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Re: Numbing cream?

Post  Sarah001 on Fri Aug 06, 2010 11:19 am

Can I ask what your biopsy results showd julia? It seems odd the strong steroid cream works for you so do you have a skin condition? When I tried that potency of steroid cream it burnt a layer of skin off which wasn't at all helpful!
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Re: Numbing cream?

Post  julia on Fri Aug 13, 2010 6:33 pm

yeah sure, basically it showed that I had vulvodynia.

It was a toss up between vulvodynia and lichen schlerosis (skin condition) before the biopsy, but the results didn't show any skin conditions whatsoever.

weird huh?

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Re: Numbing cream?

Post  Sarah001 on Fri Aug 13, 2010 7:05 pm

That is odd, normally if there's no skin condition present the strong steroid creams don't help with the inflammation. I was given it after a GP thought I had Lichen Planus and she also gave me the ointment version so a cream base wasn't involved to irritate me and it really burnt a layer of skin off. I find the 1% hydrocortisone is useful if I get a huge worsening of symptoms but only to get me back to my normal pain level and not beyond that. It's very lucky it works for you!
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Re: Numbing cream?

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