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» It feels like I’m going to have pain forever
Mon Jul 16, 2018 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Mon Jul 16, 2018 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

New and frustrated

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New and frustrated

Post  SisterAwake on Tue Aug 21, 2012 8:21 pm

Hello everyone, I'm new here and suspect that I have vestibulitis. I was diagnosed with Fibromyalgia in 2006 and vestibulitis can happen in patients with fibro. My doctor however won't entertain the idea. Crying or Very sad

My symptoms flared up after a horrid UTI I had in May. I tend to get one UTI a year ever since my fibro diagnosis. My body is just insanely sensitive to bacteria. I was given Macrobid for the UTI. A couple weeks later I got a yeast infection from the antibiotics. Canesten cleared that up. A few days later though I had vaginal/vulva burning. This has been going on ever since. Shocked

Some days the burning is just mild. Some days it feels like I've been lit on fire. Sometimes it will completely disappear for a few days but always returns. My dr has checked me for all infections, they're all negative. I went to see her last week and she blew me off. Didn't even examine me which was alarming because I told her that I can clearly see the skin at the base of my vagina (externally) is red and irritated and sometimes the skin leading up to the clitoris gets red too. I'm positive that the bottom vaginal area is where the burning originates and then refers pain into other areas.

She is still insisting that my bladder is the problem and doesn't seem to care that VV can cause burning on urination and frequent urination even without infection. She seemed to be quite offended that I have taken the time to do my research. I don't fit the criteria for cystitis. VV fits me perfectly. The only thing I don't have is pain with sex or tampon use. Symptoms actually improve a great deal during my period. I get some minor irritation the day after sex but it's not excruciating. Occasionally I will have very small cuts on the vulva which I have also read can happen with this illness. Rolling Eyes

My doc has me taking Macrobid after sex and Diflucan once a week for the next 3 months. She also gave me triacomb ointment. On top of this I take 150mg of amitriptyline for the fibro as well as probiotic capsules and calcium citrate.

I have read that the Macrobid, Diflucan and triacomb combination has helped some people with VV. What bothers me is that my doctor gave me this plan insisting that it's my bladder when it's quite obvious it's not. I'm trying my best to give this plan a try and also did some research for a great gyno in my area should I need to see one.

Any advice you can provide me is greatly appreciated. Has anyone tried Neogyn or calendula ointment? I have read they can be very helpful.

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Re: New and frustrated

Post  christine12345 on Wed Aug 22, 2012 6:44 am

I thought I'd share that I had a very similar story to yours -- UTI, followed by a bacterial vaginosis infection, followed by this burning. I was treated with macrobid as well and actually found it helped with my burning feeling - but I have been taken off of it now as I tested negative for bacterial vaginosis. My doctor suggested I have vulvodynia but I'm awaiting seeing a specialist for treatment.


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Re: New and frustrated

Post  SisterAwake on Wed Aug 22, 2012 1:40 pm

Thanks for your response Christine Smile Sorry to hear you're dealing with the same problem. I actually don't have any active infection going on, my doctor has me taking antibiotics and anti yeast medications as a preventative as my body seems to be hyper sensitive to even trace amounts that wouldn't even register a response in a "normal" person. Rolling Eyes

I have to follow this plan until November. Shocked I'm trying my best to stick with it and not get frustrated. If things end up getting worse, I'm definitely going to ask her for a referral to a gynecologist as my GP seems to be pretty clueless.

Please do let me know how your appointment goes. Good luck! sunny

Posts : 5
Join date : 2012-08-21
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Re: New and frustrated

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