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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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New to group

Post  SisterAwake on Tue Aug 21, 2012 8:32 pm

Hello everyone, Very Happy

Just wanted to introduce myself. I'm Bekah and I am positive I have vulvodynia/vestibulitis even though my doctor refuses to acknowledge this condition. I was diagnosed with Fibromyalgia in 2006 and unfortunately fibro and VV can go hand in hand. My story "New and frustrated" can be found in the "your story" section.

Hoping to find some new friends who can relate and understand my new struggles.

Posts : 5
Join date : 2012-08-21
Age : 34
Location : Ontario, Canada

View user profile http://www.redbubble.com/people/amystika

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Re: New to group

Post  Amrit on Fri Sep 07, 2012 3:31 am

Is that a tea party reference??? Is that a tea party display pic....of my favorite album of theirs?

It totally is.

And you are totally from ontario. This is awesome.

I saw your username and investigated but wow, what a perfect in to introduce myself! I'm Amrit, provincial support leader of the NVA and organizer of The Vulva Girl - Support Group for Sexual Pain. We're a consolidated network of women in pain, women leading pain free lives and the practitioners/healers interested in making pain history. Basically we heal together and connect each other to the resources we need to heal. I'm new to the forum and cannot post links in the next seven days so find us on meetup or msg me Smile

Sisterrrrrrr.....da nananana NAA

They played at the CNE recently!
K I'm getting distracted.

Looking forward to connecting Smile


Posts : 3
Join date : 2012-09-07

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Re: New to group

Post  kylrzz on Wed Oct 31, 2012 7:11 am

hiii this is Ryan from CA. i am new here, i like too meet new people and discuss their topics. i have interest in fashion ad skin care. Very Happy


Posts : 3
Join date : 2012-10-31
Age : 28
Location : Montreal

View user profile http://www.medicam.ca/medicanada/

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Re: New to group

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