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Sat May 26, 2018 5:21 pm by Aquaben

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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New diagnosis - what's my outcome?

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New diagnosis - what's my outcome?

Post  christine12345 on Wed Aug 22, 2012 6:28 am

Hi,

I've been dealing with pain for about 2 months now, and my doctor has suggested I may have vulvodynia. I need to see a gynecologist to know for sure, and will unfortunately have to wait about a week.

I can't understand from what I've read online - what is my outcome? Is it possible to treat the pain successfully and live a normal life? Everything I've read online is just completely freaking me out.

Currently I'm having pain sporadically throughout the day, unprovoked. It lasts for a few hours, and then will go away for a few. Some days are worse than others. I have not had issues with penetrative sex if gone about when the pain is not occuring.

Has anyone been succesffully treated with antidepressants or anything else? Or will this just be pain that I'll have to deal with for the rest of my life?

christine12345

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New diagnosis- what's my outcome

Post  Sunflower82 on Thu Aug 23, 2012 8:04 am

Hi,
Sorry to hear you are suffering,think you question relating to outcome is really hard to answer as everyone responds differently to treatment. There is also so many doctors out there who don't even recognise the condition. I had to see 15 different people over a three year period to get diagnosed! The usual treatment is anti depressants which I have been taking for over a year now, make a slight difference but not a huge amount. The most benifitial think that has helped me is physio. A women's health physio will look at your pelvic floor muscles and any other muscles you have tension in e.g the first time I went she told me I'd been holding my tummy muscles in, I had no idea I was doing this, the tension in my tummy would then also connect to the pelvic floor muscles. I am also seeing a chiropractor at the mo, have to see what happens ! The downside is that I have had to like may others, I've had to pay for the treatment that I have recieved!
The only tips I can suggest is may sure you know about the condition when you see the gyno! But don't over research on the Internet. I am sure you know about all the basics don't use soap, don't put anything on the vulvar area wash with water or aquoeous cream, be careful with fabric softener, wear cotton underware, avoid using tampons and buy natural sanitary pads (natura care I think ) all the other are bleached which could cause irritation, if u use lube, use a natural one (yes lube)


Hope this helps

Kt

Sunflower82

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Re: New diagnosis - what's my outcome?

Post  LillyK on Mon Sep 03, 2012 2:36 am

This doesn't mean you will have pain for the rest of your life!!! I promise. I suffered for a year and a half before getting diagnoses properly. Then I tried alternative medicine, specifically acupuncture, and it helped me tremendously. I felt so good I was able to have sex again and got pregnant. The further along I got the better I felt, and after having my son I was pain free for FIVE YEARS. Now, it's come back just this week and I am starting over again trying to get rid of it. But I believe this is due to stress, and possibly my pelvis being misaligned, which it was when I had vulvodynia previously. Some tips, some of which you have heard before I'm sure: only use free and clear detergents, nothing with fragrance. That goes for your toilet paper too. Switching to all organic products and food helped me. Drink loads of water. Double void when you go to the bathroom. Do everything you can to relax yourself. Explore chiropractic, acupuncture, physical therapy/biofeedback..anything that might help, do it. Give yourself a shot at a normal life again. I realize I'm saying this after having a relapse, but I had 5 perfectly pain free years and I intend to get back on that road again asap. I know it can be done. Hang in there. OH and it sounds counterintuitive, but if you can stand it, have sex more often. It will help stretch those pelvic floor muscles so that they don't get any tighter.

LillyK

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..

Post  lavrose on Sun Sep 09, 2012 9:00 pm

Well, that depends, you mite have just a yeast infection, and in that case, most OTC stuff wont cure that and what you have to do is change your diet to incorporate more natural things like whole grains, fruits, vegetables, yogurt, and keifer, a multi vitamin, a good, hardcore probiotic, and healthy fats (coconut, hemp, flax oils), and treat the area inside and locally with essential oils (my method) or you mite have an underlying infection which may cause more of a problem such as Ureaplasma, which is not routinely tested. That turned out to be my problem. I had an underlying infection, and thats why, no matter how I changed my diet or howm many antifungles Id take, nothing really eradicated the problem.
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oils

Post  lavrose on Sun Sep 09, 2012 9:01 pm

Essential oils like lavender, rosemary, tea tree, and manuka, in a coconut oil base, please view my posts
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Re: New diagnosis - what's my outcome?

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