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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New diagnosis - what's my outcome?

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New diagnosis - what's my outcome?

Post  christine12345 on Wed Aug 22, 2012 6:28 am

Hi,

I've been dealing with pain for about 2 months now, and my doctor has suggested I may have vulvodynia. I need to see a gynecologist to know for sure, and will unfortunately have to wait about a week.

I can't understand from what I've read online - what is my outcome? Is it possible to treat the pain successfully and live a normal life? Everything I've read online is just completely freaking me out.

Currently I'm having pain sporadically throughout the day, unprovoked. It lasts for a few hours, and then will go away for a few. Some days are worse than others. I have not had issues with penetrative sex if gone about when the pain is not occuring.

Has anyone been succesffully treated with antidepressants or anything else? Or will this just be pain that I'll have to deal with for the rest of my life?

christine12345

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New diagnosis- what's my outcome

Post  Sunflower82 on Thu Aug 23, 2012 8:04 am

Hi,
Sorry to hear you are suffering,think you question relating to outcome is really hard to answer as everyone responds differently to treatment. There is also so many doctors out there who don't even recognise the condition. I had to see 15 different people over a three year period to get diagnosed! The usual treatment is anti depressants which I have been taking for over a year now, make a slight difference but not a huge amount. The most benifitial think that has helped me is physio. A women's health physio will look at your pelvic floor muscles and any other muscles you have tension in e.g the first time I went she told me I'd been holding my tummy muscles in, I had no idea I was doing this, the tension in my tummy would then also connect to the pelvic floor muscles. I am also seeing a chiropractor at the mo, have to see what happens ! The downside is that I have had to like may others, I've had to pay for the treatment that I have recieved!
The only tips I can suggest is may sure you know about the condition when you see the gyno! But don't over research on the Internet. I am sure you know about all the basics don't use soap, don't put anything on the vulvar area wash with water or aquoeous cream, be careful with fabric softener, wear cotton underware, avoid using tampons and buy natural sanitary pads (natura care I think ) all the other are bleached which could cause irritation, if u use lube, use a natural one (yes lube)


Hope this helps

Kt

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Re: New diagnosis - what's my outcome?

Post  LillyK on Mon Sep 03, 2012 2:36 am

This doesn't mean you will have pain for the rest of your life!!! I promise. I suffered for a year and a half before getting diagnoses properly. Then I tried alternative medicine, specifically acupuncture, and it helped me tremendously. I felt so good I was able to have sex again and got pregnant. The further along I got the better I felt, and after having my son I was pain free for FIVE YEARS. Now, it's come back just this week and I am starting over again trying to get rid of it. But I believe this is due to stress, and possibly my pelvis being misaligned, which it was when I had vulvodynia previously. Some tips, some of which you have heard before I'm sure: only use free and clear detergents, nothing with fragrance. That goes for your toilet paper too. Switching to all organic products and food helped me. Drink loads of water. Double void when you go to the bathroom. Do everything you can to relax yourself. Explore chiropractic, acupuncture, physical therapy/biofeedback..anything that might help, do it. Give yourself a shot at a normal life again. I realize I'm saying this after having a relapse, but I had 5 perfectly pain free years and I intend to get back on that road again asap. I know it can be done. Hang in there. OH and it sounds counterintuitive, but if you can stand it, have sex more often. It will help stretch those pelvic floor muscles so that they don't get any tighter.

LillyK

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..

Post  lavrose on Sun Sep 09, 2012 9:00 pm

Well, that depends, you mite have just a yeast infection, and in that case, most OTC stuff wont cure that and what you have to do is change your diet to incorporate more natural things like whole grains, fruits, vegetables, yogurt, and keifer, a multi vitamin, a good, hardcore probiotic, and healthy fats (coconut, hemp, flax oils), and treat the area inside and locally with essential oils (my method) or you mite have an underlying infection which may cause more of a problem such as Ureaplasma, which is not routinely tested. That turned out to be my problem. I had an underlying infection, and thats why, no matter how I changed my diet or howm many antifungles Id take, nothing really eradicated the problem.
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oils

Post  lavrose on Sun Sep 09, 2012 9:01 pm

Essential oils like lavender, rosemary, tea tree, and manuka, in a coconut oil base, please view my posts
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Re: New diagnosis - what's my outcome?

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