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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

New diagnosis - what's my outcome?

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New diagnosis - what's my outcome?

Post  christine12345 on Wed Aug 22, 2012 6:28 am


I've been dealing with pain for about 2 months now, and my doctor has suggested I may have vulvodynia. I need to see a gynecologist to know for sure, and will unfortunately have to wait about a week.

I can't understand from what I've read online - what is my outcome? Is it possible to treat the pain successfully and live a normal life? Everything I've read online is just completely freaking me out.

Currently I'm having pain sporadically throughout the day, unprovoked. It lasts for a few hours, and then will go away for a few. Some days are worse than others. I have not had issues with penetrative sex if gone about when the pain is not occuring.

Has anyone been succesffully treated with antidepressants or anything else? Or will this just be pain that I'll have to deal with for the rest of my life?


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New diagnosis- what's my outcome

Post  Sunflower82 on Thu Aug 23, 2012 8:04 am

Sorry to hear you are suffering,think you question relating to outcome is really hard to answer as everyone responds differently to treatment. There is also so many doctors out there who don't even recognise the condition. I had to see 15 different people over a three year period to get diagnosed! The usual treatment is anti depressants which I have been taking for over a year now, make a slight difference but not a huge amount. The most benifitial think that has helped me is physio. A women's health physio will look at your pelvic floor muscles and any other muscles you have tension in e.g the first time I went she told me I'd been holding my tummy muscles in, I had no idea I was doing this, the tension in my tummy would then also connect to the pelvic floor muscles. I am also seeing a chiropractor at the mo, have to see what happens ! The downside is that I have had to like may others, I've had to pay for the treatment that I have recieved!
The only tips I can suggest is may sure you know about the condition when you see the gyno! But don't over research on the Internet. I am sure you know about all the basics don't use soap, don't put anything on the vulvar area wash with water or aquoeous cream, be careful with fabric softener, wear cotton underware, avoid using tampons and buy natural sanitary pads (natura care I think ) all the other are bleached which could cause irritation, if u use lube, use a natural one (yes lube)

Hope this helps



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Re: New diagnosis - what's my outcome?

Post  LillyK on Mon Sep 03, 2012 2:36 am

This doesn't mean you will have pain for the rest of your life!!! I promise. I suffered for a year and a half before getting diagnoses properly. Then I tried alternative medicine, specifically acupuncture, and it helped me tremendously. I felt so good I was able to have sex again and got pregnant. The further along I got the better I felt, and after having my son I was pain free for FIVE YEARS. Now, it's come back just this week and I am starting over again trying to get rid of it. But I believe this is due to stress, and possibly my pelvis being misaligned, which it was when I had vulvodynia previously. Some tips, some of which you have heard before I'm sure: only use free and clear detergents, nothing with fragrance. That goes for your toilet paper too. Switching to all organic products and food helped me. Drink loads of water. Double void when you go to the bathroom. Do everything you can to relax yourself. Explore chiropractic, acupuncture, physical therapy/biofeedback..anything that might help, do it. Give yourself a shot at a normal life again. I realize I'm saying this after having a relapse, but I had 5 perfectly pain free years and I intend to get back on that road again asap. I know it can be done. Hang in there. OH and it sounds counterintuitive, but if you can stand it, have sex more often. It will help stretch those pelvic floor muscles so that they don't get any tighter.


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Post  lavrose on Sun Sep 09, 2012 9:00 pm

Well, that depends, you mite have just a yeast infection, and in that case, most OTC stuff wont cure that and what you have to do is change your diet to incorporate more natural things like whole grains, fruits, vegetables, yogurt, and keifer, a multi vitamin, a good, hardcore probiotic, and healthy fats (coconut, hemp, flax oils), and treat the area inside and locally with essential oils (my method) or you mite have an underlying infection which may cause more of a problem such as Ureaplasma, which is not routinely tested. That turned out to be my problem. I had an underlying infection, and thats why, no matter how I changed my diet or howm many antifungles Id take, nothing really eradicated the problem.

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Post  lavrose on Sun Sep 09, 2012 9:01 pm

Essential oils like lavender, rosemary, tea tree, and manuka, in a coconut oil base, please view my posts

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Re: New diagnosis - what's my outcome?

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