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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

New diagnosis - what's my outcome?

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New diagnosis - what's my outcome?

Post  christine12345 on Wed Aug 22, 2012 6:28 am


I've been dealing with pain for about 2 months now, and my doctor has suggested I may have vulvodynia. I need to see a gynecologist to know for sure, and will unfortunately have to wait about a week.

I can't understand from what I've read online - what is my outcome? Is it possible to treat the pain successfully and live a normal life? Everything I've read online is just completely freaking me out.

Currently I'm having pain sporadically throughout the day, unprovoked. It lasts for a few hours, and then will go away for a few. Some days are worse than others. I have not had issues with penetrative sex if gone about when the pain is not occuring.

Has anyone been succesffully treated with antidepressants or anything else? Or will this just be pain that I'll have to deal with for the rest of my life?


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New diagnosis- what's my outcome

Post  Sunflower82 on Thu Aug 23, 2012 8:04 am

Sorry to hear you are suffering,think you question relating to outcome is really hard to answer as everyone responds differently to treatment. There is also so many doctors out there who don't even recognise the condition. I had to see 15 different people over a three year period to get diagnosed! The usual treatment is anti depressants which I have been taking for over a year now, make a slight difference but not a huge amount. The most benifitial think that has helped me is physio. A women's health physio will look at your pelvic floor muscles and any other muscles you have tension in e.g the first time I went she told me I'd been holding my tummy muscles in, I had no idea I was doing this, the tension in my tummy would then also connect to the pelvic floor muscles. I am also seeing a chiropractor at the mo, have to see what happens ! The downside is that I have had to like may others, I've had to pay for the treatment that I have recieved!
The only tips I can suggest is may sure you know about the condition when you see the gyno! But don't over research on the Internet. I am sure you know about all the basics don't use soap, don't put anything on the vulvar area wash with water or aquoeous cream, be careful with fabric softener, wear cotton underware, avoid using tampons and buy natural sanitary pads (natura care I think ) all the other are bleached which could cause irritation, if u use lube, use a natural one (yes lube)

Hope this helps



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Re: New diagnosis - what's my outcome?

Post  LillyK on Mon Sep 03, 2012 2:36 am

This doesn't mean you will have pain for the rest of your life!!! I promise. I suffered for a year and a half before getting diagnoses properly. Then I tried alternative medicine, specifically acupuncture, and it helped me tremendously. I felt so good I was able to have sex again and got pregnant. The further along I got the better I felt, and after having my son I was pain free for FIVE YEARS. Now, it's come back just this week and I am starting over again trying to get rid of it. But I believe this is due to stress, and possibly my pelvis being misaligned, which it was when I had vulvodynia previously. Some tips, some of which you have heard before I'm sure: only use free and clear detergents, nothing with fragrance. That goes for your toilet paper too. Switching to all organic products and food helped me. Drink loads of water. Double void when you go to the bathroom. Do everything you can to relax yourself. Explore chiropractic, acupuncture, physical therapy/biofeedback..anything that might help, do it. Give yourself a shot at a normal life again. I realize I'm saying this after having a relapse, but I had 5 perfectly pain free years and I intend to get back on that road again asap. I know it can be done. Hang in there. OH and it sounds counterintuitive, but if you can stand it, have sex more often. It will help stretch those pelvic floor muscles so that they don't get any tighter.


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Post  lavrose on Sun Sep 09, 2012 9:00 pm

Well, that depends, you mite have just a yeast infection, and in that case, most OTC stuff wont cure that and what you have to do is change your diet to incorporate more natural things like whole grains, fruits, vegetables, yogurt, and keifer, a multi vitamin, a good, hardcore probiotic, and healthy fats (coconut, hemp, flax oils), and treat the area inside and locally with essential oils (my method) or you mite have an underlying infection which may cause more of a problem such as Ureaplasma, which is not routinely tested. That turned out to be my problem. I had an underlying infection, and thats why, no matter how I changed my diet or howm many antifungles Id take, nothing really eradicated the problem.

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Post  lavrose on Sun Sep 09, 2012 9:01 pm

Essential oils like lavender, rosemary, tea tree, and manuka, in a coconut oil base, please view my posts

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Re: New diagnosis - what's my outcome?

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