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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Specialist Doctors In UK

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Specialist Doctors In UK

Post  JemimaSurrender on Wed Aug 22, 2012 11:22 am

Hey guys.

I was just wondering, does anyone here know of any specialists in the UK who deal with this stuff on a daily basis? I don't mean your bog standard gyno, I mean the real deal doc' with years of research and experience behind them...

See, I know there's the worshops and these specialists do talks there (David Nunns is it?) so do these doctors or experts actually see people? Is it possible to get appointments with them or anything like that?

I just ask on the off chance, anything that might help get this gone!

Thanks!

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:10 pm

Hi

Im like you trying to find a specialist doctor. I live close to you in Cheshire and im attending the v workshop in Birmingham in 2 weeks. Will you be going? Ive just been reffered to Liverpool womens hospital as they have a vulval clinic. It would be nice if maybe we could meet up your not to far away Smile

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 8:41 pm

Heyy.

Is there a link to any information about the workshop? I had no idea it was even happening!

If I can still get to go then we'll have to meet up for sure! I only live 20 minutes from Birmingham anyway so it would be stupid not to.

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:54 pm

Hiya

The website is www.vulvalpainsociety.org/ you can book your place for the workshop. Its at Birmingham City Hospital. Its consists of all new treatments and research and you are able to speak to specialists in v. Im hoping for a miracle.

Let me know if you are going.

Kate

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 9:06 pm

I'd completely forgotten about that website for some reason, thanks for posting the link.

I'll have a look through and see if it sounds good for vestib. sufferers too. Although I'll probably want to go regardless!

I'll keep you posted!

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 19, 2012 11:09 am

I've booked my place! I'm so excited.

Is anyone else going?

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Re: Specialist Doctors In UK

Post  penfebruary on Wed Sep 19, 2012 7:26 pm

I'd also like to know if anyone knows of any good, experienced professionals in the UK - I'm moving back to London on Saturday so unfortunately cannot attend the workshop, and I've got very bad depression and anxiety at the moment so the workshop is probably not good for me at the moment as proactivity becomes more depressing for me when I'm in this state - I'm trying to tackle one thing at a time and at the moment going back to university has to take priority due to the costs.
Anyway, blabbing on, if anyone knows the names etc of any doctors in London or the Midlands, that'd be great! I have to register with a new GP so I'd like to land on my feet!
Good luck at the weekend ladies and let us know how everything goes Smile
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Re: Specialist Doctors In UK

Post  Sebby (Admin) on Thu Sep 20, 2012 7:40 pm


http://www.hollyhouse-hospital.co.uk/consultants/dr-karen-gibbon/

In case your pain is in anyway linked to a skin condition I recommend Dr Karen Gibbon for her knowledge, empathy and bedside manner.

It is worth getting checked out by a dermatologist anyway. I have seen her and although I did not have a skin condition she was one of the first drs to really listen to me.

She gives other advice to and knows a bit about the pelvic floor and knows Dr Glazer so it shows she researches into this condition.

The link is to a private hospital but she does work in the NHS at St Barts.

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Re: Specialist Doctors In UK

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