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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Specialist Doctors In UK

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Specialist Doctors In UK

Post  JemimaSurrender on Wed Aug 22, 2012 11:22 am

Hey guys.

I was just wondering, does anyone here know of any specialists in the UK who deal with this stuff on a daily basis? I don't mean your bog standard gyno, I mean the real deal doc' with years of research and experience behind them...

See, I know there's the worshops and these specialists do talks there (David Nunns is it?) so do these doctors or experts actually see people? Is it possible to get appointments with them or anything like that?

I just ask on the off chance, anything that might help get this gone!

Thanks!

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:10 pm

Hi

Im like you trying to find a specialist doctor. I live close to you in Cheshire and im attending the v workshop in Birmingham in 2 weeks. Will you be going? Ive just been reffered to Liverpool womens hospital as they have a vulval clinic. It would be nice if maybe we could meet up your not to far away Smile

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 8:41 pm

Heyy.

Is there a link to any information about the workshop? I had no idea it was even happening!

If I can still get to go then we'll have to meet up for sure! I only live 20 minutes from Birmingham anyway so it would be stupid not to.

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:54 pm

Hiya

The website is www.vulvalpainsociety.org/ you can book your place for the workshop. Its at Birmingham City Hospital. Its consists of all new treatments and research and you are able to speak to specialists in v. Im hoping for a miracle.

Let me know if you are going.

Kate

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 9:06 pm

I'd completely forgotten about that website for some reason, thanks for posting the link.

I'll have a look through and see if it sounds good for vestib. sufferers too. Although I'll probably want to go regardless!

I'll keep you posted!

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 19, 2012 11:09 am

I've booked my place! I'm so excited.

Is anyone else going?

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Re: Specialist Doctors In UK

Post  penfebruary on Wed Sep 19, 2012 7:26 pm

I'd also like to know if anyone knows of any good, experienced professionals in the UK - I'm moving back to London on Saturday so unfortunately cannot attend the workshop, and I've got very bad depression and anxiety at the moment so the workshop is probably not good for me at the moment as proactivity becomes more depressing for me when I'm in this state - I'm trying to tackle one thing at a time and at the moment going back to university has to take priority due to the costs.
Anyway, blabbing on, if anyone knows the names etc of any doctors in London or the Midlands, that'd be great! I have to register with a new GP so I'd like to land on my feet!
Good luck at the weekend ladies and let us know how everything goes Smile
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Re: Specialist Doctors In UK

Post  Sebby (Admin) on Thu Sep 20, 2012 7:40 pm


http://www.hollyhouse-hospital.co.uk/consultants/dr-karen-gibbon/

In case your pain is in anyway linked to a skin condition I recommend Dr Karen Gibbon for her knowledge, empathy and bedside manner.

It is worth getting checked out by a dermatologist anyway. I have seen her and although I did not have a skin condition she was one of the first drs to really listen to me.

She gives other advice to and knows a bit about the pelvic floor and knows Dr Glazer so it shows she researches into this condition.

The link is to a private hospital but she does work in the NHS at St Barts.

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