Vulvodynia Support
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» Hope to all my suffering ladies
Specialist Doctors In UK EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Specialist Doctors In UK EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Specialist Doctors In UK EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Specialist Doctors In UK EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Specialist Doctors In UK EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Specialist Doctors In UK EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Specialist Doctors In UK EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Specialist Doctors In UK EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Specialist Doctors In UK EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  JemimaSurrender Wed Aug 22, 2012 11:22 am

Hey guys.

I was just wondering, does anyone here know of any specialists in the UK who deal with this stuff on a daily basis? I don't mean your bog standard gyno, I mean the real deal doc' with years of research and experience behind them...

See, I know there's the worshops and these specialists do talks there (David Nunns is it?) so do these doctors or experts actually see people? Is it possible to get appointments with them or anything like that?

I just ask on the off chance, anything that might help get this gone!

Thanks!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  Kate1981 Wed Sep 12, 2012 8:10 pm

Hi

Im like you trying to find a specialist doctor. I live close to you in Cheshire and im attending the v workshop in Birmingham in 2 weeks. Will you be going? Ive just been reffered to Liverpool womens hospital as they have a vulval clinic. It would be nice if maybe we could meet up your not to far away Smile

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

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Post  JemimaSurrender Wed Sep 12, 2012 8:41 pm

Heyy.

Is there a link to any information about the workshop? I had no idea it was even happening!

If I can still get to go then we'll have to meet up for sure! I only live 20 minutes from Birmingham anyway so it would be stupid not to.

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  Kate1981 Wed Sep 12, 2012 8:54 pm

Hiya

The website is www.vulvalpainsociety.org/ you can book your place for the workshop. Its at Birmingham City Hospital. Its consists of all new treatments and research and you are able to speak to specialists in v. Im hoping for a miracle.

Let me know if you are going.

Kate

Kate1981

Posts : 88
Join date : 2012-08-17
Location : Manchester, UK

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Post  JemimaSurrender Wed Sep 12, 2012 9:06 pm

I'd completely forgotten about that website for some reason, thanks for posting the link.

I'll have a look through and see if it sounds good for vestib. sufferers too. Although I'll probably want to go regardless!

I'll keep you posted!

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  JemimaSurrender Wed Sep 19, 2012 11:09 am

I've booked my place! I'm so excited.

Is anyone else going?

JemimaSurrender

Posts : 107
Join date : 2011-12-03
Age : 34
Location : Staffordshire, UK

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Post  penfebruary Wed Sep 19, 2012 7:26 pm

I'd also like to know if anyone knows of any good, experienced professionals in the UK - I'm moving back to London on Saturday so unfortunately cannot attend the workshop, and I've got very bad depression and anxiety at the moment so the workshop is probably not good for me at the moment as proactivity becomes more depressing for me when I'm in this state - I'm trying to tackle one thing at a time and at the moment going back to university has to take priority due to the costs.
Anyway, blabbing on, if anyone knows the names etc of any doctors in London or the Midlands, that'd be great! I have to register with a new GP so I'd like to land on my feet!
Good luck at the weekend ladies and let us know how everything goes Smile
penfebruary
penfebruary

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Post  Sebby (Admin) Thu Sep 20, 2012 7:40 pm


http://www.hollyhouse-hospital.co.uk/consultants/dr-karen-gibbon/

In case your pain is in anyway linked to a skin condition I recommend Dr Karen Gibbon for her knowledge, empathy and bedside manner.

It is worth getting checked out by a dermatologist anyway. I have seen her and although I did not have a skin condition she was one of the first drs to really listen to me.

She gives other advice to and knows a bit about the pelvic floor and knows Dr Glazer so it shows she researches into this condition.

The link is to a private hospital but she does work in the NHS at St Barts.
Sebby (Admin)
Sebby (Admin)
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https://vulvodyniasupport.forumotion.net

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