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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Specialist Doctors In UK

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Specialist Doctors In UK

Post  JemimaSurrender on Wed Aug 22, 2012 11:22 am

Hey guys.

I was just wondering, does anyone here know of any specialists in the UK who deal with this stuff on a daily basis? I don't mean your bog standard gyno, I mean the real deal doc' with years of research and experience behind them...

See, I know there's the worshops and these specialists do talks there (David Nunns is it?) so do these doctors or experts actually see people? Is it possible to get appointments with them or anything like that?

I just ask on the off chance, anything that might help get this gone!

Thanks!

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:10 pm

Hi

Im like you trying to find a specialist doctor. I live close to you in Cheshire and im attending the v workshop in Birmingham in 2 weeks. Will you be going? Ive just been reffered to Liverpool womens hospital as they have a vulval clinic. It would be nice if maybe we could meet up your not to far away Smile

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 8:41 pm

Heyy.

Is there a link to any information about the workshop? I had no idea it was even happening!

If I can still get to go then we'll have to meet up for sure! I only live 20 minutes from Birmingham anyway so it would be stupid not to.

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:54 pm

Hiya

The website is www.vulvalpainsociety.org/ you can book your place for the workshop. Its at Birmingham City Hospital. Its consists of all new treatments and research and you are able to speak to specialists in v. Im hoping for a miracle.

Let me know if you are going.

Kate

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 9:06 pm

I'd completely forgotten about that website for some reason, thanks for posting the link.

I'll have a look through and see if it sounds good for vestib. sufferers too. Although I'll probably want to go regardless!

I'll keep you posted!

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 19, 2012 11:09 am

I've booked my place! I'm so excited.

Is anyone else going?

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Re: Specialist Doctors In UK

Post  penfebruary on Wed Sep 19, 2012 7:26 pm

I'd also like to know if anyone knows of any good, experienced professionals in the UK - I'm moving back to London on Saturday so unfortunately cannot attend the workshop, and I've got very bad depression and anxiety at the moment so the workshop is probably not good for me at the moment as proactivity becomes more depressing for me when I'm in this state - I'm trying to tackle one thing at a time and at the moment going back to university has to take priority due to the costs.
Anyway, blabbing on, if anyone knows the names etc of any doctors in London or the Midlands, that'd be great! I have to register with a new GP so I'd like to land on my feet!
Good luck at the weekend ladies and let us know how everything goes Smile
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Re: Specialist Doctors In UK

Post  Sebby (Admin) on Thu Sep 20, 2012 7:40 pm


http://www.hollyhouse-hospital.co.uk/consultants/dr-karen-gibbon/

In case your pain is in anyway linked to a skin condition I recommend Dr Karen Gibbon for her knowledge, empathy and bedside manner.

It is worth getting checked out by a dermatologist anyway. I have seen her and although I did not have a skin condition she was one of the first drs to really listen to me.

She gives other advice to and knows a bit about the pelvic floor and knows Dr Glazer so it shows she researches into this condition.

The link is to a private hospital but she does work in the NHS at St Barts.

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