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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Specialist Doctors In UK

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Specialist Doctors In UK

Post  JemimaSurrender on Wed Aug 22, 2012 11:22 am

Hey guys.

I was just wondering, does anyone here know of any specialists in the UK who deal with this stuff on a daily basis? I don't mean your bog standard gyno, I mean the real deal doc' with years of research and experience behind them...

See, I know there's the worshops and these specialists do talks there (David Nunns is it?) so do these doctors or experts actually see people? Is it possible to get appointments with them or anything like that?

I just ask on the off chance, anything that might help get this gone!

Thanks!

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:10 pm

Hi

Im like you trying to find a specialist doctor. I live close to you in Cheshire and im attending the v workshop in Birmingham in 2 weeks. Will you be going? Ive just been reffered to Liverpool womens hospital as they have a vulval clinic. It would be nice if maybe we could meet up your not to far away Smile

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 8:41 pm

Heyy.

Is there a link to any information about the workshop? I had no idea it was even happening!

If I can still get to go then we'll have to meet up for sure! I only live 20 minutes from Birmingham anyway so it would be stupid not to.

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Re: Specialist Doctors In UK

Post  Kate1981 on Wed Sep 12, 2012 8:54 pm

Hiya

The website is www.vulvalpainsociety.org/ you can book your place for the workshop. Its at Birmingham City Hospital. Its consists of all new treatments and research and you are able to speak to specialists in v. Im hoping for a miracle.

Let me know if you are going.

Kate

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 12, 2012 9:06 pm

I'd completely forgotten about that website for some reason, thanks for posting the link.

I'll have a look through and see if it sounds good for vestib. sufferers too. Although I'll probably want to go regardless!

I'll keep you posted!

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Re: Specialist Doctors In UK

Post  JemimaSurrender on Wed Sep 19, 2012 11:09 am

I've booked my place! I'm so excited.

Is anyone else going?

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Re: Specialist Doctors In UK

Post  penfebruary on Wed Sep 19, 2012 7:26 pm

I'd also like to know if anyone knows of any good, experienced professionals in the UK - I'm moving back to London on Saturday so unfortunately cannot attend the workshop, and I've got very bad depression and anxiety at the moment so the workshop is probably not good for me at the moment as proactivity becomes more depressing for me when I'm in this state - I'm trying to tackle one thing at a time and at the moment going back to university has to take priority due to the costs.
Anyway, blabbing on, if anyone knows the names etc of any doctors in London or the Midlands, that'd be great! I have to register with a new GP so I'd like to land on my feet!
Good luck at the weekend ladies and let us know how everything goes Smile
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Re: Specialist Doctors In UK

Post  Sebby (Admin) on Thu Sep 20, 2012 7:40 pm


http://www.hollyhouse-hospital.co.uk/consultants/dr-karen-gibbon/

In case your pain is in anyway linked to a skin condition I recommend Dr Karen Gibbon for her knowledge, empathy and bedside manner.

It is worth getting checked out by a dermatologist anyway. I have seen her and although I did not have a skin condition she was one of the first drs to really listen to me.

She gives other advice to and knows a bit about the pelvic floor and knows Dr Glazer so it shows she researches into this condition.

The link is to a private hospital but she does work in the NHS at St Barts.

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