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    » What helped (and practically cured) my Vulvodynia
    Today at 4:43 pm by Katiej

    » How I cured my Vulvodynia!
    Today at 8:24 am by Katiej

    » Amitriptyline given for vulvodyina pain
    Sat Nov 18, 2017 11:33 pm by WVR00

    » Needing some reassurance
    Sat Nov 18, 2017 12:28 pm by Katiej

    » Amitriptyline Success and new-found love
    Sat Nov 18, 2017 12:24 pm by Katiej

    » New diagnosis, any advice whilst I wait for a specialist
    Sat Nov 18, 2017 3:57 am by jungleclover

    » Vestibulectomy today and no pain
    Fri Nov 17, 2017 3:28 pm by Dsrt16

    » vestibulectomy success
    Thu Nov 16, 2017 12:41 am by Hopeitworks

    » MY STORY & Vestibulectomy 2/8/17
    Thu Nov 16, 2017 12:06 am by Jgreen81

    Amitriptyline given for vulvodyina pain

    Tue Oct 24, 2017 2:46 pm by katycrawford

    Hi there,

    After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

    Comments: 3

    New diagnosis, any advice whilst I wait for a specialist

    Wed Oct 25, 2017 1:47 pm by Julesyjules

    Hi,

    I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

    After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

    Comments: 1

    Vulvodynia help

    Tue Nov 14, 2017 4:27 pm by Katiej

    Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

    Comments: 3

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 4

    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 9

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7


    Just Diagnosed!

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    Just Diagnosed!

    Post  Kate1981 on Sat Aug 25, 2012 9:46 am

    Hello Everyone

    I have recently been diagnosed with Vulvodynia and I am completely devastaed and unable to accept what is happening to me im still in the denial stage.

    Im 31 years old and had never had any major problems with sex. If I had a lot of sex I would become sore for a few days but nor painful. I split up with my ex partner last year after 10 years and was devastated thinking I would never find love again. Six months I met up with someone from my early childhood who had also divorced and within a few months we fell in love.

    We waited 4 months until we first had sex as I wanted it to be special. It was amazing until 2 days later and I started to experience a burning sensation on the right hand side of my vulva. I initally jumped to conclusions and thought it was an std. Off we both went to the clinic I was told I had a uti and was given antibiotics and within a week I was fine. Another week later our results came back and all std's clear.

    After a rocky patch we continued with our relationship. Five months later my smear was due so off I went. Smears have always been really unconfortable for me and have always caused me pain. Later that evening the pain was unbearable and had to go to A&E they said I had a water infection and was given antibiotics. A week later I was fine again.

    A month later we were away on holiday having an amazing time and the horrible burning sensation I felt 6 months ago started again. I thought maybe because we had had too much sex or maybe it was an std my head was all over the place. I deeply loved my partner and he adored me so I knew he hadnt cheated to catch an std.

    When we got back to the UK I went straight to see my GP and was given more antibiotics for UTI. The burning cleared within 3 days and after 2 weeks I felt fine and we continued to have sex.

    Two months later after a lot of sex the dreaded burning started again. I was distraught what was happening to me I just wanted happiness. I went back to the sexual health clinic was examinded but nothing was there. The doctor suggested I had herpes I was inconsolable how could I we had both been tested always been careful. I sobbed my heart out for 2 weeks and the pain got worse and worse. I went back to clinic and saw a different doctor. He said he was sure it was herpes and he believed it was something called vulvodynia. I was relieved it wasnt herpes but what was this new condition I now had. Initially he gave me numbing cream which sent me through the roof and made the pain worse. I went back 2 says later and he had my results for herpes which were clear and he prescribed me ami 10mg a day which I have now increased to 20mg. The pain has eased but not gone. I felt like I was on fire inside with someone stabbing me at the same time.

    I havnt left my room for 3 weeks because I feel so down and im still in pain. I still dont understand why and how it started. The only thing we can both thing of is we used KY jelly evrytime this has happened. Could it be a reaction that will repair itself? Or am I going to be like this forever? I in a mess at the moment and my relationship is really suffering as is the rest of my life. I just want to be normal again. I deeply love my partner and not being able to be intimate with him is destroying me. Please can someone give me some help? Advice?

    Kate1981

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    Re just diagnosed

    Post  Sunflower82 on Sat Aug 25, 2012 8:26 pm

    Hi,
    Sorry to hear that you are suffering, I have had this condition for years, the three years have been the worst. Think like Many people I have good and bad days! In your message you said about KY jelly, some people would say some of the ingredients used in KY Jelly can affect the area if u are particularly sensitive down there, have a look at yes lube, it explains what the ingredients are, but I would doubt using it would cause vulvodynia! Other things to try is to see a women health physio.

    Hope this helps

    Kt

    Sunflower82

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    I know

    Post  lavrose on Sun Aug 26, 2012 10:53 am

    O have I been down this road. You wanna start with taking oral probiotics, such as femdophilus (jarrow brand) 2 capsules a day, and rephresh probiotic supplement, or some other multi strain probiotic supplement. Cut out sugars, and try to eat primarily vegetables, lemon, and proteins for a few weeks, lots of water. Yogurt. Also, vitamin E and folc acid supplements help alot too. Then check out my posts about essential oil suppositories. I will copy and pastes here:::
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    lavrose

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    Re: Just Diagnosed!

    Post  lavrose on Sun Aug 26, 2012 10:55 am

    Folic acid supplements, 1 800mcg morning and evening, 2 pills a day. 800IU vitamin E twice a day. Lemon water, slice of lemon in water thruout the day
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    lavrose

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    essential oils

    Post  lavrose on Sun Aug 26, 2012 10:57 am

    The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.
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    Re: Just Diagnosed!

    Post  Kate1981 on Mon Aug 27, 2012 1:10 pm

    lavrose wrote:The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.

    Thanks so much for your information I have ordered all the supplements you have suggested so lets see how I go. I just cant get my head around it all at the moment. Thanks again

    Kate1981

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    Re: Just Diagnosed!

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