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    » What's next?
    Yesterday at 4:01 pm by jennyk2

    » Pain management - what works for me
    Yesterday at 3:41 pm by Jo44

    » Share your Vulvodynia Story and become a member of the Global Anthology!
    Mon Apr 23, 2018 10:44 pm by smyerskelley

    » If it helps anyone else
    Mon Apr 23, 2018 6:36 pm by VH7797

    » Cured, cyst in foot
    Mon Apr 23, 2018 4:06 pm by Guest

    » HELP!! Topical cream?
    Sun Apr 22, 2018 5:44 pm by emalita

    » The pain CAN get better - What's worked for me
    Sun Apr 22, 2018 5:32 pm by emalita

    » Custom made leggings?
    Sun Apr 22, 2018 4:52 am by CatJones

    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3


    Just Diagnosed!

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    Just Diagnosed!

    Post  Kate1981 on Sat Aug 25, 2012 9:46 am

    Hello Everyone

    I have recently been diagnosed with Vulvodynia and I am completely devastaed and unable to accept what is happening to me im still in the denial stage.

    Im 31 years old and had never had any major problems with sex. If I had a lot of sex I would become sore for a few days but nor painful. I split up with my ex partner last year after 10 years and was devastated thinking I would never find love again. Six months I met up with someone from my early childhood who had also divorced and within a few months we fell in love.

    We waited 4 months until we first had sex as I wanted it to be special. It was amazing until 2 days later and I started to experience a burning sensation on the right hand side of my vulva. I initally jumped to conclusions and thought it was an std. Off we both went to the clinic I was told I had a uti and was given antibiotics and within a week I was fine. Another week later our results came back and all std's clear.

    After a rocky patch we continued with our relationship. Five months later my smear was due so off I went. Smears have always been really unconfortable for me and have always caused me pain. Later that evening the pain was unbearable and had to go to A&E they said I had a water infection and was given antibiotics. A week later I was fine again.

    A month later we were away on holiday having an amazing time and the horrible burning sensation I felt 6 months ago started again. I thought maybe because we had had too much sex or maybe it was an std my head was all over the place. I deeply loved my partner and he adored me so I knew he hadnt cheated to catch an std.

    When we got back to the UK I went straight to see my GP and was given more antibiotics for UTI. The burning cleared within 3 days and after 2 weeks I felt fine and we continued to have sex.

    Two months later after a lot of sex the dreaded burning started again. I was distraught what was happening to me I just wanted happiness. I went back to the sexual health clinic was examinded but nothing was there. The doctor suggested I had herpes I was inconsolable how could I we had both been tested always been careful. I sobbed my heart out for 2 weeks and the pain got worse and worse. I went back to clinic and saw a different doctor. He said he was sure it was herpes and he believed it was something called vulvodynia. I was relieved it wasnt herpes but what was this new condition I now had. Initially he gave me numbing cream which sent me through the roof and made the pain worse. I went back 2 says later and he had my results for herpes which were clear and he prescribed me ami 10mg a day which I have now increased to 20mg. The pain has eased but not gone. I felt like I was on fire inside with someone stabbing me at the same time.

    I havnt left my room for 3 weeks because I feel so down and im still in pain. I still dont understand why and how it started. The only thing we can both thing of is we used KY jelly evrytime this has happened. Could it be a reaction that will repair itself? Or am I going to be like this forever? I in a mess at the moment and my relationship is really suffering as is the rest of my life. I just want to be normal again. I deeply love my partner and not being able to be intimate with him is destroying me. Please can someone give me some help? Advice?

    Kate1981

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    Re just diagnosed

    Post  Sunflower82 on Sat Aug 25, 2012 8:26 pm

    Hi,
    Sorry to hear that you are suffering, I have had this condition for years, the three years have been the worst. Think like Many people I have good and bad days! In your message you said about KY jelly, some people would say some of the ingredients used in KY Jelly can affect the area if u are particularly sensitive down there, have a look at yes lube, it explains what the ingredients are, but I would doubt using it would cause vulvodynia! Other things to try is to see a women health physio.

    Hope this helps

    Kt

    Sunflower82

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    I know

    Post  lavrose on Sun Aug 26, 2012 10:53 am

    O have I been down this road. You wanna start with taking oral probiotics, such as femdophilus (jarrow brand) 2 capsules a day, and rephresh probiotic supplement, or some other multi strain probiotic supplement. Cut out sugars, and try to eat primarily vegetables, lemon, and proteins for a few weeks, lots of water. Yogurt. Also, vitamin E and folc acid supplements help alot too. Then check out my posts about essential oil suppositories. I will copy and pastes here:::
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    lavrose

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    Re: Just Diagnosed!

    Post  lavrose on Sun Aug 26, 2012 10:55 am

    Folic acid supplements, 1 800mcg morning and evening, 2 pills a day. 800IU vitamin E twice a day. Lemon water, slice of lemon in water thruout the day
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    lavrose

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    essential oils

    Post  lavrose on Sun Aug 26, 2012 10:57 am

    The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.
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    lavrose

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    Re: Just Diagnosed!

    Post  Kate1981 on Mon Aug 27, 2012 1:10 pm

    lavrose wrote:The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.

    Thanks so much for your information I have ordered all the supplements you have suggested so lets see how I go. I just cant get my head around it all at the moment. Thanks again

    Kate1981

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    Re: Just Diagnosed!

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