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    » Acupuncture advice please
    Today at 2:25 am by ryn207

    » New and need some help
    Today at 12:49 am by Sad

    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    » Lichen Sclerosus
    Fri Feb 16, 2018 2:47 am by ryn207

    » MAY HAVE FOUND A CURE- PLEASE READ
    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Wed Feb 14, 2018 6:43 am by renegade_magdalena

    » Some interesting information about nerve pain in general
    Wed Feb 14, 2018 3:58 am by Athena

    » Sore after using dilator for first time in a year
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    » What helped me
    Wed Feb 14, 2018 3:38 am by Athena

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 1

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0

    NO PAIN DURING SEX

    Sat Feb 10, 2018 12:18 am by rockylife

    I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0

    So frustrating!!

    Thu Jan 04, 2018 1:15 am by Hannah77

    Well I'm back in pain after 7 years of pain free days.
    I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

    Comments: 3

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 4


    Just Diagnosed!

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    Just Diagnosed!

    Post  Kate1981 on Sat Aug 25, 2012 9:46 am

    Hello Everyone

    I have recently been diagnosed with Vulvodynia and I am completely devastaed and unable to accept what is happening to me im still in the denial stage.

    Im 31 years old and had never had any major problems with sex. If I had a lot of sex I would become sore for a few days but nor painful. I split up with my ex partner last year after 10 years and was devastated thinking I would never find love again. Six months I met up with someone from my early childhood who had also divorced and within a few months we fell in love.

    We waited 4 months until we first had sex as I wanted it to be special. It was amazing until 2 days later and I started to experience a burning sensation on the right hand side of my vulva. I initally jumped to conclusions and thought it was an std. Off we both went to the clinic I was told I had a uti and was given antibiotics and within a week I was fine. Another week later our results came back and all std's clear.

    After a rocky patch we continued with our relationship. Five months later my smear was due so off I went. Smears have always been really unconfortable for me and have always caused me pain. Later that evening the pain was unbearable and had to go to A&E they said I had a water infection and was given antibiotics. A week later I was fine again.

    A month later we were away on holiday having an amazing time and the horrible burning sensation I felt 6 months ago started again. I thought maybe because we had had too much sex or maybe it was an std my head was all over the place. I deeply loved my partner and he adored me so I knew he hadnt cheated to catch an std.

    When we got back to the UK I went straight to see my GP and was given more antibiotics for UTI. The burning cleared within 3 days and after 2 weeks I felt fine and we continued to have sex.

    Two months later after a lot of sex the dreaded burning started again. I was distraught what was happening to me I just wanted happiness. I went back to the sexual health clinic was examinded but nothing was there. The doctor suggested I had herpes I was inconsolable how could I we had both been tested always been careful. I sobbed my heart out for 2 weeks and the pain got worse and worse. I went back to clinic and saw a different doctor. He said he was sure it was herpes and he believed it was something called vulvodynia. I was relieved it wasnt herpes but what was this new condition I now had. Initially he gave me numbing cream which sent me through the roof and made the pain worse. I went back 2 says later and he had my results for herpes which were clear and he prescribed me ami 10mg a day which I have now increased to 20mg. The pain has eased but not gone. I felt like I was on fire inside with someone stabbing me at the same time.

    I havnt left my room for 3 weeks because I feel so down and im still in pain. I still dont understand why and how it started. The only thing we can both thing of is we used KY jelly evrytime this has happened. Could it be a reaction that will repair itself? Or am I going to be like this forever? I in a mess at the moment and my relationship is really suffering as is the rest of my life. I just want to be normal again. I deeply love my partner and not being able to be intimate with him is destroying me. Please can someone give me some help? Advice?

    Kate1981

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    Re just diagnosed

    Post  Sunflower82 on Sat Aug 25, 2012 8:26 pm

    Hi,
    Sorry to hear that you are suffering, I have had this condition for years, the three years have been the worst. Think like Many people I have good and bad days! In your message you said about KY jelly, some people would say some of the ingredients used in KY Jelly can affect the area if u are particularly sensitive down there, have a look at yes lube, it explains what the ingredients are, but I would doubt using it would cause vulvodynia! Other things to try is to see a women health physio.

    Hope this helps

    Kt

    Sunflower82

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    I know

    Post  lavrose on Sun Aug 26, 2012 10:53 am

    O have I been down this road. You wanna start with taking oral probiotics, such as femdophilus (jarrow brand) 2 capsules a day, and rephresh probiotic supplement, or some other multi strain probiotic supplement. Cut out sugars, and try to eat primarily vegetables, lemon, and proteins for a few weeks, lots of water. Yogurt. Also, vitamin E and folc acid supplements help alot too. Then check out my posts about essential oil suppositories. I will copy and pastes here:::
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    lavrose

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    Re: Just Diagnosed!

    Post  lavrose on Sun Aug 26, 2012 10:55 am

    Folic acid supplements, 1 800mcg morning and evening, 2 pills a day. 800IU vitamin E twice a day. Lemon water, slice of lemon in water thruout the day
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    lavrose

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    essential oils

    Post  lavrose on Sun Aug 26, 2012 10:57 am

    The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.
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    lavrose

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    Re: Just Diagnosed!

    Post  Kate1981 on Mon Aug 27, 2012 1:10 pm

    lavrose wrote:The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.

    Thanks so much for your information I have ordered all the supplements you have suggested so lets see how I go. I just cant get my head around it all at the moment. Thanks again

    Kate1981

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    Re: Just Diagnosed!

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