Log in

I forgot my password

Similar topics
    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 6

    Post Vestibulectomy

    Thu Aug 03, 2017 6:15 pm by infinitelywondering

    Heya,

    I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

    However, today I came home and have done the following things:

    -washed with warm water
    -applied manuka honey to the area
    -ensured I wash at least 3 times a day and dab the area dry gently
    -use frozen peas to stop the swelling

    As of now I am …

    Comments: 1

    New w/ Secondary Provoked Vestibuldynia

    Wed Apr 26, 2017 11:46 pm by Birdy

    Hi everyone,

    I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

    Comments: 3

    Anyone from the PNW?

    Sat Aug 05, 2017 7:54 am by jungleclover

    I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

    Comments: 0

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 22


    Just Diagnosed!

    View previous topic View next topic Go down

    Just Diagnosed!

    Post  Kate1981 on Sat Aug 25, 2012 9:46 am

    Hello Everyone

    I have recently been diagnosed with Vulvodynia and I am completely devastaed and unable to accept what is happening to me im still in the denial stage.

    Im 31 years old and had never had any major problems with sex. If I had a lot of sex I would become sore for a few days but nor painful. I split up with my ex partner last year after 10 years and was devastated thinking I would never find love again. Six months I met up with someone from my early childhood who had also divorced and within a few months we fell in love.

    We waited 4 months until we first had sex as I wanted it to be special. It was amazing until 2 days later and I started to experience a burning sensation on the right hand side of my vulva. I initally jumped to conclusions and thought it was an std. Off we both went to the clinic I was told I had a uti and was given antibiotics and within a week I was fine. Another week later our results came back and all std's clear.

    After a rocky patch we continued with our relationship. Five months later my smear was due so off I went. Smears have always been really unconfortable for me and have always caused me pain. Later that evening the pain was unbearable and had to go to A&E they said I had a water infection and was given antibiotics. A week later I was fine again.

    A month later we were away on holiday having an amazing time and the horrible burning sensation I felt 6 months ago started again. I thought maybe because we had had too much sex or maybe it was an std my head was all over the place. I deeply loved my partner and he adored me so I knew he hadnt cheated to catch an std.

    When we got back to the UK I went straight to see my GP and was given more antibiotics for UTI. The burning cleared within 3 days and after 2 weeks I felt fine and we continued to have sex.

    Two months later after a lot of sex the dreaded burning started again. I was distraught what was happening to me I just wanted happiness. I went back to the sexual health clinic was examinded but nothing was there. The doctor suggested I had herpes I was inconsolable how could I we had both been tested always been careful. I sobbed my heart out for 2 weeks and the pain got worse and worse. I went back to clinic and saw a different doctor. He said he was sure it was herpes and he believed it was something called vulvodynia. I was relieved it wasnt herpes but what was this new condition I now had. Initially he gave me numbing cream which sent me through the roof and made the pain worse. I went back 2 says later and he had my results for herpes which were clear and he prescribed me ami 10mg a day which I have now increased to 20mg. The pain has eased but not gone. I felt like I was on fire inside with someone stabbing me at the same time.

    I havnt left my room for 3 weeks because I feel so down and im still in pain. I still dont understand why and how it started. The only thing we can both thing of is we used KY jelly evrytime this has happened. Could it be a reaction that will repair itself? Or am I going to be like this forever? I in a mess at the moment and my relationship is really suffering as is the rest of my life. I just want to be normal again. I deeply love my partner and not being able to be intimate with him is destroying me. Please can someone give me some help? Advice?

    Kate1981

    Posts : 88
    Join date : 2012-08-17
    Location : Manchester, UK

    View user profile

    Back to top Go down

    Re just diagnosed

    Post  Sunflower82 on Sat Aug 25, 2012 8:26 pm

    Hi,
    Sorry to hear that you are suffering, I have had this condition for years, the three years have been the worst. Think like Many people I have good and bad days! In your message you said about KY jelly, some people would say some of the ingredients used in KY Jelly can affect the area if u are particularly sensitive down there, have a look at yes lube, it explains what the ingredients are, but I would doubt using it would cause vulvodynia! Other things to try is to see a women health physio.

    Hope this helps

    Kt

    Sunflower82

    Posts : 82
    Join date : 2012-02-17

    View user profile

    Back to top Go down

    I know

    Post  lavrose on Sun Aug 26, 2012 10:53 am

    O have I been down this road. You wanna start with taking oral probiotics, such as femdophilus (jarrow brand) 2 capsules a day, and rephresh probiotic supplement, or some other multi strain probiotic supplement. Cut out sugars, and try to eat primarily vegetables, lemon, and proteins for a few weeks, lots of water. Yogurt. Also, vitamin E and folc acid supplements help alot too. Then check out my posts about essential oil suppositories. I will copy and pastes here:::
    avatar
    lavrose

    Posts : 150
    Join date : 2012-04-28

    View user profile

    Back to top Go down

    Re: Just Diagnosed!

    Post  lavrose on Sun Aug 26, 2012 10:55 am

    Folic acid supplements, 1 800mcg morning and evening, 2 pills a day. 800IU vitamin E twice a day. Lemon water, slice of lemon in water thruout the day
    avatar
    lavrose

    Posts : 150
    Join date : 2012-04-28

    View user profile

    Back to top Go down

    essential oils

    Post  lavrose on Sun Aug 26, 2012 10:57 am

    The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.
    avatar
    lavrose

    Posts : 150
    Join date : 2012-04-28

    View user profile

    Back to top Go down

    Re: Just Diagnosed!

    Post  Kate1981 on Mon Aug 27, 2012 1:10 pm

    lavrose wrote:The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.

    Thanks so much for your information I have ordered all the supplements you have suggested so lets see how I go. I just cant get my head around it all at the moment. Thanks again

    Kate1981

    Posts : 88
    Join date : 2012-08-17
    Location : Manchester, UK

    View user profile

    Back to top Go down

    Re: Just Diagnosed!

    Post  Sponsored content


    Sponsored content


    Back to top Go down

    View previous topic View next topic Back to top

    - Similar topics

     
    Permissions in this forum:
    You cannot reply to topics in this forum