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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 3

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


    Just Diagnosed!

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    Just Diagnosed!

    Post  Kate1981 on Sat Aug 25, 2012 9:46 am

    Hello Everyone

    I have recently been diagnosed with Vulvodynia and I am completely devastaed and unable to accept what is happening to me im still in the denial stage.

    Im 31 years old and had never had any major problems with sex. If I had a lot of sex I would become sore for a few days but nor painful. I split up with my ex partner last year after 10 years and was devastated thinking I would never find love again. Six months I met up with someone from my early childhood who had also divorced and within a few months we fell in love.

    We waited 4 months until we first had sex as I wanted it to be special. It was amazing until 2 days later and I started to experience a burning sensation on the right hand side of my vulva. I initally jumped to conclusions and thought it was an std. Off we both went to the clinic I was told I had a uti and was given antibiotics and within a week I was fine. Another week later our results came back and all std's clear.

    After a rocky patch we continued with our relationship. Five months later my smear was due so off I went. Smears have always been really unconfortable for me and have always caused me pain. Later that evening the pain was unbearable and had to go to A&E they said I had a water infection and was given antibiotics. A week later I was fine again.

    A month later we were away on holiday having an amazing time and the horrible burning sensation I felt 6 months ago started again. I thought maybe because we had had too much sex or maybe it was an std my head was all over the place. I deeply loved my partner and he adored me so I knew he hadnt cheated to catch an std.

    When we got back to the UK I went straight to see my GP and was given more antibiotics for UTI. The burning cleared within 3 days and after 2 weeks I felt fine and we continued to have sex.

    Two months later after a lot of sex the dreaded burning started again. I was distraught what was happening to me I just wanted happiness. I went back to the sexual health clinic was examinded but nothing was there. The doctor suggested I had herpes I was inconsolable how could I we had both been tested always been careful. I sobbed my heart out for 2 weeks and the pain got worse and worse. I went back to clinic and saw a different doctor. He said he was sure it was herpes and he believed it was something called vulvodynia. I was relieved it wasnt herpes but what was this new condition I now had. Initially he gave me numbing cream which sent me through the roof and made the pain worse. I went back 2 says later and he had my results for herpes which were clear and he prescribed me ami 10mg a day which I have now increased to 20mg. The pain has eased but not gone. I felt like I was on fire inside with someone stabbing me at the same time.

    I havnt left my room for 3 weeks because I feel so down and im still in pain. I still dont understand why and how it started. The only thing we can both thing of is we used KY jelly evrytime this has happened. Could it be a reaction that will repair itself? Or am I going to be like this forever? I in a mess at the moment and my relationship is really suffering as is the rest of my life. I just want to be normal again. I deeply love my partner and not being able to be intimate with him is destroying me. Please can someone give me some help? Advice?

    Kate1981

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    Re just diagnosed

    Post  Sunflower82 on Sat Aug 25, 2012 8:26 pm

    Hi,
    Sorry to hear that you are suffering, I have had this condition for years, the three years have been the worst. Think like Many people I have good and bad days! In your message you said about KY jelly, some people would say some of the ingredients used in KY Jelly can affect the area if u are particularly sensitive down there, have a look at yes lube, it explains what the ingredients are, but I would doubt using it would cause vulvodynia! Other things to try is to see a women health physio.

    Hope this helps

    Kt

    Sunflower82

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    I know

    Post  lavrose on Sun Aug 26, 2012 10:53 am

    O have I been down this road. You wanna start with taking oral probiotics, such as femdophilus (jarrow brand) 2 capsules a day, and rephresh probiotic supplement, or some other multi strain probiotic supplement. Cut out sugars, and try to eat primarily vegetables, lemon, and proteins for a few weeks, lots of water. Yogurt. Also, vitamin E and folc acid supplements help alot too. Then check out my posts about essential oil suppositories. I will copy and pastes here:::
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    lavrose

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    Re: Just Diagnosed!

    Post  lavrose on Sun Aug 26, 2012 10:55 am

    Folic acid supplements, 1 800mcg morning and evening, 2 pills a day. 800IU vitamin E twice a day. Lemon water, slice of lemon in water thruout the day
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    lavrose

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    essential oils

    Post  lavrose on Sun Aug 26, 2012 10:57 am

    The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.
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    lavrose

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    Re: Just Diagnosed!

    Post  Kate1981 on Mon Aug 27, 2012 1:10 pm

    lavrose wrote:The oils. I make suppositories with coconut oil, (frozen, in sport bottle ice cube trays) with various essential oils, and Ive been able to have a sex life and sometimes, pain free sex life, since I started this. The thing is. You have to rotate the oils, I learned this. For a couple of years I was just using tea tree (and douches are horrible by the way, please dont put them in douche, been there, done that) after awhile, it didnt work and I didnt know why. The Boric acid suppositories. Worked for awhile, then didnt work at all. Then Myrrh oil. Which is great by the way. Then lavender and rosemary oils. Also awesome. Then Tyme oil, and oregano oil. Awesomness. Also, grapefruit seed extract is great too. Now Im doing Geranium oil, and its the skin of my vag is very soft and supple, non itchy and completely burn free. It feels strong, and healed...Im totally down for sex atm ), but currently single again (..but yea. Start out with a few drops, first few days, then work your way up to where you feel comfortable. I use quite a bit, especially for raging pain or infection, but everyones different.

    Thanks so much for your information I have ordered all the supplements you have suggested so lets see how I go. I just cant get my head around it all at the moment. Thanks again

    Kate1981

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    Re: Just Diagnosed!

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