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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Recently diagnosed but having to take antibiotics!

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Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 8:38 am

Hello, I have just found this site and I'm so relieved to hear from people who understand what I've been going through! This all sounds so familiar. I too suffer from UTIs but I also contracted ecoli a couple of years ago so was put on a long course of antibiotics followed by an even longer course of thrush treatment. That's when the vulva pain started, it was at first most apparent when attempting to have sex. I knew the thrush had gone but my GP still insisted it was that and I was given thrush treatment for 6 weeks and the symptoms only worsened. I have also always suffered from back pain on and off and this seemed to get a lot worse. About 6 months ago I ended up going to a GU clinic because I wanted a second opinion and the specialist there has been really great, she told me about vulvodynia and this site. I was about to start taking medication for it but felt my symptoms change! I have a UTI that spread to my kidney which I had to have antibiotics for! Everything has got a lot worse and I can't seem to find anyway to feel comfortable! It seems to be affecting my stomach, thighs and especially my back. Because the drop in doctor who tested for the kidney infection told me to go to the GP if the pain was still there after the course of antibiotics and I haven't been able to see the specialised, I went to a GP to hopefully get some more answers or be referred to a chiropractor. However she didn't seem to listen to me at all, hadn't heard of vulvodynia and I walked out of there with another perscription for 'hardcore antibiotics' as she put it and a prescription for thrush treatment!! Exactly the things that seem to have stated all of this in the first place. I now am so confused as to whether my pain is related to the UTI/ kidney infection or the vulvodynia? I am scared to take the antibiotics but also scared not to! Any advice would be really really appreciated! Does anyone else find back pain to be the predominant pain? I feel like I'm going a bit mad! Sad Thank you all for listening to my rant!

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I also have back pain

Post  Rainy Day on Fri Aug 31, 2012 12:56 pm

I never had back pain in my life before this. Mine also started from 1 round of antiobiotics to treat a kidney infection. I cna't get comfortable either. My sacrum is messed up, tailbone is broken, pain down my legs. And, my back hurts. Been going on 7 months. I am about to just lose it.

Rainy Day

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:08 pm

Just googled sacrum Smile YES it's that whole area that hurts! Have you also been diagosed with vulvodynia? It seems for me the vulva pain is not as bad as the other pains. I'm so sick of going round in circles, its such a frustrating thing to have. Have been slowly pacing my flat for the last few days, even lying down (which use to make it better) hasn't been helping! Reading things on here has made me realise I'm not completely crazy but the pain is so tiring, it's such an endurance test!

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Sacrum pain

Post  Rainy Day on Fri Aug 31, 2012 1:21 pm

The only thing that helps my sacrum pain is placing ice on it for about 5-10 min every hour. Also, I take several ibuprofen a day. That seems to slow it down. But, I can't keep it gone. I had an xray which showed a lot of inflamation around my sacro iliac joint. So, I wnet to physio. Only been to 2 sessions though. yes, my leg pain and sacrum pain are far worse than vagina. I am about to pull my hair out. Hubby doesn't 'get' it. Watching my 2 yr old today and it's not easy since life is so painful. Was taking gabapentin but it was making me so sick, so started decreasing dosage.

Rainy Day

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Sacrum pain much worse when lying down for me...

Post  Rainy Day on Fri Aug 31, 2012 1:22 pm

Surprised it didn't bother you when lying down. Of course, sitting is impossible too though.

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:44 pm

I haven't tried ice yet! I had the vulva pain first that started about a year ago and lying helped for that but since the last lot of antibiotics lying doesn't help at all! Does the pain in your back feel similar to the pain of the kidney infection? I can't work out what's hurting! Is your pain better or worse with your periods? Mine started off feeling better but now it seems worse!? It must be so hard with a 2 year old, I thought it was hard with my puppy (although now I'm a little scared I'll only ever have dogs and no babies)! It's frustrating that some people don't seem to understand...make your husband read some of the posts on here, then he might get it! My boyfriend is really great but he's had to put up with alot! Yes sitting is the worst.

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Kidney infection

Post  Rainy Day on Fri Aug 31, 2012 1:51 pm

I can't remember if I had back pain with the kidney infection. I just remembber it being so painful in the uterus area...and peeing pure blood and barfing. I sometimes wonder if it never went away too. It's terribly hard with a 2 yr old. I love him to pieces, but its so hard to play with him being in pain. I am really hoping the physio can help sort out some of my problems. Does it hurt to lie on your back (where your sacrum is)? If so, I am guessing its your sacrum. I am guessing your entire pelvic floor is messed up like mine then.

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messed up pelvic floor

Post  Abi2 on Fri Aug 31, 2012 5:57 pm

Keep hearing that physio is really helpful so hopefully it'll do the trick for you! My mum had a slipped disk while I was young so could never carry me but I still knew she loved me, I'm sure your child will just grow into a more understanding adult because of this. I think you're probably right about the pelvic floor, seeing the specialist again next week so will ask about physio too. Thank you for sharing what's happened to you with me. Wishing you a less painful day tomorrow!

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Re: Recently diagnosed but having to take antibiotics!

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