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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Recently diagnosed but having to take antibiotics!

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Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 8:38 am

Hello, I have just found this site and I'm so relieved to hear from people who understand what I've been going through! This all sounds so familiar. I too suffer from UTIs but I also contracted ecoli a couple of years ago so was put on a long course of antibiotics followed by an even longer course of thrush treatment. That's when the vulva pain started, it was at first most apparent when attempting to have sex. I knew the thrush had gone but my GP still insisted it was that and I was given thrush treatment for 6 weeks and the symptoms only worsened. I have also always suffered from back pain on and off and this seemed to get a lot worse. About 6 months ago I ended up going to a GU clinic because I wanted a second opinion and the specialist there has been really great, she told me about vulvodynia and this site. I was about to start taking medication for it but felt my symptoms change! I have a UTI that spread to my kidney which I had to have antibiotics for! Everything has got a lot worse and I can't seem to find anyway to feel comfortable! It seems to be affecting my stomach, thighs and especially my back. Because the drop in doctor who tested for the kidney infection told me to go to the GP if the pain was still there after the course of antibiotics and I haven't been able to see the specialised, I went to a GP to hopefully get some more answers or be referred to a chiropractor. However she didn't seem to listen to me at all, hadn't heard of vulvodynia and I walked out of there with another perscription for 'hardcore antibiotics' as she put it and a prescription for thrush treatment!! Exactly the things that seem to have stated all of this in the first place. I now am so confused as to whether my pain is related to the UTI/ kidney infection or the vulvodynia? I am scared to take the antibiotics but also scared not to! Any advice would be really really appreciated! Does anyone else find back pain to be the predominant pain? I feel like I'm going a bit mad! Sad Thank you all for listening to my rant!

Abi2

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I also have back pain

Post  Rainy Day on Fri Aug 31, 2012 12:56 pm

I never had back pain in my life before this. Mine also started from 1 round of antiobiotics to treat a kidney infection. I cna't get comfortable either. My sacrum is messed up, tailbone is broken, pain down my legs. And, my back hurts. Been going on 7 months. I am about to just lose it.

Rainy Day

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:08 pm

Just googled sacrum Smile YES it's that whole area that hurts! Have you also been diagosed with vulvodynia? It seems for me the vulva pain is not as bad as the other pains. I'm so sick of going round in circles, its such a frustrating thing to have. Have been slowly pacing my flat for the last few days, even lying down (which use to make it better) hasn't been helping! Reading things on here has made me realise I'm not completely crazy but the pain is so tiring, it's such an endurance test!

Abi2

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Sacrum pain

Post  Rainy Day on Fri Aug 31, 2012 1:21 pm

The only thing that helps my sacrum pain is placing ice on it for about 5-10 min every hour. Also, I take several ibuprofen a day. That seems to slow it down. But, I can't keep it gone. I had an xray which showed a lot of inflamation around my sacro iliac joint. So, I wnet to physio. Only been to 2 sessions though. yes, my leg pain and sacrum pain are far worse than vagina. I am about to pull my hair out. Hubby doesn't 'get' it. Watching my 2 yr old today and it's not easy since life is so painful. Was taking gabapentin but it was making me so sick, so started decreasing dosage.

Rainy Day

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Sacrum pain much worse when lying down for me...

Post  Rainy Day on Fri Aug 31, 2012 1:22 pm

Surprised it didn't bother you when lying down. Of course, sitting is impossible too though.

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:44 pm

I haven't tried ice yet! I had the vulva pain first that started about a year ago and lying helped for that but since the last lot of antibiotics lying doesn't help at all! Does the pain in your back feel similar to the pain of the kidney infection? I can't work out what's hurting! Is your pain better or worse with your periods? Mine started off feeling better but now it seems worse!? It must be so hard with a 2 year old, I thought it was hard with my puppy (although now I'm a little scared I'll only ever have dogs and no babies)! It's frustrating that some people don't seem to understand...make your husband read some of the posts on here, then he might get it! My boyfriend is really great but he's had to put up with alot! Yes sitting is the worst.

Abi2

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Kidney infection

Post  Rainy Day on Fri Aug 31, 2012 1:51 pm

I can't remember if I had back pain with the kidney infection. I just remembber it being so painful in the uterus area...and peeing pure blood and barfing. I sometimes wonder if it never went away too. It's terribly hard with a 2 yr old. I love him to pieces, but its so hard to play with him being in pain. I am really hoping the physio can help sort out some of my problems. Does it hurt to lie on your back (where your sacrum is)? If so, I am guessing its your sacrum. I am guessing your entire pelvic floor is messed up like mine then.

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messed up pelvic floor

Post  Abi2 on Fri Aug 31, 2012 5:57 pm

Keep hearing that physio is really helpful so hopefully it'll do the trick for you! My mum had a slipped disk while I was young so could never carry me but I still knew she loved me, I'm sure your child will just grow into a more understanding adult because of this. I think you're probably right about the pelvic floor, seeing the specialist again next week so will ask about physio too. Thank you for sharing what's happened to you with me. Wishing you a less painful day tomorrow!

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Re: Recently diagnosed but having to take antibiotics!

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