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» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Recently diagnosed but having to take antibiotics!

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Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 8:38 am

Hello, I have just found this site and I'm so relieved to hear from people who understand what I've been going through! This all sounds so familiar. I too suffer from UTIs but I also contracted ecoli a couple of years ago so was put on a long course of antibiotics followed by an even longer course of thrush treatment. That's when the vulva pain started, it was at first most apparent when attempting to have sex. I knew the thrush had gone but my GP still insisted it was that and I was given thrush treatment for 6 weeks and the symptoms only worsened. I have also always suffered from back pain on and off and this seemed to get a lot worse. About 6 months ago I ended up going to a GU clinic because I wanted a second opinion and the specialist there has been really great, she told me about vulvodynia and this site. I was about to start taking medication for it but felt my symptoms change! I have a UTI that spread to my kidney which I had to have antibiotics for! Everything has got a lot worse and I can't seem to find anyway to feel comfortable! It seems to be affecting my stomach, thighs and especially my back. Because the drop in doctor who tested for the kidney infection told me to go to the GP if the pain was still there after the course of antibiotics and I haven't been able to see the specialised, I went to a GP to hopefully get some more answers or be referred to a chiropractor. However she didn't seem to listen to me at all, hadn't heard of vulvodynia and I walked out of there with another perscription for 'hardcore antibiotics' as she put it and a prescription for thrush treatment!! Exactly the things that seem to have stated all of this in the first place. I now am so confused as to whether my pain is related to the UTI/ kidney infection or the vulvodynia? I am scared to take the antibiotics but also scared not to! Any advice would be really really appreciated! Does anyone else find back pain to be the predominant pain? I feel like I'm going a bit mad! Sad Thank you all for listening to my rant!

Abi2

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I also have back pain

Post  Rainy Day on Fri Aug 31, 2012 12:56 pm

I never had back pain in my life before this. Mine also started from 1 round of antiobiotics to treat a kidney infection. I cna't get comfortable either. My sacrum is messed up, tailbone is broken, pain down my legs. And, my back hurts. Been going on 7 months. I am about to just lose it.

Rainy Day

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:08 pm

Just googled sacrum Smile YES it's that whole area that hurts! Have you also been diagosed with vulvodynia? It seems for me the vulva pain is not as bad as the other pains. I'm so sick of going round in circles, its such a frustrating thing to have. Have been slowly pacing my flat for the last few days, even lying down (which use to make it better) hasn't been helping! Reading things on here has made me realise I'm not completely crazy but the pain is so tiring, it's such an endurance test!

Abi2

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Sacrum pain

Post  Rainy Day on Fri Aug 31, 2012 1:21 pm

The only thing that helps my sacrum pain is placing ice on it for about 5-10 min every hour. Also, I take several ibuprofen a day. That seems to slow it down. But, I can't keep it gone. I had an xray which showed a lot of inflamation around my sacro iliac joint. So, I wnet to physio. Only been to 2 sessions though. yes, my leg pain and sacrum pain are far worse than vagina. I am about to pull my hair out. Hubby doesn't 'get' it. Watching my 2 yr old today and it's not easy since life is so painful. Was taking gabapentin but it was making me so sick, so started decreasing dosage.

Rainy Day

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Sacrum pain much worse when lying down for me...

Post  Rainy Day on Fri Aug 31, 2012 1:22 pm

Surprised it didn't bother you when lying down. Of course, sitting is impossible too though.

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:44 pm

I haven't tried ice yet! I had the vulva pain first that started about a year ago and lying helped for that but since the last lot of antibiotics lying doesn't help at all! Does the pain in your back feel similar to the pain of the kidney infection? I can't work out what's hurting! Is your pain better or worse with your periods? Mine started off feeling better but now it seems worse!? It must be so hard with a 2 year old, I thought it was hard with my puppy (although now I'm a little scared I'll only ever have dogs and no babies)! It's frustrating that some people don't seem to understand...make your husband read some of the posts on here, then he might get it! My boyfriend is really great but he's had to put up with alot! Yes sitting is the worst.

Abi2

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Kidney infection

Post  Rainy Day on Fri Aug 31, 2012 1:51 pm

I can't remember if I had back pain with the kidney infection. I just remembber it being so painful in the uterus area...and peeing pure blood and barfing. I sometimes wonder if it never went away too. It's terribly hard with a 2 yr old. I love him to pieces, but its so hard to play with him being in pain. I am really hoping the physio can help sort out some of my problems. Does it hurt to lie on your back (where your sacrum is)? If so, I am guessing its your sacrum. I am guessing your entire pelvic floor is messed up like mine then.

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messed up pelvic floor

Post  Abi2 on Fri Aug 31, 2012 5:57 pm

Keep hearing that physio is really helpful so hopefully it'll do the trick for you! My mum had a slipped disk while I was young so could never carry me but I still knew she loved me, I'm sure your child will just grow into a more understanding adult because of this. I think you're probably right about the pelvic floor, seeing the specialist again next week so will ask about physio too. Thank you for sharing what's happened to you with me. Wishing you a less painful day tomorrow!

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Re: Recently diagnosed but having to take antibiotics!

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