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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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Recently diagnosed but having to take antibiotics!

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Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 8:38 am

Hello, I have just found this site and I'm so relieved to hear from people who understand what I've been going through! This all sounds so familiar. I too suffer from UTIs but I also contracted ecoli a couple of years ago so was put on a long course of antibiotics followed by an even longer course of thrush treatment. That's when the vulva pain started, it was at first most apparent when attempting to have sex. I knew the thrush had gone but my GP still insisted it was that and I was given thrush treatment for 6 weeks and the symptoms only worsened. I have also always suffered from back pain on and off and this seemed to get a lot worse. About 6 months ago I ended up going to a GU clinic because I wanted a second opinion and the specialist there has been really great, she told me about vulvodynia and this site. I was about to start taking medication for it but felt my symptoms change! I have a UTI that spread to my kidney which I had to have antibiotics for! Everything has got a lot worse and I can't seem to find anyway to feel comfortable! It seems to be affecting my stomach, thighs and especially my back. Because the drop in doctor who tested for the kidney infection told me to go to the GP if the pain was still there after the course of antibiotics and I haven't been able to see the specialised, I went to a GP to hopefully get some more answers or be referred to a chiropractor. However she didn't seem to listen to me at all, hadn't heard of vulvodynia and I walked out of there with another perscription for 'hardcore antibiotics' as she put it and a prescription for thrush treatment!! Exactly the things that seem to have stated all of this in the first place. I now am so confused as to whether my pain is related to the UTI/ kidney infection or the vulvodynia? I am scared to take the antibiotics but also scared not to! Any advice would be really really appreciated! Does anyone else find back pain to be the predominant pain? I feel like I'm going a bit mad! Sad Thank you all for listening to my rant!

Abi2

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I also have back pain

Post  Rainy Day on Fri Aug 31, 2012 12:56 pm

I never had back pain in my life before this. Mine also started from 1 round of antiobiotics to treat a kidney infection. I cna't get comfortable either. My sacrum is messed up, tailbone is broken, pain down my legs. And, my back hurts. Been going on 7 months. I am about to just lose it.

Rainy Day

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:08 pm

Just googled sacrum Smile YES it's that whole area that hurts! Have you also been diagosed with vulvodynia? It seems for me the vulva pain is not as bad as the other pains. I'm so sick of going round in circles, its such a frustrating thing to have. Have been slowly pacing my flat for the last few days, even lying down (which use to make it better) hasn't been helping! Reading things on here has made me realise I'm not completely crazy but the pain is so tiring, it's such an endurance test!

Abi2

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Sacrum pain

Post  Rainy Day on Fri Aug 31, 2012 1:21 pm

The only thing that helps my sacrum pain is placing ice on it for about 5-10 min every hour. Also, I take several ibuprofen a day. That seems to slow it down. But, I can't keep it gone. I had an xray which showed a lot of inflamation around my sacro iliac joint. So, I wnet to physio. Only been to 2 sessions though. yes, my leg pain and sacrum pain are far worse than vagina. I am about to pull my hair out. Hubby doesn't 'get' it. Watching my 2 yr old today and it's not easy since life is so painful. Was taking gabapentin but it was making me so sick, so started decreasing dosage.

Rainy Day

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Sacrum pain much worse when lying down for me...

Post  Rainy Day on Fri Aug 31, 2012 1:22 pm

Surprised it didn't bother you when lying down. Of course, sitting is impossible too though.

Rainy Day

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Re: Recently diagnosed but having to take antibiotics!

Post  Abi2 on Fri Aug 31, 2012 1:44 pm

I haven't tried ice yet! I had the vulva pain first that started about a year ago and lying helped for that but since the last lot of antibiotics lying doesn't help at all! Does the pain in your back feel similar to the pain of the kidney infection? I can't work out what's hurting! Is your pain better or worse with your periods? Mine started off feeling better but now it seems worse!? It must be so hard with a 2 year old, I thought it was hard with my puppy (although now I'm a little scared I'll only ever have dogs and no babies)! It's frustrating that some people don't seem to understand...make your husband read some of the posts on here, then he might get it! My boyfriend is really great but he's had to put up with alot! Yes sitting is the worst.

Abi2

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Kidney infection

Post  Rainy Day on Fri Aug 31, 2012 1:51 pm

I can't remember if I had back pain with the kidney infection. I just remembber it being so painful in the uterus area...and peeing pure blood and barfing. I sometimes wonder if it never went away too. It's terribly hard with a 2 yr old. I love him to pieces, but its so hard to play with him being in pain. I am really hoping the physio can help sort out some of my problems. Does it hurt to lie on your back (where your sacrum is)? If so, I am guessing its your sacrum. I am guessing your entire pelvic floor is messed up like mine then.

Rainy Day

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messed up pelvic floor

Post  Abi2 on Fri Aug 31, 2012 5:57 pm

Keep hearing that physio is really helpful so hopefully it'll do the trick for you! My mum had a slipped disk while I was young so could never carry me but I still knew she loved me, I'm sure your child will just grow into a more understanding adult because of this. I think you're probably right about the pelvic floor, seeing the specialist again next week so will ask about physio too. Thank you for sharing what's happened to you with me. Wishing you a less painful day tomorrow!

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Re: Recently diagnosed but having to take antibiotics!

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