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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


It's back after 5 years pain free!!!!

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It's back after 5 years pain free!!!!

Post  LillyK on Sat Sep 01, 2012 5:31 am

I just tried to type this out but I don't think it posted, so if this is a double post please forgive me.
About 6 1/2 years ago I started suffering from vulvodynia. I went to several different ob.gyns, a urologist (who said it was in my head), had to quit my job, and basically was miserable for a year or so. Then I found an ob.gyn who told me that I should try eastern medicine because western medicine has no cure for this. He was kind and gentle and caring so I took his advice and went to acupuncture. After one month my pain was down to 25% of what it was. By 4 months, I was well enough that I got pregnant and I stopped going to acupuncture. Pregnancy really "cured" me though. The more advanced the pregnancy got, the better I felt. And it has stayed that way for 5 years, up until 3 days ago.
Now I am freaking out because it is back. I have no idea what changed, other than me having quite a bit of stress right now. I have maintained a healthy diet for the past 5 years, so I don't think it's a diet thing. I really have no idea what caused this but I can't afford acupuncture right now and I am so sad and depressed!!! We desperately want another baby and have been trying for 3 years, and I've miscarried 2.
Has anyone else gone years pain free and then had it return?? Any ideas? This is so scary. It thought I was done with this horrible nightmare forever, and I'm heartbroken.

LillyK

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STRESS!

Post  Rainy Day on Sat Sep 01, 2012 6:20 pm

YES YES YES this has everything to do with stress! I got it after dad died of cancer...and mom just got diagnosed of cancer. I can tell if I have less stress, the pain is less. SO, I am tryign really hard to focus on good (easier said than done). But, everything takes time i guess.

Rainy Day

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Re: It's back after 5 years pain free!!!!

Post  LillyK on Sun Sep 02, 2012 4:59 am

Thanks Rainy! I am really hoping if I can reduce my stress level that will help. This year has been super hard. I lost a baby 2nd tri, injured my knee really badly and had to have surgery plus 3 months rehab, after my miscarriage I had a cyst rupture on my ovary 2 wks later. Same week I miscarried, my husband's grandfather who we adored died. My son just started kindergarten and my hubby is having to work 2 jobs since I haven't been able to work at all this year. This stress has also brought my asthma back that I had in childhood. It's overwhelming.

I am so sorry to hear about your dad and now your mom having cancer! I hope we both can relax more and beat this thing. I did it once. Surely I can do it again, right??!?!

LillyK

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Stress!

Post  Rainy Day on Sun Sep 02, 2012 3:08 pm

My dad got diagnosed with Stage 4 cancer and died 9 mths later. Mom got diagnosed a few months after dad died. Currently going through radiation. Her prognosis is really good, fortunately. We farm for a living, and it's the biggest drought in 25 yrs. My husband quit his job to expand his farming business this year (and go figure the farming took a crap with the draught). I am ill enough that I can't hardly make it to work. I get worse at work...better at home. My family has completely divided after dad's death...he was the mold that kept us together. So, yes, stress has a LOT to do with this crap. My physio has me meditating, doing yoga, and has encouraged me to see a therapist about how my dad's death has affected me emotionally. I am a wreck. It's funny since when my mom comes to my house for a day or 2, she can get me really calm and the pain is much, much better. I wish she could be here every day, but she lives over an hour away. So, yes, I do think we can beat this. But, we have to get a handle on our stress level first.

Rainy Day

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therapist

Post  Rainy Day on Sun Sep 02, 2012 3:10 pm

my physio says DO NOT focus on the pain. think of anythign but the pain to re-train your brain to think about other things. I try to focus on the tip of my nose...as silly as it sounds.

Rainy Day

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Re: It's back after 5 years pain free!!!!

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