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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


It's back after 5 years pain free!!!!

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It's back after 5 years pain free!!!!

Post  LillyK on Sat Sep 01, 2012 5:31 am

I just tried to type this out but I don't think it posted, so if this is a double post please forgive me.
About 6 1/2 years ago I started suffering from vulvodynia. I went to several different ob.gyns, a urologist (who said it was in my head), had to quit my job, and basically was miserable for a year or so. Then I found an ob.gyn who told me that I should try eastern medicine because western medicine has no cure for this. He was kind and gentle and caring so I took his advice and went to acupuncture. After one month my pain was down to 25% of what it was. By 4 months, I was well enough that I got pregnant and I stopped going to acupuncture. Pregnancy really "cured" me though. The more advanced the pregnancy got, the better I felt. And it has stayed that way for 5 years, up until 3 days ago.
Now I am freaking out because it is back. I have no idea what changed, other than me having quite a bit of stress right now. I have maintained a healthy diet for the past 5 years, so I don't think it's a diet thing. I really have no idea what caused this but I can't afford acupuncture right now and I am so sad and depressed!!! We desperately want another baby and have been trying for 3 years, and I've miscarried 2.
Has anyone else gone years pain free and then had it return?? Any ideas? This is so scary. It thought I was done with this horrible nightmare forever, and I'm heartbroken.

LillyK

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STRESS!

Post  Rainy Day on Sat Sep 01, 2012 6:20 pm

YES YES YES this has everything to do with stress! I got it after dad died of cancer...and mom just got diagnosed of cancer. I can tell if I have less stress, the pain is less. SO, I am tryign really hard to focus on good (easier said than done). But, everything takes time i guess.

Rainy Day

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Re: It's back after 5 years pain free!!!!

Post  LillyK on Sun Sep 02, 2012 4:59 am

Thanks Rainy! I am really hoping if I can reduce my stress level that will help. This year has been super hard. I lost a baby 2nd tri, injured my knee really badly and had to have surgery plus 3 months rehab, after my miscarriage I had a cyst rupture on my ovary 2 wks later. Same week I miscarried, my husband's grandfather who we adored died. My son just started kindergarten and my hubby is having to work 2 jobs since I haven't been able to work at all this year. This stress has also brought my asthma back that I had in childhood. It's overwhelming.

I am so sorry to hear about your dad and now your mom having cancer! I hope we both can relax more and beat this thing. I did it once. Surely I can do it again, right??!?!

LillyK

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Stress!

Post  Rainy Day on Sun Sep 02, 2012 3:08 pm

My dad got diagnosed with Stage 4 cancer and died 9 mths later. Mom got diagnosed a few months after dad died. Currently going through radiation. Her prognosis is really good, fortunately. We farm for a living, and it's the biggest drought in 25 yrs. My husband quit his job to expand his farming business this year (and go figure the farming took a crap with the draught). I am ill enough that I can't hardly make it to work. I get worse at work...better at home. My family has completely divided after dad's death...he was the mold that kept us together. So, yes, stress has a LOT to do with this crap. My physio has me meditating, doing yoga, and has encouraged me to see a therapist about how my dad's death has affected me emotionally. I am a wreck. It's funny since when my mom comes to my house for a day or 2, she can get me really calm and the pain is much, much better. I wish she could be here every day, but she lives over an hour away. So, yes, I do think we can beat this. But, we have to get a handle on our stress level first.

Rainy Day

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therapist

Post  Rainy Day on Sun Sep 02, 2012 3:10 pm

my physio says DO NOT focus on the pain. think of anythign but the pain to re-train your brain to think about other things. I try to focus on the tip of my nose...as silly as it sounds.

Rainy Day

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Re: It's back after 5 years pain free!!!!

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