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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


It's back after 5 years pain free!!!!

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It's back after 5 years pain free!!!!

Post  LillyK on Sat Sep 01, 2012 5:31 am

I just tried to type this out but I don't think it posted, so if this is a double post please forgive me.
About 6 1/2 years ago I started suffering from vulvodynia. I went to several different ob.gyns, a urologist (who said it was in my head), had to quit my job, and basically was miserable for a year or so. Then I found an ob.gyn who told me that I should try eastern medicine because western medicine has no cure for this. He was kind and gentle and caring so I took his advice and went to acupuncture. After one month my pain was down to 25% of what it was. By 4 months, I was well enough that I got pregnant and I stopped going to acupuncture. Pregnancy really "cured" me though. The more advanced the pregnancy got, the better I felt. And it has stayed that way for 5 years, up until 3 days ago.
Now I am freaking out because it is back. I have no idea what changed, other than me having quite a bit of stress right now. I have maintained a healthy diet for the past 5 years, so I don't think it's a diet thing. I really have no idea what caused this but I can't afford acupuncture right now and I am so sad and depressed!!! We desperately want another baby and have been trying for 3 years, and I've miscarried 2.
Has anyone else gone years pain free and then had it return?? Any ideas? This is so scary. It thought I was done with this horrible nightmare forever, and I'm heartbroken.

LillyK

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STRESS!

Post  Rainy Day on Sat Sep 01, 2012 6:20 pm

YES YES YES this has everything to do with stress! I got it after dad died of cancer...and mom just got diagnosed of cancer. I can tell if I have less stress, the pain is less. SO, I am tryign really hard to focus on good (easier said than done). But, everything takes time i guess.

Rainy Day

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Re: It's back after 5 years pain free!!!!

Post  LillyK on Sun Sep 02, 2012 4:59 am

Thanks Rainy! I am really hoping if I can reduce my stress level that will help. This year has been super hard. I lost a baby 2nd tri, injured my knee really badly and had to have surgery plus 3 months rehab, after my miscarriage I had a cyst rupture on my ovary 2 wks later. Same week I miscarried, my husband's grandfather who we adored died. My son just started kindergarten and my hubby is having to work 2 jobs since I haven't been able to work at all this year. This stress has also brought my asthma back that I had in childhood. It's overwhelming.

I am so sorry to hear about your dad and now your mom having cancer! I hope we both can relax more and beat this thing. I did it once. Surely I can do it again, right??!?!

LillyK

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Stress!

Post  Rainy Day on Sun Sep 02, 2012 3:08 pm

My dad got diagnosed with Stage 4 cancer and died 9 mths later. Mom got diagnosed a few months after dad died. Currently going through radiation. Her prognosis is really good, fortunately. We farm for a living, and it's the biggest drought in 25 yrs. My husband quit his job to expand his farming business this year (and go figure the farming took a crap with the draught). I am ill enough that I can't hardly make it to work. I get worse at work...better at home. My family has completely divided after dad's death...he was the mold that kept us together. So, yes, stress has a LOT to do with this crap. My physio has me meditating, doing yoga, and has encouraged me to see a therapist about how my dad's death has affected me emotionally. I am a wreck. It's funny since when my mom comes to my house for a day or 2, she can get me really calm and the pain is much, much better. I wish she could be here every day, but she lives over an hour away. So, yes, I do think we can beat this. But, we have to get a handle on our stress level first.

Rainy Day

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therapist

Post  Rainy Day on Sun Sep 02, 2012 3:10 pm

my physio says DO NOT focus on the pain. think of anythign but the pain to re-train your brain to think about other things. I try to focus on the tip of my nose...as silly as it sounds.

Rainy Day

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Re: It's back after 5 years pain free!!!!

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