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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

It's back after 5 years pain free!!!!

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It's back after 5 years pain free!!!!

Post  LillyK on Sat Sep 01, 2012 5:31 am

I just tried to type this out but I don't think it posted, so if this is a double post please forgive me.
About 6 1/2 years ago I started suffering from vulvodynia. I went to several different ob.gyns, a urologist (who said it was in my head), had to quit my job, and basically was miserable for a year or so. Then I found an ob.gyn who told me that I should try eastern medicine because western medicine has no cure for this. He was kind and gentle and caring so I took his advice and went to acupuncture. After one month my pain was down to 25% of what it was. By 4 months, I was well enough that I got pregnant and I stopped going to acupuncture. Pregnancy really "cured" me though. The more advanced the pregnancy got, the better I felt. And it has stayed that way for 5 years, up until 3 days ago.
Now I am freaking out because it is back. I have no idea what changed, other than me having quite a bit of stress right now. I have maintained a healthy diet for the past 5 years, so I don't think it's a diet thing. I really have no idea what caused this but I can't afford acupuncture right now and I am so sad and depressed!!! We desperately want another baby and have been trying for 3 years, and I've miscarried 2.
Has anyone else gone years pain free and then had it return?? Any ideas? This is so scary. It thought I was done with this horrible nightmare forever, and I'm heartbroken.


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Post  Rainy Day on Sat Sep 01, 2012 6:20 pm

YES YES YES this has everything to do with stress! I got it after dad died of cancer...and mom just got diagnosed of cancer. I can tell if I have less stress, the pain is less. SO, I am tryign really hard to focus on good (easier said than done). But, everything takes time i guess.

Rainy Day

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Re: It's back after 5 years pain free!!!!

Post  LillyK on Sun Sep 02, 2012 4:59 am

Thanks Rainy! I am really hoping if I can reduce my stress level that will help. This year has been super hard. I lost a baby 2nd tri, injured my knee really badly and had to have surgery plus 3 months rehab, after my miscarriage I had a cyst rupture on my ovary 2 wks later. Same week I miscarried, my husband's grandfather who we adored died. My son just started kindergarten and my hubby is having to work 2 jobs since I haven't been able to work at all this year. This stress has also brought my asthma back that I had in childhood. It's overwhelming.

I am so sorry to hear about your dad and now your mom having cancer! I hope we both can relax more and beat this thing. I did it once. Surely I can do it again, right??!?!


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Post  Rainy Day on Sun Sep 02, 2012 3:08 pm

My dad got diagnosed with Stage 4 cancer and died 9 mths later. Mom got diagnosed a few months after dad died. Currently going through radiation. Her prognosis is really good, fortunately. We farm for a living, and it's the biggest drought in 25 yrs. My husband quit his job to expand his farming business this year (and go figure the farming took a crap with the draught). I am ill enough that I can't hardly make it to work. I get worse at work...better at home. My family has completely divided after dad's death...he was the mold that kept us together. So, yes, stress has a LOT to do with this crap. My physio has me meditating, doing yoga, and has encouraged me to see a therapist about how my dad's death has affected me emotionally. I am a wreck. It's funny since when my mom comes to my house for a day or 2, she can get me really calm and the pain is much, much better. I wish she could be here every day, but she lives over an hour away. So, yes, I do think we can beat this. But, we have to get a handle on our stress level first.

Rainy Day

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Post  Rainy Day on Sun Sep 02, 2012 3:10 pm

my physio says DO NOT focus on the pain. think of anythign but the pain to re-train your brain to think about other things. I try to focus on the tip of my nose...as silly as it sounds.

Rainy Day

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Re: It's back after 5 years pain free!!!!

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