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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Cystitis/UTI

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Cystitis/UTI

Post  Sunflower82 on Sat Sep 01, 2012 8:22 am

Hi,
I have been diagnosed with vulvodynia, I am currently taking antidepressants and have been seeing a women's health physio over the last year, and have also seen a chiroprator. The problem is I get cystitis or UTI everytime we try to have sex, due to the pain this doesn't happen very often twice a month, and really doesn't last that long before we have to stop. I follow all the rules wash and wee before and wash and wee after. I've tried water d mannose powder but it hasn't work for me. Doctors are useless as their answer is long term antibotics, or to take one antibotic after sex which I really don't want to do! Just wondering if anyone else can offer advice.


Many thanks

Kt

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Re: Cystitis/UTI

Post  Sarah001 on Sat Sep 01, 2012 12:38 pm

I'm not sexually active right now but I have started getting repeated UTIs, it's got to the stage where I get one every other month at least and the last one went to my kidneys and made me really, really ill so I asked my Women's Health Physio about this and she explained if your pelvic floor is tight (mine is horrendous) it inhibits the detrusor muscle which should contract to empty the bladder at the same time the pelvic floor relaxes to allow this to happen. If your pelvic floor can't relax fully clearly your bladder isn't going to empty properly and the urine left in there is in her words "like stagnant pond water and a breeding ground for infections to take hold" so she recommends women with tight PF muscles and UTIs do double voiding which is basically exactly what it sounds like and go once until your brain thinks your bladder is empty followed by waiting a couple of minutes either in place or move around a bit then try again to see if there's more in there. Do this every time you pee to make sure nothing gets left behind to help infections take hold and especially after sex. I do the double voiding (and triple voiding if I can still feel some urine in there) and I always have some left after my brain is convinced I have an empty bladder. My PF is brutal and feels like wood because of another health condition so my physio is looking into trying to get me a device that vibrates and you hold it over the bladder every so often to stimulate the bladder to empty, patients with MS sometimes use them for this reason so if she does manage to acquire one for me I'll update with results but definitely try the double voiding routine to see if it helps.
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UTI's

Post  Rainy Day on Sat Sep 01, 2012 6:17 pm

I used to get UTI's every time I had sex too. I finally stopped them by drinking at least 16 oz of water immediately afterwards. And, I never have sex before going to bed. Unfortunately, I got lazy on this in Feb, and that's when I got a UTI again (and the dreaded V).

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Cystitis/UTI

Post  Sunflower82 on Sun Sep 02, 2012 12:38 pm

Hi,

Thanks for both responses, all ready doing both of these, yeah I also have problems with not always being able to empty my bladder something physio has helped me with, but still stuck with infections, generally 24 hours after sex I will have cystitis, or recently within half an hour the frequency goes up, need to go every15-20 mins. Doesn't burn as much during sex or after sex used to burn for hours anywhere between 3-6 hours. During sex I get a slightly burning sensation and a stretching sensation. Then we have to give up. Still working on the dilators, problem is once I have an infection even doing the dilators are out of the question, I told my doctor this and she responded well u shouldn't have to stop using the dialators because you have an infection!! At which point I wanted to shout at her!
I find if I use the dialators regularly this helps when it comes to trying sex, however I find I need to do it everyday and then having infection I seem to go back to square one, so frustrating, but I am sure everyone can see where I'm coming from.

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Re: Cystitis/UTI

Post  Sarah001 on Sun Sep 02, 2012 1:47 pm

I have the same issue, if I don't clench for a while then get a UTI I clench like crazy because of the irritation and no you shouldn't use dilators with an infection present stupid doctor! Evil or Very Mad It may be that you're still retaining urine without knowing it, an ultrasound can tell you this and you have one with a full bladder then pee and have a repeat one to see what's still in there, apparently 100ml is normal but over that isn't according to my physio. I'll be having one soon if my frequent UTIs continue. Do you use lube? Anything oil based can allow bacteria to cling to it and help it into the urethra so if you use oil based probably shouldn't however water based ones can do it with me too so it's not foolproof.
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Cystitis/UTI

Post  Sunflower82 on Sun Sep 02, 2012 9:03 pm

Hi,
Thanks for the message about lube, never knew that used to use oil based but generally now used water based.

Thanks kt

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Re: Cystitis/UTI

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