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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Cystitis/UTI

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Cystitis/UTI

Post  Sunflower82 on Sat Sep 01, 2012 8:22 am

Hi,
I have been diagnosed with vulvodynia, I am currently taking antidepressants and have been seeing a women's health physio over the last year, and have also seen a chiroprator. The problem is I get cystitis or UTI everytime we try to have sex, due to the pain this doesn't happen very often twice a month, and really doesn't last that long before we have to stop. I follow all the rules wash and wee before and wash and wee after. I've tried water d mannose powder but it hasn't work for me. Doctors are useless as their answer is long term antibotics, or to take one antibotic after sex which I really don't want to do! Just wondering if anyone else can offer advice.


Many thanks

Kt

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Re: Cystitis/UTI

Post  Sarah001 on Sat Sep 01, 2012 12:38 pm

I'm not sexually active right now but I have started getting repeated UTIs, it's got to the stage where I get one every other month at least and the last one went to my kidneys and made me really, really ill so I asked my Women's Health Physio about this and she explained if your pelvic floor is tight (mine is horrendous) it inhibits the detrusor muscle which should contract to empty the bladder at the same time the pelvic floor relaxes to allow this to happen. If your pelvic floor can't relax fully clearly your bladder isn't going to empty properly and the urine left in there is in her words "like stagnant pond water and a breeding ground for infections to take hold" so she recommends women with tight PF muscles and UTIs do double voiding which is basically exactly what it sounds like and go once until your brain thinks your bladder is empty followed by waiting a couple of minutes either in place or move around a bit then try again to see if there's more in there. Do this every time you pee to make sure nothing gets left behind to help infections take hold and especially after sex. I do the double voiding (and triple voiding if I can still feel some urine in there) and I always have some left after my brain is convinced I have an empty bladder. My PF is brutal and feels like wood because of another health condition so my physio is looking into trying to get me a device that vibrates and you hold it over the bladder every so often to stimulate the bladder to empty, patients with MS sometimes use them for this reason so if she does manage to acquire one for me I'll update with results but definitely try the double voiding routine to see if it helps.
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UTI's

Post  Rainy Day on Sat Sep 01, 2012 6:17 pm

I used to get UTI's every time I had sex too. I finally stopped them by drinking at least 16 oz of water immediately afterwards. And, I never have sex before going to bed. Unfortunately, I got lazy on this in Feb, and that's when I got a UTI again (and the dreaded V).

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Cystitis/UTI

Post  Sunflower82 on Sun Sep 02, 2012 12:38 pm

Hi,

Thanks for both responses, all ready doing both of these, yeah I also have problems with not always being able to empty my bladder something physio has helped me with, but still stuck with infections, generally 24 hours after sex I will have cystitis, or recently within half an hour the frequency goes up, need to go every15-20 mins. Doesn't burn as much during sex or after sex used to burn for hours anywhere between 3-6 hours. During sex I get a slightly burning sensation and a stretching sensation. Then we have to give up. Still working on the dilators, problem is once I have an infection even doing the dilators are out of the question, I told my doctor this and she responded well u shouldn't have to stop using the dialators because you have an infection!! At which point I wanted to shout at her!
I find if I use the dialators regularly this helps when it comes to trying sex, however I find I need to do it everyday and then having infection I seem to go back to square one, so frustrating, but I am sure everyone can see where I'm coming from.

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Re: Cystitis/UTI

Post  Sarah001 on Sun Sep 02, 2012 1:47 pm

I have the same issue, if I don't clench for a while then get a UTI I clench like crazy because of the irritation and no you shouldn't use dilators with an infection present stupid doctor! Evil or Very Mad It may be that you're still retaining urine without knowing it, an ultrasound can tell you this and you have one with a full bladder then pee and have a repeat one to see what's still in there, apparently 100ml is normal but over that isn't according to my physio. I'll be having one soon if my frequent UTIs continue. Do you use lube? Anything oil based can allow bacteria to cling to it and help it into the urethra so if you use oil based probably shouldn't however water based ones can do it with me too so it's not foolproof.
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Cystitis/UTI

Post  Sunflower82 on Sun Sep 02, 2012 9:03 pm

Hi,
Thanks for the message about lube, never knew that used to use oil based but generally now used water based.

Thanks kt

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Re: Cystitis/UTI

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