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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Cystitis/UTI

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Cystitis/UTI

Post  Sunflower82 on Sat Sep 01, 2012 8:22 am

Hi,
I have been diagnosed with vulvodynia, I am currently taking antidepressants and have been seeing a women's health physio over the last year, and have also seen a chiroprator. The problem is I get cystitis or UTI everytime we try to have sex, due to the pain this doesn't happen very often twice a month, and really doesn't last that long before we have to stop. I follow all the rules wash and wee before and wash and wee after. I've tried water d mannose powder but it hasn't work for me. Doctors are useless as their answer is long term antibotics, or to take one antibotic after sex which I really don't want to do! Just wondering if anyone else can offer advice.


Many thanks

Kt

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Re: Cystitis/UTI

Post  Sarah001 on Sat Sep 01, 2012 12:38 pm

I'm not sexually active right now but I have started getting repeated UTIs, it's got to the stage where I get one every other month at least and the last one went to my kidneys and made me really, really ill so I asked my Women's Health Physio about this and she explained if your pelvic floor is tight (mine is horrendous) it inhibits the detrusor muscle which should contract to empty the bladder at the same time the pelvic floor relaxes to allow this to happen. If your pelvic floor can't relax fully clearly your bladder isn't going to empty properly and the urine left in there is in her words "like stagnant pond water and a breeding ground for infections to take hold" so she recommends women with tight PF muscles and UTIs do double voiding which is basically exactly what it sounds like and go once until your brain thinks your bladder is empty followed by waiting a couple of minutes either in place or move around a bit then try again to see if there's more in there. Do this every time you pee to make sure nothing gets left behind to help infections take hold and especially after sex. I do the double voiding (and triple voiding if I can still feel some urine in there) and I always have some left after my brain is convinced I have an empty bladder. My PF is brutal and feels like wood because of another health condition so my physio is looking into trying to get me a device that vibrates and you hold it over the bladder every so often to stimulate the bladder to empty, patients with MS sometimes use them for this reason so if she does manage to acquire one for me I'll update with results but definitely try the double voiding routine to see if it helps.
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UTI's

Post  Rainy Day on Sat Sep 01, 2012 6:17 pm

I used to get UTI's every time I had sex too. I finally stopped them by drinking at least 16 oz of water immediately afterwards. And, I never have sex before going to bed. Unfortunately, I got lazy on this in Feb, and that's when I got a UTI again (and the dreaded V).

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Cystitis/UTI

Post  Sunflower82 on Sun Sep 02, 2012 12:38 pm

Hi,

Thanks for both responses, all ready doing both of these, yeah I also have problems with not always being able to empty my bladder something physio has helped me with, but still stuck with infections, generally 24 hours after sex I will have cystitis, or recently within half an hour the frequency goes up, need to go every15-20 mins. Doesn't burn as much during sex or after sex used to burn for hours anywhere between 3-6 hours. During sex I get a slightly burning sensation and a stretching sensation. Then we have to give up. Still working on the dilators, problem is once I have an infection even doing the dilators are out of the question, I told my doctor this and she responded well u shouldn't have to stop using the dialators because you have an infection!! At which point I wanted to shout at her!
I find if I use the dialators regularly this helps when it comes to trying sex, however I find I need to do it everyday and then having infection I seem to go back to square one, so frustrating, but I am sure everyone can see where I'm coming from.

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Re: Cystitis/UTI

Post  Sarah001 on Sun Sep 02, 2012 1:47 pm

I have the same issue, if I don't clench for a while then get a UTI I clench like crazy because of the irritation and no you shouldn't use dilators with an infection present stupid doctor! Evil or Very Mad It may be that you're still retaining urine without knowing it, an ultrasound can tell you this and you have one with a full bladder then pee and have a repeat one to see what's still in there, apparently 100ml is normal but over that isn't according to my physio. I'll be having one soon if my frequent UTIs continue. Do you use lube? Anything oil based can allow bacteria to cling to it and help it into the urethra so if you use oil based probably shouldn't however water based ones can do it with me too so it's not foolproof.
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Cystitis/UTI

Post  Sunflower82 on Sun Sep 02, 2012 9:03 pm

Hi,
Thanks for the message about lube, never knew that used to use oil based but generally now used water based.

Thanks kt

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Re: Cystitis/UTI

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