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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


What works for us

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What works for us

Post  Parintachin on Tue Sep 04, 2012 9:29 am

Hey people.

I'm the happy new boyfriend of a vulvodynia sufferer; she's had the problems since a guy roughed her about 12 years ago, she's tried Everything from botox to surgery.

I just wanted to share my jubilation and tell you all what worked for us. I cannot say that it will work for everyone, or that it works every time for us, but it's just wonderful when it does.

Our remedy is surprisingly simple:
Take your time. Build trust, be romantic, soft talks, music, love, great food, a thousand caresses and soft kisses, massage, letting her take initiative when she's bloody well good and ready, and most of all: No. Rushing. It.

I'm posting this in the hope that it will be in some way helpful for even One other sufferer; it seems so wrong to me that what should be so much joy hurts so much.

Parintachin

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Re: What works for us

Post  punkyb13 on Fri Oct 05, 2012 4:45 am

This is very sweet. I'm wondering though, don't you ever get frustrated or mad that you aren't having sex? It seems to me that people who have sex drives and like sex get angry when they can't have it - even if they love their partner and are being understanding. Do you do anything to supress your libido, or satisfy it elsewhere?

punkyb13

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Re: What works for us

Post  Parintachin on Fri Oct 05, 2012 8:09 am

Oh, but you misunderstand: We solved the problem.

For us, for her. Unfortunately, this will probably not work for everyone.

But given enough romance, love, time and trust, it simply doesn't hurt her.
She sometimes complains of being a little tender if I push her too fast, but nothing like the excruciating pains she's used to.

And it's been remarkably swift; in the beginning, sex took something like three hours; just slowly building up to the point where she could relax.
Now, just a month later, we can be much faster if we want to; but taking the time to do things right is great (o:

And no, I don't get mad.
I'm not sure I Could be mad at her; we solve our differences thru talking them out, filling out the voids between us with love, patience and understanding.
All I really want is for us both to be happy.

And I would love for someone else to take this story, find the right kind of loving patient person, and get her problem solved too.
Because life, love, and sex is and should be, wonderful.

Parintachin

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Re: What works for us

Post  mary jane on Sat Oct 05, 2013 6:51 pm

wow,
she is so lucky to have found you.
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mary jane

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Re: What works for us

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