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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


What works for us

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What works for us

Post  Parintachin on Tue Sep 04, 2012 9:29 am

Hey people.

I'm the happy new boyfriend of a vulvodynia sufferer; she's had the problems since a guy roughed her about 12 years ago, she's tried Everything from botox to surgery.

I just wanted to share my jubilation and tell you all what worked for us. I cannot say that it will work for everyone, or that it works every time for us, but it's just wonderful when it does.

Our remedy is surprisingly simple:
Take your time. Build trust, be romantic, soft talks, music, love, great food, a thousand caresses and soft kisses, massage, letting her take initiative when she's bloody well good and ready, and most of all: No. Rushing. It.

I'm posting this in the hope that it will be in some way helpful for even One other sufferer; it seems so wrong to me that what should be so much joy hurts so much.

Parintachin

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Re: What works for us

Post  punkyb13 on Fri Oct 05, 2012 4:45 am

This is very sweet. I'm wondering though, don't you ever get frustrated or mad that you aren't having sex? It seems to me that people who have sex drives and like sex get angry when they can't have it - even if they love their partner and are being understanding. Do you do anything to supress your libido, or satisfy it elsewhere?

punkyb13

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Re: What works for us

Post  Parintachin on Fri Oct 05, 2012 8:09 am

Oh, but you misunderstand: We solved the problem.

For us, for her. Unfortunately, this will probably not work for everyone.

But given enough romance, love, time and trust, it simply doesn't hurt her.
She sometimes complains of being a little tender if I push her too fast, but nothing like the excruciating pains she's used to.

And it's been remarkably swift; in the beginning, sex took something like three hours; just slowly building up to the point where she could relax.
Now, just a month later, we can be much faster if we want to; but taking the time to do things right is great (o:

And no, I don't get mad.
I'm not sure I Could be mad at her; we solve our differences thru talking them out, filling out the voids between us with love, patience and understanding.
All I really want is for us both to be happy.

And I would love for someone else to take this story, find the right kind of loving patient person, and get her problem solved too.
Because life, love, and sex is and should be, wonderful.

Parintachin

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Re: What works for us

Post  mary jane on Sat Oct 05, 2013 6:51 pm

wow,
she is so lucky to have found you.
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mary jane

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Re: What works for us

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