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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


What works for us

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What works for us

Post  Parintachin on Tue Sep 04, 2012 9:29 am

Hey people.

I'm the happy new boyfriend of a vulvodynia sufferer; she's had the problems since a guy roughed her about 12 years ago, she's tried Everything from botox to surgery.

I just wanted to share my jubilation and tell you all what worked for us. I cannot say that it will work for everyone, or that it works every time for us, but it's just wonderful when it does.

Our remedy is surprisingly simple:
Take your time. Build trust, be romantic, soft talks, music, love, great food, a thousand caresses and soft kisses, massage, letting her take initiative when she's bloody well good and ready, and most of all: No. Rushing. It.

I'm posting this in the hope that it will be in some way helpful for even One other sufferer; it seems so wrong to me that what should be so much joy hurts so much.

Parintachin

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Re: What works for us

Post  punkyb13 on Fri Oct 05, 2012 4:45 am

This is very sweet. I'm wondering though, don't you ever get frustrated or mad that you aren't having sex? It seems to me that people who have sex drives and like sex get angry when they can't have it - even if they love their partner and are being understanding. Do you do anything to supress your libido, or satisfy it elsewhere?

punkyb13

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Re: What works for us

Post  Parintachin on Fri Oct 05, 2012 8:09 am

Oh, but you misunderstand: We solved the problem.

For us, for her. Unfortunately, this will probably not work for everyone.

But given enough romance, love, time and trust, it simply doesn't hurt her.
She sometimes complains of being a little tender if I push her too fast, but nothing like the excruciating pains she's used to.

And it's been remarkably swift; in the beginning, sex took something like three hours; just slowly building up to the point where she could relax.
Now, just a month later, we can be much faster if we want to; but taking the time to do things right is great (o:

And no, I don't get mad.
I'm not sure I Could be mad at her; we solve our differences thru talking them out, filling out the voids between us with love, patience and understanding.
All I really want is for us both to be happy.

And I would love for someone else to take this story, find the right kind of loving patient person, and get her problem solved too.
Because life, love, and sex is and should be, wonderful.

Parintachin

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Re: What works for us

Post  mary jane on Sat Oct 05, 2013 6:51 pm

wow,
she is so lucky to have found you.
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mary jane

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Re: What works for us

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