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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

7 years - finally pain free!

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7 years - finally pain free!

Post  bookathlete on Thu Sep 06, 2012 2:47 am

Who knew that an episode of "Sex and the City" would change my life.

Backstory: I have had intense itching and burning on my right labia for 7 years. It stated happening shortly after I gave birth to my 2nd baby. He was 9 lbs 12 oz and the birth was natural. I had never had a yeast infection or UTI so I had no idea what was going on. I started the Dr. circut with ample Rxs given for Diflucan, etc. I was misdiagnosed with yeast, BV, UTIs and was given 2 biopsies. I saw four different doctors and not one had a solution. I lived in pain and in silence this entire time and it was horrible. I scoured the internet and vulvodynia never crossed my mind. I was looking for more of a skin condition b/c I didn't have pain with sex or riding a bike, etc. I was SURE that I had vulvar cancer or something equally awful.

Honestly this had (has?) been going on since June of 2005. Yes, 2005.

Then, this summer I was watching an episode of "Sex and the City" and Charlotte gets diagnosed with Vulvodynia. Her symptoms were mine! I looked online and my jaw hit the floor. Why was I looking for skin disorders all of this time?!?!?

I did some research and the following worked for me:
I totally eliminated anything that contains citric acid from my diet. That alone made a difference in 3 days. Seriously. Read the labels of everything that you put in your mouth. No more soda, Crystal Light, citrus fruit, and many packaged foods including yogurt. The other thing that I did was start taking 2-3 antacids every night before dinner.

Lastly, I started talking about it. I confided in three best friends and it lifted such a burden.

I have not scratched or felt the zinging pain in over 3 weeks. I spoke with a friend from college who is an OB/GYN and shared with her my journey this last weekend. She told me that doctors are somewhat ignorant to Vulvodynia and that we as women need to help one another and to support one another. She said that mine was most likely caused by childbirth. I had two large babies (both over 9 lbs) and the 2nd one took over 90 minutes to push out. She explained that there is nerve damage caused by the birth, resulting in the nerves firing off signals under stress or contact. I shared with her that it was worse at night (after sex or wearing hot sweat pants) or after commuting home with heated seats in the winter wearing pants.

I share my story because I hope that it helps someone out there. I felt so alone for the past seven years and I cannot tell you how relieved I feel to not only put a name to this horrible affliction but to also feel physical relief. If you have any question please feel free to ask; I wish all of you the best of health and happiness.

Thank God for reruns eh?


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Join date : 2012-09-06

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