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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

7 years - finally pain free!

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7 years - finally pain free!

Post  bookathlete on Thu Sep 06, 2012 2:47 am

Who knew that an episode of "Sex and the City" would change my life.

Backstory: I have had intense itching and burning on my right labia for 7 years. It stated happening shortly after I gave birth to my 2nd baby. He was 9 lbs 12 oz and the birth was natural. I had never had a yeast infection or UTI so I had no idea what was going on. I started the Dr. circut with ample Rxs given for Diflucan, etc. I was misdiagnosed with yeast, BV, UTIs and was given 2 biopsies. I saw four different doctors and not one had a solution. I lived in pain and in silence this entire time and it was horrible. I scoured the internet and vulvodynia never crossed my mind. I was looking for more of a skin condition b/c I didn't have pain with sex or riding a bike, etc. I was SURE that I had vulvar cancer or something equally awful.

Honestly this had (has?) been going on since June of 2005. Yes, 2005.

Then, this summer I was watching an episode of "Sex and the City" and Charlotte gets diagnosed with Vulvodynia. Her symptoms were mine! I looked online and my jaw hit the floor. Why was I looking for skin disorders all of this time?!?!?

I did some research and the following worked for me:
I totally eliminated anything that contains citric acid from my diet. That alone made a difference in 3 days. Seriously. Read the labels of everything that you put in your mouth. No more soda, Crystal Light, citrus fruit, and many packaged foods including yogurt. The other thing that I did was start taking 2-3 antacids every night before dinner.

Lastly, I started talking about it. I confided in three best friends and it lifted such a burden.

I have not scratched or felt the zinging pain in over 3 weeks. I spoke with a friend from college who is an OB/GYN and shared with her my journey this last weekend. She told me that doctors are somewhat ignorant to Vulvodynia and that we as women need to help one another and to support one another. She said that mine was most likely caused by childbirth. I had two large babies (both over 9 lbs) and the 2nd one took over 90 minutes to push out. She explained that there is nerve damage caused by the birth, resulting in the nerves firing off signals under stress or contact. I shared with her that it was worse at night (after sex or wearing hot sweat pants) or after commuting home with heated seats in the winter wearing pants.

I share my story because I hope that it helps someone out there. I felt so alone for the past seven years and I cannot tell you how relieved I feel to not only put a name to this horrible affliction but to also feel physical relief. If you have any question please feel free to ask; I wish all of you the best of health and happiness.

Thank God for reruns eh?


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