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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


7 years - finally pain free!

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7 years - finally pain free!

Post  bookathlete on Thu Sep 06, 2012 2:47 am

Who knew that an episode of "Sex and the City" would change my life.

Backstory: I have had intense itching and burning on my right labia for 7 years. It stated happening shortly after I gave birth to my 2nd baby. He was 9 lbs 12 oz and the birth was natural. I had never had a yeast infection or UTI so I had no idea what was going on. I started the Dr. circut with ample Rxs given for Diflucan, etc. I was misdiagnosed with yeast, BV, UTIs and was given 2 biopsies. I saw four different doctors and not one had a solution. I lived in pain and in silence this entire time and it was horrible. I scoured the internet and vulvodynia never crossed my mind. I was looking for more of a skin condition b/c I didn't have pain with sex or riding a bike, etc. I was SURE that I had vulvar cancer or something equally awful.

Honestly this had (has?) been going on since June of 2005. Yes, 2005.

Then, this summer I was watching an episode of "Sex and the City" and Charlotte gets diagnosed with Vulvodynia. Her symptoms were mine! I looked online and my jaw hit the floor. Why was I looking for skin disorders all of this time?!?!?

I did some research and the following worked for me:
I totally eliminated anything that contains citric acid from my diet. That alone made a difference in 3 days. Seriously. Read the labels of everything that you put in your mouth. No more soda, Crystal Light, citrus fruit, and many packaged foods including yogurt. The other thing that I did was start taking 2-3 antacids every night before dinner.

Lastly, I started talking about it. I confided in three best friends and it lifted such a burden.

I have not scratched or felt the zinging pain in over 3 weeks. I spoke with a friend from college who is an OB/GYN and shared with her my journey this last weekend. She told me that doctors are somewhat ignorant to Vulvodynia and that we as women need to help one another and to support one another. She said that mine was most likely caused by childbirth. I had two large babies (both over 9 lbs) and the 2nd one took over 90 minutes to push out. She explained that there is nerve damage caused by the birth, resulting in the nerves firing off signals under stress or contact. I shared with her that it was worse at night (after sex or wearing hot sweat pants) or after commuting home with heated seats in the winter wearing pants.

I share my story because I hope that it helps someone out there. I felt so alone for the past seven years and I cannot tell you how relieved I feel to not only put a name to this horrible affliction but to also feel physical relief. If you have any question please feel free to ask; I wish all of you the best of health and happiness.

Thank God for reruns eh?

bookathlete

Posts : 1
Join date : 2012-09-06

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