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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


7 years - finally pain free!

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7 years - finally pain free!

Post  bookathlete on Thu Sep 06, 2012 2:47 am

Who knew that an episode of "Sex and the City" would change my life.

Backstory: I have had intense itching and burning on my right labia for 7 years. It stated happening shortly after I gave birth to my 2nd baby. He was 9 lbs 12 oz and the birth was natural. I had never had a yeast infection or UTI so I had no idea what was going on. I started the Dr. circut with ample Rxs given for Diflucan, etc. I was misdiagnosed with yeast, BV, UTIs and was given 2 biopsies. I saw four different doctors and not one had a solution. I lived in pain and in silence this entire time and it was horrible. I scoured the internet and vulvodynia never crossed my mind. I was looking for more of a skin condition b/c I didn't have pain with sex or riding a bike, etc. I was SURE that I had vulvar cancer or something equally awful.

Honestly this had (has?) been going on since June of 2005. Yes, 2005.

Then, this summer I was watching an episode of "Sex and the City" and Charlotte gets diagnosed with Vulvodynia. Her symptoms were mine! I looked online and my jaw hit the floor. Why was I looking for skin disorders all of this time?!?!?

I did some research and the following worked for me:
I totally eliminated anything that contains citric acid from my diet. That alone made a difference in 3 days. Seriously. Read the labels of everything that you put in your mouth. No more soda, Crystal Light, citrus fruit, and many packaged foods including yogurt. The other thing that I did was start taking 2-3 antacids every night before dinner.

Lastly, I started talking about it. I confided in three best friends and it lifted such a burden.

I have not scratched or felt the zinging pain in over 3 weeks. I spoke with a friend from college who is an OB/GYN and shared with her my journey this last weekend. She told me that doctors are somewhat ignorant to Vulvodynia and that we as women need to help one another and to support one another. She said that mine was most likely caused by childbirth. I had two large babies (both over 9 lbs) and the 2nd one took over 90 minutes to push out. She explained that there is nerve damage caused by the birth, resulting in the nerves firing off signals under stress or contact. I shared with her that it was worse at night (after sex or wearing hot sweat pants) or after commuting home with heated seats in the winter wearing pants.

I share my story because I hope that it helps someone out there. I felt so alone for the past seven years and I cannot tell you how relieved I feel to not only put a name to this horrible affliction but to also feel physical relief. If you have any question please feel free to ask; I wish all of you the best of health and happiness.

Thank God for reruns eh?

bookathlete

Posts : 1
Join date : 2012-09-06

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