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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

7 years - finally pain free!

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7 years - finally pain free!

Post  bookathlete on Thu Sep 06, 2012 2:47 am

Who knew that an episode of "Sex and the City" would change my life.

Backstory: I have had intense itching and burning on my right labia for 7 years. It stated happening shortly after I gave birth to my 2nd baby. He was 9 lbs 12 oz and the birth was natural. I had never had a yeast infection or UTI so I had no idea what was going on. I started the Dr. circut with ample Rxs given for Diflucan, etc. I was misdiagnosed with yeast, BV, UTIs and was given 2 biopsies. I saw four different doctors and not one had a solution. I lived in pain and in silence this entire time and it was horrible. I scoured the internet and vulvodynia never crossed my mind. I was looking for more of a skin condition b/c I didn't have pain with sex or riding a bike, etc. I was SURE that I had vulvar cancer or something equally awful.

Honestly this had (has?) been going on since June of 2005. Yes, 2005.

Then, this summer I was watching an episode of "Sex and the City" and Charlotte gets diagnosed with Vulvodynia. Her symptoms were mine! I looked online and my jaw hit the floor. Why was I looking for skin disorders all of this time?!?!?

I did some research and the following worked for me:
I totally eliminated anything that contains citric acid from my diet. That alone made a difference in 3 days. Seriously. Read the labels of everything that you put in your mouth. No more soda, Crystal Light, citrus fruit, and many packaged foods including yogurt. The other thing that I did was start taking 2-3 antacids every night before dinner.

Lastly, I started talking about it. I confided in three best friends and it lifted such a burden.

I have not scratched or felt the zinging pain in over 3 weeks. I spoke with a friend from college who is an OB/GYN and shared with her my journey this last weekend. She told me that doctors are somewhat ignorant to Vulvodynia and that we as women need to help one another and to support one another. She said that mine was most likely caused by childbirth. I had two large babies (both over 9 lbs) and the 2nd one took over 90 minutes to push out. She explained that there is nerve damage caused by the birth, resulting in the nerves firing off signals under stress or contact. I shared with her that it was worse at night (after sex or wearing hot sweat pants) or after commuting home with heated seats in the winter wearing pants.

I share my story because I hope that it helps someone out there. I felt so alone for the past seven years and I cannot tell you how relieved I feel to not only put a name to this horrible affliction but to also feel physical relief. If you have any question please feel free to ask; I wish all of you the best of health and happiness.

Thank God for reruns eh?


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