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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


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Post  Rainy Day on Sat Sep 08, 2012 10:03 pm

I saw a commercial for how you can wax it all off yourself and it won't ever grow back. I am so desparate I almost ordered a case of it Smile. Isn't there a pill to take that will get rid of it forever? Can't I pluck it out piece by piece? Smile UGH UGH UGH UGH. Where it hits my thighs sends me through the roof. I would prefer to walk super bull-legged so the legs don't touch. Sorry, had to get that off my chest.

Rainy Day

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Shaved Kitty

Post  lavrose on Sun Sep 09, 2012 8:54 pm

Well I dont shave my kitty, (heck no!!!) as it causes me to be even more prone to yeast and vaginal infections, I just trim it down, and shave the sides so I look good in a bathing suit. Ive gone as far as a landing strip but a wide one (lol!!).

Guys criticize me over this but who cares!!! NOBODY shaved back in the olden days and no one cares, if someone is really into you, they wont really care, right??

Dont get me wrong, a shaved kitty is Hot, and I dont know how other women do it (then again, I dunno how a women can have sex 3 times a day, everyday, as my kitty would be so sore Embarassed Sad ),
but I just cant do it. Ive got too many problems, plus Im half Jewish and I have really thick hair, so its a pain, when I DID shave, and it was tryin to grow back, it would like chafe me, and it was very uncomfortable and I was aware of it all the time.

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Chemical hair removal

Post  lavrose on Sun Sep 09, 2012 8:56 pm

Dont do that!! My daughters father put nair on his public area, and it didnt grow back for 2 years, and it was red and sore for 6 months, he gave himself a chemical burn!!!

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Post  JemimaSurrender on Mon Sep 10, 2012 1:13 pm

I always hated mine. I have olive coloured skin and the blackest of black hair which always seemed massively thick!

I used to shave it all off, or sometimes leave a strip, but it would start to grow back the very next day so it was only smooth for one night, and it was so painful and sore when it came back through. Why on Earth there isn't a shaving relief cream for women is beyond me.

Anyway, I went from that to waxing. It was quite expensive but lasted a lot longer and was sooo smooooooth afterwards.

I got fed up of that eventually too though. The idea of having to go through all that hassle for the rest of my life drove me insane. I wanted to look nice in cute knickers and not worry about if there's any hair there or not.

So... Now I've had laser hair removal. I'd looked at it and researched it for months but knew I'd never be able to afford it. It was £190 per session, and you have to have 6-8 sessions 6 weeks apart. How crazy!

Fortunately they had an offer on so now I've been able to afford it. I'm two sessions in and I've hardly got any hair growth at all already. I'd definitely recommend it in an instant. And if you're going to go down the permanent route then I'd got for that instead of anything you can get in the shops. It's a sensitive area and you don't want to mess up your hair for life. You could end up all patchy!

I hope this is of use, and gooood luck!


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Pubic hair

Post  Rainy Day on Mon Sep 10, 2012 8:47 pm

I just did a horrible thing...I ended up shaving it since it was driving me so nuts. Ugh...the pain with it growing back is excruciating. Has anyone else done something this stupid? And, how long of a flare did it create? I slept about 20 min last night. And, I have red bumps down there now. This crap never ends.

Rainy Day

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I need a head count! How many girls hate their pubic hair

Post  Sunflower82 on Tue Sep 11, 2012 6:30 am

Yep, I am one of those people! Not really discussed with anyone before. I have always tried to keep it nice a tidy, I use trimmers to keep it short. Which I have been doing for years with v and was never a problem untill the last year as my v symptoms got worse this became a nightmare. Problem is as it no longer looks tidy I always end up by doing it again, then I regret it as it itches like mad, walking down the street with the urge to scratch of all my skin. So would love to get rid of it all.



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Post  kylrzz on Wed Oct 31, 2012 7:01 am

Laser hair removal treatment is the best thing if you want a hair less and smooth skin. it works by acting inside the dermis layer of skin so the results are very long-lasting. Its also safe and very comfortable.


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