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» 7 months since the diagnosis
Overall top 20 posters EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Overall top 20 posters EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Overall top 20 posters EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Overall top 20 posters EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Overall top 20 posters EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Overall top 20 posters EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Overall top 20 posters EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Overall top 20 posters EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Overall top 20 posters EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Current date/time is Sat Sep 21, 2019 5:09 am

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#Avatar - UsernameHumorJoin dateLast visitPostsPMWebsite
 1 Sarah001 Sarah0012010-06-11unknown1164    
 2 avatar Alana32012-09-25Sun Aug 12, 2018 6:19 pm1093    
 3 Sebby (Admin) Sebby (Admin)2009-12-03Wed Oct 10, 2018 9:23 am750   https://vulvodyniasupport.forumotion.net 
 4 mary jane mary jane2013-10-05Thu Jul 04, 2019 8:09 pm345    
 5 avatar MouseMost of the time2010-09-09Wed Feb 29, 2012 11:17 pm303    
 6 tinkerbelle2 tinkerbelle22013-09-28Sun Sep 17, 2017 7:31 pm302    
 7 naomi naomitry to have one but with this condition it is a struggle!2010-04-09Thu May 31, 2018 11:00 pm262    
 8 avatar emalita2016-03-29unknown249    
 9 noni nonii luv nerds2011-01-10Fri Feb 17, 2012 11:39 pm242    
 10 avatar Aussie2011-03-15Wed Jun 20, 2018 5:37 am230    
 11 avatar jules2010-03-17Sat Oct 06, 2012 6:10 pm225    
 12 sailor_moon sailor_moon2014-07-06Mon Oct 31, 2016 10:02 am222    
 13 avatar PainBlogger2015-07-27Fri Jan 26, 2018 8:03 am219    
 14 BpCookie BpCookieYou gotta have a sense of humor when your dealing with this.2012-01-25Sat May 05, 2018 4:26 pm209    
 15 avatar zarli2013-08-11Sun Dec 21, 2014 12:52 pm182    
 16 avatar jen0072012-11-05Fri Mar 01, 2019 2:36 am152    
 17 lavrose lavrose2012-04-28Sat Feb 24, 2018 2:52 am152    
 18 ButterflyLiz ButterflyLiz2011-11-18unknown137    
 19 avatar meelie2013-01-09Tue Aug 30, 2016 6:47 pm136    
 20 avatar Zbrown2014-02-26Sun Nov 19, 2017 10:29 am131