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» 7 months since the diagnosis
Vulvodynia and living on NO-SPA Forte EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vulvodynia and living on NO-SPA Forte EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vulvodynia and living on NO-SPA Forte EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vulvodynia and living on NO-SPA Forte EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vulvodynia and living on NO-SPA Forte EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Vulvodynia and living on NO-SPA Forte EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Vulvodynia and living on NO-SPA Forte EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Vulvodynia and living on NO-SPA Forte EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Vulvodynia and living on NO-SPA Forte EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vulvodynia and living on NO-SPA Forte

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Post  maria1985 on Thu Oct 18, 2012 10:26 am

Hello everyone,
My name is Maria and I'm 27 yrs
old. For about 18 months now I have been suffered with this major discomfort down below for which the doctors did not yet find a cause. Nothing comes up on the urine tests they have perform, even though, it all started after a bad UTI session for which i have been treated with 3 diferent antibiotics which unfortunatelly did not cure me 100% and also gave me THRUSH.

I have been going back to my GP and for my dissapointment I have been adviced to "DRINK MORE WATER" and so I did (needless to mention im a romanian national living in UK for around the same period of time this horrible condition started). I have been gulping on litres of water and over the counter cystitis remedies leading me basically nowhere. Everytime i went back to the doctors they yet again went through urine test revealing nothing and so again the old story i needed to drink more water. They went throught blood tests (i have been unlucky to encounter a nurse who couldnt take blood so she made me jump and run and stung me with the needle unsuccesfully 6 times, being then sent home to of course what else but drinking more water as i obviously been dehidrated and thats the reason she couldnt substract blood.) Blood test came back and revealed no abnormality however, the discomfort was still there. Kidney scans been ordered and again nothing been found (needless to say they forgot to refer me and so i have been waiting 12 weeks for my scans.)

Meanwhile, engaged and not being able to get intimate with my fiancee, not being able to find a job as i did not yet have a work permit, my world started to colapse. There have been nights i had to spend in the hot tub for anything else wouldnt not calm the spasms and shots of pains i experienced and what made it works i couldnt put my finger on where they were coming from. I had a slight burning sensation when urination however was raw senation when trying intercourse. After using tampons for more than 10 years i had to go back to pads, which i hate.

Long story short (even though its too late) I have gone back to Romania to visit my parents and so i have seen this advert at TV for the NO-SPA tablets for spasms of the smooth muscles and urinary tract conditions and so I decided to try it. I paid around 4 US dollars on 20 tablets of NO-SPA FORTE 80 mg and I have to say that is god's gift to women suffering with any urinary of vaginal discomfort and its safe. They give it to pregnat women to calm the spasms and avoid miscarriage and also for gastritis. How it works? It totally numbs everything down below and life is back to normal. I have been taking it for about 1 year now and I can pretend my life is normal.

Now i decided to go back to doctors to investigate more and my new GP mention for the first time vulvodynia. As far as i was concerned i self diagnosed myself with interstitial cystitis and so I was getting information from the interstitial cystitis forum. The truth is both conditions have similarities. My GP said "Dont worry there are treatments nowadays, they do botox shots in the vulva and completely relieve the discomfort". She refered me to a gyno-urologist. I have hope now even thought NO-SPA ofered me a normal life.

If you have the chance try it.

I apologize for taking so much of your time,
Maria

maria1985

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Post  Kate1981 on Thu Oct 18, 2012 11:53 am

Hi Maria

Where can i get these tablets from? I am in the UK. I am willing to try anything. I like you have burning when urinating but its the vulva skin which burns not my urethra. Please keep updated with your progress x

Kate1981

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Vulvodynia and living on NO-SPA Forte Empty Hi Kate

Post  maria1985 on Thu Oct 18, 2012 12:09 pm

When i ran out of my tabs i found on ebay
Its polish made but works just as good. I usually chew on them for a rapid effect. They taste horribly bitter but 30 minutes later i have no discomfort whatsoever.

Goodluck

maria1985

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Post  Kate1981 on Thu Oct 18, 2012 12:34 pm

Thanks Maria I will have a look now on ebay for them x

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Vulvodynia and living on NO-SPA Forte Empty Meetings

Post  maria1985 on Thu Oct 18, 2012 12:45 pm

Hi,
Im back with a question. Do women on this forum ever gather together on meetings or such? It be nice to be able to discuss face to face about this condition.

thanks

maria1985

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Vulvodynia and living on NO-SPA Forte Empty if this helps buying no-spa

Post  maria1985 on Thu Oct 18, 2012 12:49 pm

rxpharmacy.md/pain-relief/brand-no-spa.html

maria1985

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Post  Kate1981 on Thu Oct 18, 2012 12:54 pm

Hi Maria

I think there are some support groups but I dont know where. Im near to Mancheter where are you?

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Vulvodynia and living on NO-SPA Forte Empty Hi Kate

Post  maria1985 on Thu Oct 18, 2012 12:56 pm

Im in Leeds. You're not that far away. If you ever come down to Leeds I could spare some No-spa so u can try Razz

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Post  Kate1981 on Thu Oct 18, 2012 1:15 pm

Hi Maria

Yeah I would definetly like to meet up with you. Im about 40 mins south of Manchester. What is your email? We can try and arrange something x

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Post  maria1985 on Thu Oct 18, 2012 1:18 pm

hi kate
Could you give me your email or messenger id as i dont want my familly to find out i have been silently suffered of this. they are already panicking im so far away from them.

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Post  maria1985 on Thu Oct 18, 2012 1:32 pm

let me know if you get my private message Kate

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Post  Kate1981 on Thu Oct 18, 2012 1:47 pm

My email is in my profile. If you can email me

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