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» 7 months since the diagnosis
Amitriptyline and Lycra EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Amitriptyline and Lycra EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Amitriptyline and Lycra EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Amitriptyline and Lycra EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Amitriptyline and Lycra EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Amitriptyline and Lycra EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Amitriptyline and Lycra EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Amitriptyline and Lycra EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Amitriptyline and Lycra EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Amitriptyline and Lycra

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Amitriptyline and Lycra Empty Amitriptyline and Lycra

Post  Kate1981 on Fri Oct 26, 2012 3:49 pm

Hello Everyone

I have just seen a fourth gyno this one being a vulva specialist. He has now prescribed me lycra to add to my ami of 40mg a day. Has anyone else taken both of these together? Im worried about the side effects of them. I already feel depressed and like a vegetable with ami but now with two drugs im worried!! My pain has decreased massively since taking ami it has gone from 10/10 to about 2-3/10 most days. Im still scared to have sex incase it sets it off again. The specialist is also sending me for some physio. Can this horrible condition ever go? Im so down going to lose my job and my house because I dont feel well enough to go back to work and my employer wont let me work with these drugs!! My doctor wont refer me to counciling and I really need someone to talk to. Fell like im losing it most days!

Kate1981

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Location : Manchester, UK

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Amitriptyline and Lycra Empty Lyrica with amitriptyline

Post  karris87 on Wed Dec 26, 2012 12:10 am

Hi there, I am on 50 mg of amitriptyline and 300 mg of Lyrica per day. ( I am in USA.)
First off, Lyrica is really good. If anyone out there is taking gabapentin, ask your doc if you can take Lyrica instead. They have to offer gabapentin first, is what my doctor told me, because Lyrica is on patent, but Lyrica is superior.

Secondly, Lyrica will make you sleep a lot. BUT I'm told this goes away. I have been on Lyrica for a little less than a month, and my sleepiness has definitely gone down. I have noticed muscle jerks though, when I'm lying down.

I'm also on Cymbalta, which is an SNRI. This is on patent, but it should probably work better than an SSRI, types of which are available off patent. Again, I think the doctor probably has to try SSRI first (which only deals with serotonin) before giving you the SNRI (which deals with serotonin and norepinephrine).

Try to avoid alcohol or other things that your liver has to metabolize, because it is busy with the drugs.



karris87

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