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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Shingles
4 posters
Page 1 of 1
Shingles
Hi all,
I'm new to this forum but was finally diagnosed with Vulvodynia a few months ago (after about 2 1/2 years of doctors visits).
I've never known what caused it, we moved house and my family dog died around the time I remember first noticing it (they say life events can cause it) but I've just been roaming the internet and found something saying it can be caused by shingles, now I've never had shingles but my husband has - although i can't remember when (im waiting for him to come home so i can ask) which i read can be spread through bodies via sexual contact. Is it possible my vulvodynia, which is really only around the entrance to my vagina upon penetration (and is bearable once sex gets going aslong as I can bear the pain to start with) was caused by my husbands shingles????
I don't know why but it's made me feel really emotional discovering this and I'm just wondering if anyone knows if this is possible?
Thanks,
H
I'm new to this forum but was finally diagnosed with Vulvodynia a few months ago (after about 2 1/2 years of doctors visits).
I've never known what caused it, we moved house and my family dog died around the time I remember first noticing it (they say life events can cause it) but I've just been roaming the internet and found something saying it can be caused by shingles, now I've never had shingles but my husband has - although i can't remember when (im waiting for him to come home so i can ask) which i read can be spread through bodies via sexual contact. Is it possible my vulvodynia, which is really only around the entrance to my vagina upon penetration (and is bearable once sex gets going aslong as I can bear the pain to start with) was caused by my husbands shingles????
I don't know why but it's made me feel really emotional discovering this and I'm just wondering if anyone knows if this is possible?
Thanks,
H
Hoping23- Posts : 9
Join date : 2010-08-26
Re: Shingles
wow i'm really not sure, but i'll have a look and see what I can find about it. welcome to the group
julia- Posts : 31
Join date : 2010-07-21
Re: Shingles
If it was caused by shingles you would have had to contract shingles initially and I'm sure you would have known if you had shingles so I don't think it's possible no. You actually sound like you have mild vulvar vestibulitis which I had for a while before it turned into full blown constant pain and soreness, not that it means yours will!
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
you might wanna look at this
http://www.herpes-coldsores.com/messageforum/showthread.php?18417-Vulvodynia..-or-3-month-long-outbreak-Please-help-ladies.
I do think there is a relation to herpes and VV
I have never tested positive for herpes (shingles is a form of HSV) but my ex had it
and its been years (7) since i had sex with him
but Im wondering if I did have an outbreak
I noticed my VV started around the time I got this tiny red dot and weird feelings down there.
so my GP put me on valtrex 500 mg a day once daily
to see if it helps
the red dot (or small sore) went away
and most of the burning
but the VV is still here and kind of mild/moderate
hopefully wont get worse
but it seems maybe
as herpes is totally nerve related
but check out that site with what one women thinks is what happens to her as she is diagnosed with HSV-1 genitally
yes you can get HSV-1 orally and genitally same with type 2
I do think there is a relation to herpes and VV
I have never tested positive for herpes (shingles is a form of HSV) but my ex had it
and its been years (7) since i had sex with him
but Im wondering if I did have an outbreak
I noticed my VV started around the time I got this tiny red dot and weird feelings down there.
so my GP put me on valtrex 500 mg a day once daily
to see if it helps
the red dot (or small sore) went away
and most of the burning
but the VV is still here and kind of mild/moderate
hopefully wont get worse
but it seems maybe
as herpes is totally nerve related
but check out that site with what one women thinks is what happens to her as she is diagnosed with HSV-1 genitally
yes you can get HSV-1 orally and genitally same with type 2
Melissa777- Posts : 55
Join date : 2011-07-10
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer