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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Just wana say..........
5 posters
Page 1 of 1
Just wana say..........
.........Luv you all!!
So glad I started this forum and met you lovely guys and gals...you lot have been my blessing within this cloud of pain..my silver lining...
*MWAH*
xxxx
Sebby
xxxx
Re: Just wana say..........
How much wine did you have?
I feel the same.
I feel the same.
jules- Posts : 225
Join date : 2010-03-17
Re: Just wana say..........
Yes, I'm really grateful I found this forum... It certainly helps to be able to just say whatever and know you'll understand. I think I would have lost it this yr without this outlet.
Hugs all round...
Sue
Hugs all round...
Sue
tweety- Posts : 71
Join date : 2010-03-14
Location : Melbourne
Re: Just wana say..........
xxxxxxxxxxxxXXXXXXXXXXXXXxxxxxxxxxxxxxxxxxxxxxxx hugs xxxxxxxxxxxxx
I just wana say.....
Can we start a thread where we just swear and let it all out?! but mark it as 'rating 18 yrs over and explicit material'?!
I know this sounds dead immature but tonight a threw a massive tantrum at my parents (im still staying with them month after month after YEAR! and 28 yr old)I lobbed my fav mug across the room (didnt smash it) and threw my laptop, turned the air more than blue with my swearing. All because of my frustration with this condition, the NHS, consultants not giving an obvious damn and passing the buck, private health'care', the government - all those Fcukers Im sooo not a violent person at all but it just builds up like a steam pressure cooker!!
You know what!...i look like Missy Piggy with my cried out puffy eyes, worn out (so ill sleep better tonight) but I feel like the tension inside me has reduced slightly. not a perm' solution but its helped (not with my parents crockery situation as ive smashed 3 plates and 2 glasses since this all started those years ago!).
So I vote for a thread where we can really really rant our hearts out, be a stroppy teenager and get it out of our systems (I fear I may be the only immature brat here
Right, bed for me im pooped xxxxxxxxx
I just wana say.....
Can we start a thread where we just swear and let it all out?! but mark it as 'rating 18 yrs over and explicit material'?!
I know this sounds dead immature but tonight a threw a massive tantrum at my parents (im still staying with them month after month after YEAR! and 28 yr old)I lobbed my fav mug across the room (didnt smash it) and threw my laptop, turned the air more than blue with my swearing. All because of my frustration with this condition, the NHS, consultants not giving an obvious damn and passing the buck, private health'care', the government - all those Fcukers Im sooo not a violent person at all but it just builds up like a steam pressure cooker!!
You know what!...i look like Missy Piggy with my cried out puffy eyes, worn out (so ill sleep better tonight) but I feel like the tension inside me has reduced slightly. not a perm' solution but its helped (not with my parents crockery situation as ive smashed 3 plates and 2 glasses since this all started those years ago!).
So I vote for a thread where we can really really rant our hearts out, be a stroppy teenager and get it out of our systems (I fear I may be the only immature brat here
Right, bed for me im pooped xxxxxxxxx
naomi- Moderator
- Posts : 262
Join date : 2010-04-09
Location : Cheltenham
Re: Just wana say..........
Naomi, I may have already muddied the water with a bit of cussing last night. I'm all for it. I love nothing more than swearing. Apparently I can look quite proper (and well old enough to know better), let's burst that illusion up front.
I'm planning on ripping a strip off the nurse from my GPs office. She's given me a couple of dismissive tones over the past 24 hours. I may say "do I need to pay extra for the customer service" but it may sound more like "you are really fucking me off you rude bitch" to her.
You threw your laptop??? Wow, I would only throw things that don't belong to me or that my Mother-in-law has given me and I particularly hate.
On my CD support group we have a discussion called "People I would like to punch", we also have one for people I would like to hug today - I put my husband on there yesterday because it was our wedding anniversary and I really did hug him in that married kind of way. He's back on the other list today. We also have one called And that's when the fight started... I post a lot on this one.
I'm planning on ripping a strip off the nurse from my GPs office. She's given me a couple of dismissive tones over the past 24 hours. I may say "do I need to pay extra for the customer service" but it may sound more like "you are really fucking me off you rude bitch" to her.
You threw your laptop??? Wow, I would only throw things that don't belong to me or that my Mother-in-law has given me and I particularly hate.
On my CD support group we have a discussion called "People I would like to punch", we also have one for people I would like to hug today - I put my husband on there yesterday because it was our wedding anniversary and I really did hug him in that married kind of way. He's back on the other list today. We also have one called And that's when the fight started... I post a lot on this one.
Mouse- Posts : 303
Join date : 2010-09-09
Location : New Zealand
Re: Just wana say..........
Great idea!! Have just created a forum for letting off some steam....enjoy!!
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer