Vulvodynia Support
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» Hope to all my suffering ladies
Just wana say.......... EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Just wana say.......... EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Just wana say.......... EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Just wana say.......... EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Just wana say.......... EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Just wana say.......... EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Just wana say.......... EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Just wana say.......... EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Just wana say.......... EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Just wana say..........

5 posters

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Post  Sebby (Admin) Thu Sep 02, 2010 9:40 pm


.........Luv you all!! I love you

So glad I started this forum and met you lovely guys and gals...you lot have been my blessing within this cloud of pain..my silver lining...

*MWAH*

xxxx

Sebby
xxxx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  jules Fri Sep 03, 2010 5:31 am

How much wine did you have? Laughing

I feel the same.

jules

Posts : 225
Join date : 2010-03-17

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Post  Sebby (Admin) Sat Sep 04, 2010 7:17 pm


Lol..not too much! hehehe Razz
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

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Post  tweety Fri Oct 15, 2010 12:10 pm

Yes, I'm really grateful I found this forum... It certainly helps to be able to just say whatever and know you'll understand. I think I would have lost it this yr without this outlet.

Hugs all round...

Sue

tweety

Posts : 71
Join date : 2010-03-14
Location : Melbourne

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Post  naomi Wed Oct 20, 2010 11:34 pm

xxxxxxxxxxxxXXXXXXXXXXXXXxxxxxxxxxxxxxxxxxxxxxxx hugs xxxxxxxxxxxxx

I just wana say.....

Can we start a thread where we just swear and let it all out?! but mark it as 'rating 18 yrs over and explicit material'?!

I know this sounds dead immature but tonight a threw a massive tantrum at my parents (im still staying with them month after month after YEAR! and 28 yr old)I lobbed my fav mug across the room (didnt smash it) and threw my laptop, turned the air more than blue with my swearing. All because of my frustration with this condition, the NHS, consultants not giving an obvious damn and passing the buck, private health'care', the government - all those Fcukers Evil or Very Mad Im sooo not a violent person at all but it just builds up like a steam pressure cooker!!

You know what!...i look like Missy Piggy with my cried out puffy eyes, worn out (so ill sleep better tonight) but I feel like the tension inside me has reduced slightly. not a perm' solution but its helped (not with my parents crockery situation as ive smashed 3 plates and 2 glasses since this all started those years ago!).

So I vote for a thread where we can really really rant our hearts out, be a stroppy teenager and get it out of our systems (I fear I may be the only immature brat here

Right, bed for me im pooped xxxxxxxxx Very Happy

naomi
naomi
Moderator

Posts : 262
Join date : 2010-04-09
Location : Cheltenham

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Post  Mouse Thu Oct 21, 2010 12:45 am

Naomi, I may have already muddied the water with a bit of cussing last night. I'm all for it. I love nothing more than swearing. Apparently I can look quite proper (and well old enough to know better), let's burst that illusion up front.

I'm planning on ripping a strip off the nurse from my GPs office. She's given me a couple of dismissive tones over the past 24 hours. I may say "do I need to pay extra for the customer service" but it may sound more like "you are really fucking me off you rude bitch" to her.

You threw your laptop??? Wow, I would only throw things that don't belong to me or that my Mother-in-law has given me and I particularly hate.

On my CD support group we have a discussion called "People I would like to punch", we also have one for people I would like to hug today - I put my husband on there yesterday because it was our wedding anniversary and I really did hug him in that married kind of way. He's back on the other list today. We also have one called And that's when the fight started... I post a lot on this one.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

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Post  Sebby (Admin) Thu Oct 21, 2010 7:24 pm


Great idea!! Have just created a forum for letting off some steam....enjoy!! Laughing
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

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