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» 7 months since the diagnosis
Sex Tips and Things EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Sex Tips and Things EmptySat Jun 15, 2019 5:22 pm by mary jane

Sex Tips and Things EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Sex Tips and Things EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Sex Tips and Things EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Sex Tips and Things EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Sex Tips and Things EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Sex Tips and Things EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Sex Tips and Things EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

Sex Tips and Things

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Post  ISairon on Tue Apr 09, 2013 6:07 am

Um, I guess I'm going to start with some background about myself. I'm 19 and I was diagnosed about 2 months ago. About a month before then, my then-boyfriend broke up with me because of my vestibulodynia. Since then, during then, and even before then, I often get really shut down when I even kiss people, kind of disconnected from myself, running away from intimacy and things.
I guess a lot of that is unrelated angst that i'll probably make a separate post about....
Anyways, I was wondering if any of you guys have any good pointers on ways to be intimate with people without penetration - literature, things that have worked for you, whatever! I think it would be really useful for me, who feels painfully naive and insecure about sex , and a lot of us who are struggling to be able to be with other people here. I really think it would be useful so that i can be less afraid of sexual contact and more kind to myself if we can talk this through. Blowjobs and Handjobs get really boring for me... they seem to work okay for a while but eventually i just get bored with them and that's usually something my partners notice and just isn't healthy for me.
So, what are some good ways to regain sexual confidence? Do you guys have any activity suggestions? I would really appreciate the help - people tell me that there's plenty of ways to have sex without penetration but i really don't know what they are besides the obvious, kind of boring ones! ( That's also been used as an excuse to convince me that this isn't a tough thing to go through...yuck!)


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Post  BpCookie on Tue Apr 09, 2013 11:36 pm

Hello ISairon, Ok, I'm gonna be blunt, forgive me if I make you or anyone else blush. I blushed just writing this. lol. I can't always have sex, so I do things to or for my hubby that are also fun for me. Like you said, hand jobs and blow jobs can get boring. You can have him do it between your breasts. Just lube them up, hold them together and he can slip his penis between them and have sex that way. Or you can lube your butt cheeks, you lay on your stomach and he can do it between your cheeks. You can try ass sex also (I suggest using a BUNCH of lube). For some reason, guys really dig that. Also vibrating penis rings are good too. Those are all ideas to get the guy off, now for some ideas to get you off as well. If your clitoris isn't painful, then he can always get you off that way, using his finger, tongue or even a vibrator. A vibrator is a girls best friend. Smile

Being intimate with someone should be fun. Here are some things that I do. Besides negligee's I wear costumes. I have a cheerleaders costume and I do a little act in front of my hubby. I also have a Catholic school girl uniform. I pretend to be a horny 18 yr old virgin who escaped from the Catholic school. I stay in character the entire time. So, perhaps you could buy some costumes and surprise your partner. Nurses costumes are always popular with guys. When you wear a costume you don't have to be yourself, you can pretend to be someone else. Its a lot easier to have confidence when your pretending to be someone else. queen jocolor santa farao cat

I'm 48 yrs old and all my ideas may be boring and old. Laughing I hope that helps and I hope I didn't make a fool out of myself.


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Post  Sarah001 on Wed Apr 10, 2013 8:29 pm

You didn't make a fool out of yourself cookie, made me laugh a bit though!! Laughing I'm not going to offer any sex tips as I'm very single but I'm here to offer one piece of sensible advice, if you suspect your pelvic floor is tight ISairon don't try anal!! Shocked The pelvic floor obviously affects the anus too so if in doubt check it before you go down that route. And that's it!

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Post  ISairon on Thu Apr 11, 2013 2:42 am

thanks, you guys. For some reason i feel like a lot of the sites i go to don't actually talk about this which is weird to me- or maybe that's only because my vulvodynia is really contact-oriented. Idk, if you have any other resources or ideas, let me know! I also still feel like some of these things don't seem as interactive as vaginal sex. Any other ideas of even places that i could go look for some help would be super useful! Thanks.


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Post  Alana3 on Thu Apr 25, 2013 1:09 pm

Different positions helped me with mine, all about experimentation! But that's with any relationship. If missionary doesn't work try doggy style, I found that with him kneeling and his penis pointing toward my belly button helped me and it felt amazingly good. But my VV was localized in one spot, but we worked on it til we found something work and now.. I'm single Sad haha


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Post  Finch on Wed May 29, 2013 12:00 pm

I totally understand what you mean about feeling uneducated in the way of non-penetrative sex. I have found a few useful things here and there, one being sensual and erotic massage, which uses acupressure points to arouse all the senses and relax as well as arouse. It gives some different strokes to use and imaginative ways and places to touch as well, which I have found quite useful.

Here is the website: http://www.redbookmag.com/love-sex/advice/sexy-touch-man

Don't know how do do links, sorry.



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