Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Cured, my story.. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Cured, my story.. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Cured, my story.. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Cured, my story.. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Cured, my story.. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Cured, my story.. EmptySat Jun 15, 2019 5:22 pm by mary jane

Cured, my story.. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Cured, my story.. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Cured, my story.. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

Cured, my story..

3 posters

Go down

Cured, my story.. Empty Cured, my story..

Post  Marylynnreily Tue May 21, 2013 5:28 pm

Hello ladies,

I was diagnosed with Vulvodynia 8 years ago, Ive been cured for over 2 years and just wanted to let everyone know my story.

Long Story short, I ended up curing myself with Clindesse vaginal antibiotic cream, but about 3 or 4 boxes of it, back to back, so treatment, every night for a little over a month, then Gyne Lotrimin (3 day) like another poster said on here, is awesome stuff. Its not irritating to the vagina like Monistat, and its more effective at curing the yeast issue problem.

The Clindesse takes care of the bacterial, the Gyne Lotrimin, the yeast.

I dont know why Gyne Lotrimin is so much more effective, even more than terazol from the doctor...

also, been on Metrogel, and diflucan pills do some products are more effective than others. Longer, stronger courses of things work better.
Ive also gone to the doctor and got prescribed 24 hour ovules, 3 of them, back to back, when I had an intractable yeast infection one time...Ive always had womens problems...I also get chronic UTIs so Im frequently on antibiotics, which cause even more vaginal problems.


Posts : 27
Join date : 2013-05-21

Back to top Go down

Cured, my story.. Empty Re: Cured, my story..

Post  Delilah1 Tue May 28, 2013 2:10 pm

Hello Mary, So glad to hear you found a cure for your vulvodynia. How did it all start for you? How did you convince a doctor to prescribe you such a long course of Clindesse? Were you diagnosed with bacterial vaginosis and do you know what bacteria was associated with it? Again, it's good to hear you are feeling better! Very Happy



Posts : 55
Join date : 2013-04-24

Back to top Go down

Cured, my story.. Empty Hey

Post  Marylynnreily Sun Jun 02, 2013 11:35 pm

Hey there..well, I changed Gynos and saw a women that time, and she started me on 14 days worth, and then I begged her for a couple refills, (explaining I have really bad problems, and my husband and I had sex while on treatment, since we hadnt had sex in months and I was feeling so much better)..she was kind, and gave them to me..

You can also try going to different doctors and explaining your problem..I have IC and Ive done this to get more antibiotics since many doctors will not give enough for long enough. I get bladder infections that require at least 10 days worth instead of the typical 7 my body is so used to them, Ive been on TONS of antibiotics..anyway.
I would try seeing your family doctor and making up a story about how you had a vaginal infection a few years back and the only thing that cured you was clindesse, than hand them the squished up tube in a baggy...(lol) say you needed 14 days worth..I have a problem culturing out, Ive done tons of vaginal cultures and nothing would ever come out, finally I got lucky and BV cultured out and she gave me the clindesse that changed my life..2 weeks worth is key here but I did 3!

so, if your good enough at explaining things..and you have had a past history the doctor can look at that shows youve been having a problem and numerous tests for a long long time, I bet you can get them to presrcribe the stuff, even with negative culture..

Its not like your hustling pain pills, your hustling ANTIBIOTICS!!

Its soooo difficult to get them to prescribe anything anymore..and antibiotic along with bacterial and yeasts resistance is a growing problem..

so they are afraid to give you any decent course of antibiotics to cure anything anymore..

Posts : 27
Join date : 2013-05-21

Back to top Go down

Cured, my story.. Empty Re: Cured, my story..

Post  EviE°Bee Sat Oct 12, 2013 7:00 am

Antibiotics cause yeast infections, unfortunately. I saw a Dr who diagnosed me with a yeast infection and she said gynalotramine has steriods in it which is why its more helpful.

Unfortunately, i can't use it! Last time i used it I had a weird reaction to it. Diflucan works for me. So far, anyway.

Evie bee


Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali

Back to top Go down

Cured, my story.. Empty Re: Cured, my story..

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum