Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Update about myself. EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Update about myself. EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Update about myself. EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Update about myself. EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Update about myself. EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Update about myself. EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Update about myself. EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Update about myself. EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Update about myself. EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Update about myself.

2 posters

Go down

Update about myself. Empty Update about myself.

Post  fairymoond84 Thu Jun 27, 2013 3:03 am

Hi all,
The last time I posted on here was about me thinking that I had acidosis instead of vulvodynia. I did a lot of research and it seemed like acidosis was the cause of why I burned. Well I was very very wrong. And found out the hard way. When I researched about acidosis it suggested to eat foods that were high in the 5 main minerals. One of the main foods was spinach. And to take a supplement with the 5 main minerals. Which those supplements were pretty expensive. Well anyways, I started taking those supplements and starting eating a lot more spinach. BIG BIG mistake. After doing this for a few days I was on fire. First let me point out, I only burn down there. No muscle pain or any other vulvodynia symptoms, just burning. Anyways, I guess I have been trying to diagnose myself in the hopes that I can find my own cure and hoping that I didn't have V. But I do. So after years of being stubborn and trying other cures, I finally started out the low oxalate diet. Once I started reading the list of foods to avoid, everything made so much sense. The spinach, very high on oxalates. After that whole experience with the spinach, I was on fire. As soon as I started following the LOD, the burning lessened. There is no other way around it. If you are like me and you only burn, you have to do the LOD. The food list is very overwhelming. There is so much foods that are high in oxalates. Like milk & dark chocolate, a lot of greens, nuts, berries, wheat, grains etc. You can still eat these foods, but a very very small amount. And of course my favorite foods are on the high list LOL. I also started taking calcium citrate 1,000mg 3 times a day and Magnesium 250mg 1 a day. These have really helped also to where I can still eat some foods high in oxalates. The LOD is on many many articles for V and suggests to do this diet to treat V symptoms. Give this LOD a chance. Start it out slow.

fairymoond84

Posts : 7
Join date : 2013-01-13
Age : 39
Location : FL, United States

Back to top Go down

Update about myself. Empty Re: Update about myself.

Post  Sebby (Admin) Fri Aug 02, 2013 4:00 pm

So good to hear when someone finds something that helps them Smile I get more raw/sore pain so wondering if the lod would work for that?
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum