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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Lyrica - how to know if it is working?
4 posters
Page 1 of 1
Lyrica - how to know if it is working?
Hi,
I have been taking Lyrica for 3 months, I started on 75 mg and am now taking 300mg and I am not really sure if it is working for me or not. While my symptoms haven't really gotten worse I am not sure if they have really improved either and it is so hard to tell as I can't remember what normal feels like after 1.5 years of this condition. I don't know if 3 months is too little for there to be a positive effect or not and my dr. is hopeless, I am overseas now and have emailed him a few times and haven't really received any help.
Can anyone who has tried Lyrica please let me know how the treatment is going for them and how long it took for them to receive any positive effects.
Any information or stories at all would be so so greatly appreciated!
Thanks guys
I have been taking Lyrica for 3 months, I started on 75 mg and am now taking 300mg and I am not really sure if it is working for me or not. While my symptoms haven't really gotten worse I am not sure if they have really improved either and it is so hard to tell as I can't remember what normal feels like after 1.5 years of this condition. I don't know if 3 months is too little for there to be a positive effect or not and my dr. is hopeless, I am overseas now and have emailed him a few times and haven't really received any help.
Can anyone who has tried Lyrica please let me know how the treatment is going for them and how long it took for them to receive any positive effects.
Any information or stories at all would be so so greatly appreciated!
Thanks guys
Veronica001- Posts : 1
Join date : 2013-08-31
re- lyrica
Hi
For me it worked pretty much straight away, although I do take nortriptyline also. I haven't got much info on Lyrica but my guess would be it would have worked by now. Maybe try a new doctor where you are and see if they could try something else. Good luck and keep trying.
For me it worked pretty much straight away, although I do take nortriptyline also. I haven't got much info on Lyrica but my guess would be it would have worked by now. Maybe try a new doctor where you are and see if they could try something else. Good luck and keep trying.
zarli- Posts : 182
Join date : 2013-08-11
Location : Australia
Re: Lyrica - how to know if it is working?
I take Lyrica and it didn't help me until I got to 300mg but then it stopped working and I had to increase to 450mg which is where I'm at now. It only helps the unprovoked widespread burning in my case and it doesn't make the skin feel normal it kind of changes the sensation from burning to slight prickling for me. You can go all the way up to 600mg of Lyrica if you don't feel the current dose is working and it doesn't sound like it is after 3 months to be honest. I don't know if you have unprovoked or provoked only or if your pain is widespread or localised? It depends on the type of pain you are trying to treat to be honest.
Sarah001- Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK
Lyrica does not work for me
I'm currently weaning myself off lyrica because it was making me sleepy, even after the first month or so. I was getting drowsy while driving two hours on an interstate to my therapy appointments and to make matters even worse, it was making me fall asleep in my graduate school classes. I actually had to take a nap at a gas station so that I could continue home after I was finished with my appointments. I don't think I've been this sleepy during the day since I was a little girl. I hope everyone else has a better experience with it than I have. I can't wait to be finished with those evil things--only 3 more pills to go!
Fingerscrossed- Posts : 25
Join date : 2013-09-17
Age : 34
Location : Kentucky
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer