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» 7 months since the diagnosis
Anyone feel their job is making symptoms worse?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Anyone feel their job is making symptoms worse?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Anyone feel their job is making symptoms worse?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Anyone feel their job is making symptoms worse?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Anyone feel their job is making symptoms worse?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Anyone feel their job is making symptoms worse?  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Anyone feel their job is making symptoms worse?  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Anyone feel their job is making symptoms worse?  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Anyone feel their job is making symptoms worse?  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Anyone feel their job is making symptoms worse?

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Anyone feel their job is making symptoms worse?  Empty Anyone feel their job is making symptoms worse?

Post  Sunflower82 on Fri Sep 13, 2013 6:52 am

Hi,
This may seen a little odd, but I think my job is making my pain worse! I work in a school for children with autism in a position with responsibility for implementing programmes and training staff and deal with problem behaviour which can be aggressive ! I constantly feel like I'm making sure everyone is ok and I feel I'm always in fight or flight mode, I really enjoy my job and love the kids. But I've been bk to school for 4 days with the kids and my vulvar pain is back after 7 weeks of no pain ! Really struggling with making a difficult decision but this is the only job I have ever done and I don't want to be one of those people who just work with the less challenging kids !

Anyone been in a similar situation. ?

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Post  Sarah001 on Fri Sep 13, 2013 12:05 pm

My job definitely does because I stand almost all day and have lousy posture and the quicker I have to go the worse I get for breath holding, gripping with the glutes and upper abs and it makes my pain off the scale. I find if I pay attention and make sure I breathe properly and don't grip with anything I only feel slightly worse at the end of the day as opposed to horrendous. I would say try and pay attention to what you're doing and work out if you clench or don't breathe properly before you leave your job, it could be a case of learning not to do these things whilst at work to keep the pain away.
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Post  Elc88 on Mon Sep 23, 2013 6:12 pm

It's not likely to be stress related is it? Do you find the works stressful or is it just full on? Do you spend more time sitting when you're at work vs holiday time? Is there a chance it's even your work chair?

I wouldn't say my work makes my condition worse, but sometimes I do notice it stings a little more because I sit at a desk all day and probably have really bad posture...

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Post  Sunflower82 on Mon Sep 23, 2013 7:58 pm

Thanks for both your responses, not sure how I can describe my job, I run around like a headless chicken after children and spent time training other people, I have to get physically involved playing chase, jumping on the trampoline, riding scooters ! I do sit down on and off, but it can be a stressful environment working with children who can be aggressive. I also have to restrain children at times as well, dealing with aggressive behaviour often leaves you in a constant state of fight or flight which mean I can not relax when I'm not relaxed I hold in my tummy muscles which has an effect on my pelvic floor muscles.

Hope this gives u an idea of work day.

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Post  tinkerbelle2 on Thu Oct 03, 2013 2:25 pm

Hey sunflower,
I'm a care assistant and I work with elderly clients, and children and adults with learning disabilities so slightly similar!

Because the job comes with a lot of responsibility obviously you have to make sure you don't have too much time off, are on time etc. This pressure can be hard for me to cope with. I find the VV sometimes makes me want to not do anything and makes me run a little late as I'm trying to find creams and painkillers in the morning  (I should probably get more prepared the night before but I never learn!)

I do find stress seems to make the burning worse. Weirdly, when I was on holiday for 3 weeks the pain was not gone but greatly reduced. I was going in the sea and pool every day, I don't know if the cooling effect of the water was soothing maybe? No
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Post  Sunflower82 on Thu Oct 03, 2013 7:25 pm

Hi,
Thanks for your reply, I found the same when I was on honeymoon! Nearly any burning, I wonder if the salt water helped, we swam in the sea and the pool which was salt water! The shower in the room was also salt mildly salty!

Also has a nerve block in my back ten days before so don't know if it was a combination of that and getting married and being off work !

Kt

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Post  tinkerbelle2 on Sat Oct 05, 2013 2:15 pm

That's really interesting!

Yeah, good life events seem to at least make it slightly more bearable. I might try some bath salts to see if that does anything.

Belle
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