Vulvodynia Support
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» Hope to all my suffering ladies
hi! im new to this!! :) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
hi! im new to this!! :) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
hi! im new to this!! :) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
hi! im new to this!! :) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
hi! im new to this!! :) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
hi! im new to this!! :) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
hi! im new to this!! :) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
hi! im new to this!! :) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
hi! im new to this!! :) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


hi! im new to this!! :)

3 posters

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Post  gem123 Sun Oct 10, 2010 9:48 pm

hi
i am 24 and have been suffering from vulvodynia for 4 years now, i have seen gynaecologist, urologist, dermotologist,
syscho swxual counsellor, and also suffer from clinical depression this illness has made me lose my job, lose my confidence and make me put on weight through various tablets i have just been re refered to my dermotologist to see if there is anything else i we can try, i am very lucky to have a supportive boyfriend who understands but it is so painful sometimes its unbearable the pain is internal and external, it hurts to urninate and sometimes i get kiney infections too, sex is unbearable, and the list goes on i have never been on anything like this before so not sure on what more to say thanks for reading! xxxx

gem123

Posts : 7
Join date : 2010-09-10

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Post  jules Mon Oct 11, 2010 3:19 am

Welcome, you are obviously not alone. So sorry you couldn't work and you are in so much pain. There is hope. There are many different meds out there and the research continues. I'm sure you have tried many of the treatments. I am on 2400 mgs of Gabepentin and now 300 mgs of Lyrica. I have had relief in the past so i am hopeful it will be back. This disorder has interfered w/ my working out, sex and everyday life (sitting etc.) but, i continue to fight the battle. at times it is a tough battle. different things work for different people. we are all here to support each other. Don't give up hope.

i'm happy you have a supportive boyfriend. hang in there and keep on signing in.

jules

jules

Posts : 225
Join date : 2010-03-17

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Post  gem123 Mon Oct 11, 2010 8:44 am

hi thanks for your reply i am on 150mg of amitriptaline 100mg of tramadol and 75mg of lyrica what is gabapentin and what is it prescribed to do, i feel like ive got a bit more fight in me just from your one comment! i am going to write a list of treatments what people have tried to show the specialist, my daughter has just been diagosed with type 1 diabetes she is only three so i need to be well to cope with that my partner has left work to care for us both but he cannot stay of forever so need to get myself sorted!

gem123

Posts : 7
Join date : 2010-09-10

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Post  Sebby (Admin) Thu Oct 14, 2010 7:05 pm


Hi and welcome to the forum..

Yes there are lots of different treatments you can try so dont give up..my first is nerve block and Im going to get physical therapy as well after seeing how block goes.

The girls on here have lots of great advice and have helped me so much since I started the forum.

Keep fighting you are not alone and we are here to support you

Sebby
xxx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  jules Fri Oct 15, 2010 3:01 am

hello again Gem123.

Gabepentin is the generic name for Neurontin. neurontin is a anti-convulsant. it really did cut my pain in half when i first started. but, i had to go up to 3000 mgs. Like Sebby says..there are a number of a combination of treatments that helps individuals. i never went on ami-triptiline. it sounds like it can help, but side effects for some are not good. keep on advocating for yourself. we will find a way! yes..you need to feel good and be there for your child. we need to take care of ourselves and not give up.

jules

Posts : 225
Join date : 2010-03-17

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