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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
hi! im new to this!! :)
3 posters
Page 1 of 1
hi! im new to this!! :)
hi
i am 24 and have been suffering from vulvodynia for 4 years now, i have seen gynaecologist, urologist, dermotologist,
syscho swxual counsellor, and also suffer from clinical depression this illness has made me lose my job, lose my confidence and make me put on weight through various tablets i have just been re refered to my dermotologist to see if there is anything else i we can try, i am very lucky to have a supportive boyfriend who understands but it is so painful sometimes its unbearable the pain is internal and external, it hurts to urninate and sometimes i get kiney infections too, sex is unbearable, and the list goes on i have never been on anything like this before so not sure on what more to say thanks for reading! xxxx
i am 24 and have been suffering from vulvodynia for 4 years now, i have seen gynaecologist, urologist, dermotologist,
syscho swxual counsellor, and also suffer from clinical depression this illness has made me lose my job, lose my confidence and make me put on weight through various tablets i have just been re refered to my dermotologist to see if there is anything else i we can try, i am very lucky to have a supportive boyfriend who understands but it is so painful sometimes its unbearable the pain is internal and external, it hurts to urninate and sometimes i get kiney infections too, sex is unbearable, and the list goes on i have never been on anything like this before so not sure on what more to say thanks for reading! xxxx
gem123- Posts : 7
Join date : 2010-09-10
Re: hi! im new to this!! :)
Welcome, you are obviously not alone. So sorry you couldn't work and you are in so much pain. There is hope. There are many different meds out there and the research continues. I'm sure you have tried many of the treatments. I am on 2400 mgs of Gabepentin and now 300 mgs of Lyrica. I have had relief in the past so i am hopeful it will be back. This disorder has interfered w/ my working out, sex and everyday life (sitting etc.) but, i continue to fight the battle. at times it is a tough battle. different things work for different people. we are all here to support each other. Don't give up hope.
i'm happy you have a supportive boyfriend. hang in there and keep on signing in.
jules
i'm happy you have a supportive boyfriend. hang in there and keep on signing in.
jules
jules- Posts : 225
Join date : 2010-03-17
Re: hi! im new to this!! :)
hi thanks for your reply i am on 150mg of amitriptaline 100mg of tramadol and 75mg of lyrica what is gabapentin and what is it prescribed to do, i feel like ive got a bit more fight in me just from your one comment! i am going to write a list of treatments what people have tried to show the specialist, my daughter has just been diagosed with type 1 diabetes she is only three so i need to be well to cope with that my partner has left work to care for us both but he cannot stay of forever so need to get myself sorted!
gem123- Posts : 7
Join date : 2010-09-10
Re: hi! im new to this!! :)
Hi and welcome to the forum..
Yes there are lots of different treatments you can try so dont give up..my first is nerve block and Im going to get physical therapy as well after seeing how block goes.
The girls on here have lots of great advice and have helped me so much since I started the forum.
Keep fighting you are not alone and we are here to support you
Sebby
xxx
Re: hi! im new to this!! :)
hello again Gem123.
Gabepentin is the generic name for Neurontin. neurontin is a anti-convulsant. it really did cut my pain in half when i first started. but, i had to go up to 3000 mgs. Like Sebby says..there are a number of a combination of treatments that helps individuals. i never went on ami-triptiline. it sounds like it can help, but side effects for some are not good. keep on advocating for yourself. we will find a way! yes..you need to feel good and be there for your child. we need to take care of ourselves and not give up.
Gabepentin is the generic name for Neurontin. neurontin is a anti-convulsant. it really did cut my pain in half when i first started. but, i had to go up to 3000 mgs. Like Sebby says..there are a number of a combination of treatments that helps individuals. i never went on ami-triptiline. it sounds like it can help, but side effects for some are not good. keep on advocating for yourself. we will find a way! yes..you need to feel good and be there for your child. we need to take care of ourselves and not give up.
jules- Posts : 225
Join date : 2010-03-17
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
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» How I cured my Vulvodynia!
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Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
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