Vulvodynia Support
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» Hope to all my suffering ladies
Just Frustrated EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Just Frustrated EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Just Frustrated EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Just Frustrated EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Just Frustrated EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Just Frustrated EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Just Frustrated EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Just Frustrated EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Just Frustrated EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Just Frustrated

4 posters

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Post  Alana3 Thu Oct 17, 2013 6:38 pm

I guess I'm frustrated because I feel that every single part of me that makes me a woman is damaged. When I was 16, I found a lump in my boob, and had to have a lumpectomy (luckily it wasn't cancer, but it was humiliating when people found out regardless). I still suffer to this day with cysts. Awful. And they hurt like hell. And I can't wear a bra because theyre huge and bras cause shoulder and back pain (also when I stopped wearing a bra as much, the cysts were 40% better so I don't know maybe its not such a bad thing?)

Then fast forward to when I had sex without thinking about it, all of a sudden, it just started to hurt. Hello vulvodynia! Luckily here, I was able to get a vestibulectomy and am able to be almost as good as new. But it took 7 or so years. And the hell to get to the vestibulectomy wasn't too much fun either.

Than, starting from the point when I got my period, I always had impossibly annoying, painful, and heavy periods. Turns out, I have endometriosis. The pain is excruciating. I hate having my period. In fact, I dread it. Every second of it. It is miserable. I have to be on birth control, and I can't use tampons due to the pain.

I just feel damaged like every part of me that defines me as a woman is fucked up somehow. Everyone keeps telling me not to get depressed, but I can't help it, I am. I'm just waiting for IC to happen or something else, one more way to feel even less like a person. I just want ONE day where I don't hurt, where people aren't like you complain all the time (I'm pretty sure if someone healthy had ONE of these problems for an hour they'd be pretty pissed too). I'm sick of living like this. I hurt, I'm tired and I just want to go to bed. Does anyone else ever feel like what the fuck did I do to deserve this? In my opinion, being a woman is terrible I hate it. Everything to do with it. I just want to feel like someone normal. Sorry, I needed to vent.

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  zarli Fri Oct 18, 2013 9:27 am

I'm hearing you sweetie !!! I look at my friends and some days I feel like saying "What the fuck do you have to worry about " I know this is an unreasonable bad thought but gee I feel totally ripped off living with this shit thing. Some days I feel its OK to just say FUCK IT this is shit!!!!!!!!!! You have certainly had way too much bad stuff to deal with, my heart goes out to you, keep venting when you need to and allow your self to have the crap days. Although know you are not alone and I always like to believe there are better days ahead. Things never stay the same and just when you think they can't get any worse they can, and just when you think things cant get any BETTER they can.

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  zarli Fri Oct 18, 2013 9:38 am

Sorry about the swearing but its sometimes warranted...

zarli

Posts : 182
Join date : 2013-08-11
Location : Australia

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Post  EviE°Bee Wed Nov 13, 2013 8:27 am

Wowie. That's a lot of shit.

I feel the same way. Im sure many of us do, like you pointed out. Everyone has a breaking point. Whats going on with your body is plenty reason to feel like you were given a crap hand in life. Important thing is to not stay in that negative place.

I dread waking up in the morning because I honestly don't know what it's gonna feel like. I can't sleep sometimes because I don't know if I will ever be NORMAL again. There are days I want to stay in bed and not speak to anyone, most days I suck it up and deal because there isn't anything I can do, not yet anyway.

I can't remember who said it or which discussion I was reading on here but this person said "If I was normal once, I believe I can be normal again." (Not a direct quote but along those lines.)
It made me feel more positive.

I don't know why we were "chosen" to deal with the problems we face. I do not have someone to go with me when I face these stoned-faced Dr's, no one is here with me when im at a store, in pain, and...I look at all these women and I wonder if any of them feel the same pain I feel.
What helps is I know there's an army of people who are having the same problems and issues I have. Mentally, im not alone. You ladies are always in the back of my mind, fighting your own personal hells like me. We're all in the same trench.

Muah! Feel better.
Evie Bee




EviE°Bee

Posts : 72
Join date : 2013-09-30
Age : 40
Location : Southern Cali

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Post  Alana3 Wed Nov 13, 2013 1:56 pm

Yeah yesterday I had some weird tearing pain, today, nothing! It's so weird. I think mine had to do with muscles tho cuz I hadn't had sex in awhile and it tightened up. I took a muscle relaxer and the pain went away. Its only on one side and clearly not an infection of any kind but god body suck it up I don't need second guessing every two minutes. ugh. But mostly, now, I feel pretty good.

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  mary jane Wed Nov 13, 2013 10:37 pm

@ alana that's great ! focus on those very good days and enjoy them !!!!
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Post  Alana3 Wed Nov 13, 2013 11:15 pm

Thank you!

Alana3

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