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    » 7 months since the diagnosis
    Looking for info/help! EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Looking for info/help! EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Looking for info/help! EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Looking for info/help! EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Looking for info/help! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Looking for info/help! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Looking for info/help! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Looking for info/help! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Looking for info/help! EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


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    Post  Mariahopes on Mon Jan 27, 2014 11:11 am

    Hi all,

    I am brand new to this forum. I live in Suffolk in the UK. I had a baby 10 months ago and have experienced nothing but vaginal pain and strange vulval sensations.

    I noticed that my flow of urine was never right after having my little girl. It was a truly traumatic birth and i had a large episiotomy and didn't walk for 3 weeks afterwards! Then came the internal stinging.. like acid being poured through my vagina when I walk. I don't have any pain upon touching or penetration and the skin looks normal.

    I went to see a pelvic pain physio in London and she said I have a Pelvic floor dysfunction and this is what is causing the hypersensitivity. She found my pelvis to be misalligned and that I was loading it wrong when walking/standing. I also have lower back pain. Is it possible my pain is caused by these tight, short muscles? She found quite a few internal trigger points high up inside me.. she said the tissue was slightly inflamed.

    Has any body had any similar experiences to this? Has anybody had any success with phsyio? I dont even know if i am suffering from Vulvodynia.. all 4 consultants have said i'm not. But I feel desperately alone and struggling to work and look after my new baby.

    Love to you all.
    Maria

    Mariahopes

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    Post  Alana3 on Mon Jan 27, 2014 11:21 am

    Unfortunately after having a baby this is quite normal. A lot of people suggest kegel exercises. The good news is a lot of people take a year to year anf a half to become normal again esp after a birth like yours. I don't know if that's true for you but it might! You can also try massage and vibrators and see if that works for you. I read something about incontinence but forgot what it mentioned. Ill try and find it later

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    Post  Mariahopes on Mon Jan 27, 2014 11:32 am

    Hi Alana,

    I was originally advised to do Kegels but they only serve to make a hypertonic pelvic floor tighter- they just exacerbated the problem. I am now focussing on relaxing and stretching etc. Can it be vulvodynia if i can have pain free sex? Feeling a bit confused!

    Thanku x

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    Post  Alana3 on Mon Jan 27, 2014 11:53 am

    All vulvodunia means is "painful vulva" so I'm assuming yes. Not everyone experiences painful sex. I have endometriosis adenomyosis and a polyp and.have.really bad muscular problems that cause lower back pain. For me vulvodynia was painful sex but others experience pain all day. Am I successfully you have this? No. But a baby would put incredible pressure on your muscles which in turn could cause thipain. Your uterus stretches your organs inside you when pregnant so it could simply be naked needing to return to normal. Have a look at this website. I've definitely heard that getting pregnant can lead to everything you're describing. Like I said a lot of time all you need is time.


    http://www.babycentre.co.uk/a553463/urinary-incontinence-after-birth

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    Post  Mariahopes on Mon Jan 27, 2014 12:21 pm

    Thanks- unfortunately that article is referring to post-partum incontinence which is not what I am suffering from. x

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    Post  Alana3 on Mon Jan 27, 2014 12:51 pm

    I thought you just said you had a baby?

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    Post  Mariahopes on Mon Jan 27, 2014 12:56 pm

    Yes I have- well 10 months ago. I have no problem with incontinence or urinary frequency/urgency. My pelvic muscles are way too tight and seem to be causing all sorts of problems. I tried taking ami 10mg but I found I just couldn't get up in the morning to care for my little one. Do you know of anybody else who seems to have had these problems set off by childbirth and/or pregnancy?


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    Post  Alana3 on Mon Jan 27, 2014 1:19 pm

    Nope I don't know what ami would do for you as that's for nerves. I have heard of it happening and pt exercise seem to be what is recommended

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