Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Pelvic Pain Impact Questionnaire EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Pelvic Pain Impact Questionnaire EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Pelvic Pain Impact Questionnaire EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Pelvic Pain Impact Questionnaire EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Pelvic Pain Impact Questionnaire EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pelvic Pain Impact Questionnaire EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pelvic Pain Impact Questionnaire EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pelvic Pain Impact Questionnaire EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pelvic Pain Impact Questionnaire EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pelvic Pain Impact Questionnaire

3 posters

Vulvodynia Support :: Announcements

Go down

Pelvic Pain Impact Questionnaire Empty Pelvic Pain Impact Questionnaire

Post  janebowering Wed May 21, 2014 5:02 am

Hello ladies!

I am a PhD student looking at some of the clinical features of vulvodynia. I am in the early stages of my research, and as study 1 I am hoping to develop a pelvic pain impact questionnaire. I know this is not specific to vulvodynia, but I wanted to make the questionnaire broad to be able to be used in more women with other conditions.

It would be fantastic if you had some spare time (about ten minutes) to fill out a survey to help me develop the questionnaire.

The link to the survey is https://www.surveymonkey.com/s/TQK37J5

After a long battle with pelvic pain myself, I know how devastating it can be. Please spread the link to anyone you know with any kinds of pelvic pain issues - the more research we can do the better.

I hope you all have a fantastic day!

Jane
janebowering
janebowering

Posts : 2
Join date : 2014-05-13
Age : 33
Location : Adelaide

http://bodyinmind.org

Back to top Go down

Pelvic Pain Impact Questionnaire Empty Re: Pelvic Pain Impact Questionnaire

Post  Alana3 Wed May 21, 2014 2:34 pm

I did it- thanks!

Alana3

Posts : 1093
Join date : 2012-09-25

Back to top Go down

Pelvic Pain Impact Questionnaire Empty Re: Pelvic Pain Impact Questionnaire

Post  Sebby (Admin) Fri Jun 20, 2014 10:28 am

I will do, thank you
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

Back to top Go down

Pelvic Pain Impact Questionnaire Empty Re: Pelvic Pain Impact Questionnaire

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

Vulvodynia Support :: Announcements

 
Permissions in this forum:
You cannot reply to topics in this forum