Vulvodynia Support
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» Hope to all my suffering ladies
Physio Success so far EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Physio Success so far EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Physio Success so far EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Physio Success so far EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Physio Success so far EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Physio Success so far EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Physio Success so far EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Physio Success so far EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Physio Success so far EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  ringostarr26 Sun Jul 20, 2014 4:43 pm

Hi Ladies,

I have been MIA a bit studying for my last exam of my undergrad so I haven't been able to post, but I wanted to share some positive news. I have found an amazing physic therapist whose sole speciality is pelvic floor dysfunction in both women and men. She focuses a lot on breathing techniques and fascia massage to help lengthen and soften the muscles in the pelvic floor and surrounding tissues. I know PFD is common in women with vulvodynia so I really do believe getting a knowledgable physic therapist is important. I tried physic prior to this and felt to relief but her techniques were very different and she did not send me home with anything that I could do on my own. I hope everyone is getting some relief and remember stay positive. I know it is hard, trust me there are days when getting out of my bed is a struggle, but there are people out there who want to help us. Sending positive vibes to all you wonderful women who are going through this horrible condition. <3

ringostarr26

Posts : 59
Join date : 2012-07-31

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Post  Guest Fri Aug 22, 2014 11:26 pm

How are you progressing? And what exactly are,your symptoms? I have inflamed vulvar skin and hard sore pelvic floor muscles. Im looking for success stories of women with similar symptoms. I started PT last week. Please tell me how its going!

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Post  ringostarr26 Thu Nov 26, 2015 3:23 pm

Wow i have been gone from this forum for a while but I saw your post and wanted to give you an update. I am doing incredibly well. I did physio for about a year and I really do think it helped tremendously. Anytime I get a flare up I can usually keep it to minimal pain and return to normal activity. I have to say I am 90% pain free but it wasn't an easy journey. My pain started years ago, probably 7 years now. I saw many doctors and once i got my proper diagnosis I was on the mend. Please keep up with physio IF you have pelvic floor dysfunction issues. It truly is a life saver.

ringostarr26

Posts : 59
Join date : 2012-07-31

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