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» 7 months since the diagnosis
Healing is possible  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Healing is possible  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Healing is possible  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Healing is possible  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Healing is possible  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Healing is possible  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Healing is possible  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Healing is possible  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Healing is possible  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Healing is possible

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Healing is possible  Empty Healing is possible

Post  Cured patient on Sun Jul 27, 2014 8:51 pm

Hi ladies,

I have been healed of this terrible, debilitating disease for almost one year now. I hope that my story can bring you peace of mind that it is possible to have a rich, fulfilled, and pain free life without vulvodynia.

Like many of you, my story begins with what I thought was a UTI, which then developed into a supposed yeast infection from the antibiotic. The itching literally kept me up at night, with occasional stabbing pains in my vaginal area. I constantly felt raw and I would imagine that it must be what sandpaper to skin felt like. Sometimes it would feel as though acid was pouring out of my vagina. I literally could not think of anything else. I was a prisoner to my pain and I grew more and more depressed with constant thoughts of how I would be able to go through another maybe 60-70 years of life like this (I am in my mid 20s).

I visited at least three doctors before receiving my diagnosis (which actually is not a lot), and the diagnosis in and of itself was relieving because I had suspected vulvodynia from the start. Even after the diagnosis, I shuffled doctors continuously paying absurd amounts of money to be told the same thing (often with little to no compassion).

Throughout my journey, I took topical corticosteroids and anitfungals, oral antibiotics, probiotics, low dose antidepressants, and lidocaine to numb the pain out of my weary vagina. I ceased birth control for three month only to explode in painful ovarian cysts. I was relegated to a wardrobe of long skirts and dresses, not being able to wear underwear or sit for prolonged periods of time. I missed hours upon hours of work going to doctors appointments, spent money I didn't have, and scoured the internet in the little spare time I did. I was so weary, willing to try anything.

Eventually, I started pelvic floor therapy and performed exercises with a gel like cone that to me looked like a scary sex toy. But of course, sex was the last thing I wanted at this time (yet always on my mind). As I'm sure many of you can attest to, the fear of losing your significant other to this awful condition is unbearably frustrating.

Besides my diet and my detergent, I changed my entire lifestyle. I caved to yoga and chiropractic relief. Again, I'd do anything for a respite.

Today, I write this on a bus ride home, a five hour trip is never have been able to complete over a year ago without writhing in pain. On the occasional time there was a break from the physical agony, the mental torture kicked up a notch. I was a broken soul. I wanted to give up.

I'm not exactly sure what the turn around was for me, but I think it was when I decided that my happiness was worth fighting for. The medicine, the physical therapy, etc. served their purpose. But the willingness to let go of the tormenting anxiety and hand it over to God was the paradigm shift for me.

I sincerely pray and am hopeful for all of you that you will find relief and healing. This is such a difficult journey, please please do not give up.

Cured patient

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Join date : 2014-07-27

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