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» 7 months since the diagnosis
post surgery EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
post surgery EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
post surgery EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
post surgery EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
post surgery EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
post surgery EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
post surgery EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
post surgery EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
post surgery EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


post surgery

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post surgery Empty post surgery

Post  sbinnzeeta on Thu Oct 09, 2014 4:47 pm

Hi everyone

I first got diagnosed with vestibulodynia 8 months ago after suffering with it for three years. I went to the doctors countless times & kept getting treated for thrush when that didnt work i got referred to a gyno. She thought that I had herpes even though the swabs were negative I got tested for every STI under the sun including HIV which all came back negative. During all this time I was single and even though the pain was getting worse to use tampons and have a period it was manageable and I wasnt sexually active so it wasnt on the top of my list. However once I met my current partner I had to get this sorted I explained to him at the beginning the problems I was having and luckily he was very supportive we couldnt have sex for a couple of months as pain symptoms came and went when we did manage to it was really uncomfortable.

The gyno then referred me to a professor of gynecology and when he looked at me he knew what it was straight away. I was so relieved I have felt like a freak and dirty/unnattractive for so long thinking I was never going to get to the bottom of it. He gave me some steroid cream & local anaesthetic to use and if it worked he suggested that as my symptoms were so bad I would need surgery. I was delighted that they did work and even though it didnt solve the problem at least I was able to have sex a few times. When I went back it was decided that I should have the surgery & was booked in 6 weeks later. So on the 24/9/14 I had the surgery done as a day patient. I left the hospital at 6pm that evening and although I was sore it wasnt as bad as I was expecting as the local he had injected was still working.

The first time I looked with a mirror two days post surgery I cried my eyes out the bruising and swelling was awful. The two weeks following I have had a terrible recovery firstly I had a reaction to the pain relief, I then despite following all post op advice got an infection which is common so they say. I then had a horrendous vomiting & diarrhoea bug just to top it all off. Currently my wound is not to bad they said considering I went back monday as was worried. However I am concerned now as there was a slight gap in the suture at the bottom and even tho the gyno said didnt look too bad I am still worrying about it. I just wondered if anyone else that had had surgery had experienced any problems like mine? Im trying to not let it get me down but I am such an active person and normally walk my dogs for two hours a day and to have to stay in bed for 8 days & now be stuck on the sofa im finding it really difficult to stay positive and cant imagine this problem ever going away. I think to myself should I have not had the surgery? But I know for me there was no choice as it got so bad I couldnt carry on living that way I couldnt even have a period as the sensation of the bleed stung and was unbearable. Can anyone offer any postives to a very down beat sufferer? xx

sbinnzeeta

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Post  Alana3 on Thu Oct 09, 2014 7:26 pm

Read the message I sent you- everything seems ok!!! I didnt even look at my vagina for like 3 months I was too scared lol it looks normal, my boyfriend says it does look different, but he said it didnt feel different hahaha so were good Smile and he said it wasn't ugly so were good lol Very Happy

Alana3

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Post  sbinnzeeta on Thu Oct 09, 2014 7:57 pm

Thank you!! How long did you use I've for? & when were you able to go back to work? I live in uk where are u from? Are you totally pain free now? X

sbinnzeeta

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Post  sbinnzeeta on Thu Oct 09, 2014 8:02 pm

That meant to say ice!!

sbinnzeeta

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Post  Alana3 on Thu Oct 09, 2014 8:54 pm

2 weeks ice 3 weeks work I'm from Florida and I love that surgery! hahaha worked well Smile

Alana3

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