Vulvodynia Support
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» Hope to all my suffering ladies
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Allergic reaction to silicone lubricant AND polyesoprine condoms EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Allergic reaction to silicone lubricant AND polyesoprine condoms

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Allergic reaction to silicone lubricant AND polyesoprine condoms Empty Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  Trees_trees Thu Apr 23, 2015 2:57 am

So I have the good fortune to be allergic to Latex AND Silicone (dimethicone -in a lot of lubricant, lotions, conditioners, gives a silky feel). I mistakenly thought an episode triggered in 2010 was from polyesoprine (latex with the chemical most people are allergic to) condoms after mistakenly being told I had a yeast infection, herpes, and being put on acyclovir and diflucan for months with no effect because I didn't have herpes. I went on the IC diet, tried the candida diet and just about gave up.

So after 2 years I finally had intercourse again with Sagami polyurethane condoms, and unfortunately I had a horrible reaction because it turns out I am allergic to the silicone lube they put on the condom.

I think the whole thing was triggered by allergic reaction to lubricant years ago...

A) I am in pain ( it feels like broken glass is being shoved up my urethra)
B) The doctor only gave me a prescription for antibiotics


What can I do? I'm icing and heating. Im drinking wine, because 3 advil does not seem to be doing anything to help.

Also don't know what to do about birth control/ std protection because all non-latex condoms have silicone lubricant on them. I read somewhere to get a nitrile female condom and try to wash to lubricant off, but that's tricky because silicone is engineered not to go anywhere.

Thanks.

SusieQ


Last edited by Trees_trees on Thu Apr 23, 2015 3:00 am; edited 1 time in total (Reason for editing : edit on what polyesoprine is and additional question)

Trees_trees

Posts : 3
Join date : 2015-04-23

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Allergic reaction to silicone lubricant AND polyesoprine condoms Empty Re: Allergic reaction to silicone lubricant AND polyesoprine condoms

Post  toosore Thu May 07, 2015 7:53 pm

Are you absolutely sure that your reactions are due to allergy? The pain and burning after or during intercourse are typical of vulvodynia all by itself, without condoms or lubricant to cause additional problems. What exactly are your symptoms? Rash, hives, itching? or burning pain?

It's so hard to know what's going on, especially since proper medical care is so hard to find...

toosore

Posts : 18
Join date : 2012-06-18
Location : Vancouver

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Allergic reaction to silicone lubricant AND polyesoprine condoms Empty Yes, pain started after using condoms

Post  Trees_trees Fri May 08, 2015 4:37 am

Hi toosore. Thanks for your reply. The pain started after using condoms back in 2010. I never had a reaction with the Avanti Polyurethane condoms and they stopped making them. So when I tried the new ones that were polyesoprine was when I started having problems. That was back in 2010.

I did a test with the lubricant from a sagami condom on the inside of my elbow and it gave me a hive. Who knows what it did to the inside of my vagina and vulva. When I get dimethicone/silicone on my hands there are tiny blisters and eczema.

So I get varying rates of pain from acute to dull, more acute since recent exposure. The pain makes me tired.

Trees_trees

Posts : 3
Join date : 2015-04-23

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Allergic reaction to silicone lubricant AND polyesoprine condoms Empty Allergic Reactions and Risk of Vulvodynia

Post  Trees_trees Thu May 14, 2015 7:11 pm

Our data suggest that women with a history of urticaria, seasonal allergies or reaction to insect stings appear to be more prone to later development of vulvodynia than women with no history of these allergic reactions. We also showed that this association was largely confined to exposures that occurred before the first onset of vulvar pain, suggesting that allergenic exposures could be involved as, or a marker of, factors involved in the development of vulvodynia. We also observed that a history of other skin conditions, not as strongly related to an immune response, generally were not associated with the risk of vulvodynia.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2773800/

Vulvodynia is a complex disorder and described as discomfort or intense burning pain in the vulvar area. Such chronic pain affects 5 to 15% of women and many suffer of misdiagnosis. For sure the aetiology is multifactorial. Through few studies we consider the inflammatory response plays a major role. There is a genetic profile of women suffering of vulvodynia, especially genetic polymorphisms from genes coding for cytokines, Interleukin-1 receptor antagonist and Interleukin-1 beta, and gene coding for mannose-binding lectin (MBL). These polymorphisms result in a stronger inflammatory response and lay these women in a susceptibility situation. Histological analysis showed a chronic non specific inflammation. We have also demonstrated that these patients present in normal state or under infectious induction an inadequate inflammatory response. But there is still a variety of mechanisms which can interact with the inflammatory response. Management of such vulvar pain syndrome could be very frustrating, but the first step for improvement is to get the right diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/20108524v

Trees_trees

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Join date : 2015-04-23

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