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» 7 months since the diagnosis
Has anyone had a biopsy?  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Has anyone had a biopsy?  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Has anyone had a biopsy?  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Has anyone had a biopsy?  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Has anyone had a biopsy?  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Has anyone had a biopsy?  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Has anyone had a biopsy?  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Has anyone had a biopsy?  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Has anyone had a biopsy?  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Has anyone had a biopsy?

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Has anyone had a biopsy?  Empty Has anyone had a biopsy?

Post  Help!!! on Sun Apr 26, 2015 5:43 pm

Hello,

I am new to this website and thankful that I have found it. I am 26 and been suffering with vulvar pain for a year and a half how. I gave tried several things and spent a fortune in lotions and potions and pills to try. I am on amatrictilyine at the minute and some days I don't really feel it. However after sex, exercise or any stress at work then it is very painful and lasts about a week. Without the tablets I am in pain all the time. My dermatologist now thinks we should biopsy the area and investigate. It is on my left labia and i am a bit concerned as what I have read about it sounds very painful. I wondered if anyone else had a biopsy done? My pain is in a small specific area sp hoping they will be successful in removing some of the damaged tissue.

Thanks x

Help!!!

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Has anyone had a biopsy?  Empty Re: Has anyone had a biopsy?

Post  x_chelss@live.com on Sun Apr 26, 2015 10:12 pm

Hiya. I'm sorry to hear that you are suffering but I'm glad you have found this forum. I've had 5 biopsys taken. 4 around the outside of my vagina, 2 either side of the clit, and then another 2 lower down and then one inside.
They numb the area and I actually found relief for a small while whilst I had the anaesthetic down in that area. My biopsy found irritation, and imflamation. But they were actually testing for vulvar cancer!

I hope your biopsy goes well it's nothing to fear!

x_chelss@live.com

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Has anyone had a biopsy?  Empty Re: Has anyone had a biopsy?

Post  mikan92 on Mon Apr 27, 2015 3:30 am

Hi,

My gynae also told me that if my condition does not show improvement (via natural recovery) in a month's time he will do a biopsy. So I'm also wondering what the biopsy is for, because I seriously do not think that my pain is associated with cancer (it is probably triggered by something!). I am really scared that the operation will make my vulvar more inflamed/worse.

HElP! how did your vulvar pain start?
I have pain on my labia too, especially the deepest fold that connects with vestibule. I am confused because I have pain on my vulvar too, but all these are only provoked with pressure and friction. Does this sound like vulvodynia or what?

mikan92

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Post  x_chelss@live.com on Mon Apr 27, 2015 11:45 am

Yeah it sounds like vulvodynia. I had the exact same pain your describing, I had the surgery in January and I no longer experience any pain really. I still get the odd sensation off burning but nothing major! I had half off my labia removed because I had pain in the fold as well, my vagina appearance does look different but I'd say it looks better in all honesty.

My pain started 3 years ago in July, and having the operation was the best thing I'd ever done. My daily life is so much better since.
I think the trigger for me was rough sex, my parents were away on holiday and my
Boyfriend was staying with me whilst they were away, we had sex A LOT and over the week it got unbearable! I thought I had thrush but it just got so much worse and the doctors wasn't exactly helpful. Where are you from?

They test you for everything when having a biopsy, because vulva cancer causes painful intercourse and more symptoms like vulvodynia but my skin around the vestibule changed colour so that's why I had mine tested.

x_chelss@live.com

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Has anyone had a biopsy?  Empty Re: Has anyone had a biopsy?

Post  mikan92 on Mon Apr 27, 2015 1:04 pm

I'm glad that the operation worked for you! It's hard to have a normal life like everyone else with this pain down there Sad

For your case did the Drs identify a cause to your symptoms? I mean rough sex might have damaged your vulvar tissues, so does that mean the nerves are irritated?
I really don't like that they just label this condition with something "dynia", I believe there is a cause to all the pain we are experiencing and I think identifying the cause is key to effective treatments. I am living in Australia atm but am not a citizen so doesn't have medicare. It's so expensive & troublesome to see a specialist here (I need referral from all the incompetent GPs who think they know what they are doing but are just slowing down the process of me being diagnosed)!

I remember telling the gynae how I think the tissue skill looked red after the potent steroid ointment application and he said it looks normal to him (under a high magnifying microscope), not inflamed, not dry. That's why I find it odd that he still wants to do a biopsy. Maybe I'll seek a second opinion from a vulvar specialist instead.

mikan92

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Has anyone had a biopsy?  Empty Re: Has anyone had a biopsy?

Post  MensRea on Tue Apr 28, 2015 4:54 pm

I had biopsy! It wasn't bad experience at all. The biopsy of course showed inflammatory change thus vestibulodynia, which was something i knew from the beginning, but at least it ruled out other diseases.

MensRea

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Has anyone had a biopsy?  Empty Your case sounds just like mine.

Post  sweetstarfire on Fri Jul 03, 2015 4:22 pm

I am 26 as well. I have been dealing with this for 15 months. My dermatologist just did a biopsy last week and he found that my nerves were inlarged. That is when he gave me the diagnosis. It has been a rough road but I am glad I finally have a name for what I have been going through. My pain is always worse in the evenings after a day of moving around. Sex can make it worse. The biopsy wasn't as bad as I thought and it did give me information about my case. I was numb for the biopsy. I felt a little pinch for the numbing and that was it. I was uncomfortable for about a day and a half after the numbing wore off. But could start having sex about two days later. So it didn't really interfere with my day to day.
sweetstarfire
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