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» 7 months since the diagnosis
May Not Be Vulvodynia! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
May Not Be Vulvodynia! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
May Not Be Vulvodynia! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
May Not Be Vulvodynia! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
May Not Be Vulvodynia! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
May Not Be Vulvodynia! EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
May Not Be Vulvodynia! EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
May Not Be Vulvodynia! EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
May Not Be Vulvodynia! EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


May Not Be Vulvodynia!

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Post  lonelyone48 on Tue May 12, 2015 3:55 am

Ok so after being treated for vulvodynia for 10 years, I've been told it's possible that the vulva pain is due to Urethral Diverticulum which will have to be surgically removed.

lonelyone48

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Post  girlcraft on Sat Jun 04, 2016 11:37 pm

Can you elaborate on this! And have you had the surgery ?

girlcraft

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Post  lonelyone48 on Wed Jun 08, 2016 1:31 pm

Yes I had the surgery to remove the cyst and although they couldn't remove all of it, it has relieved most of my pain. The cyst was located between the urethra and vaginal wall. When I say it relieved most of the pain I mean it doesn't hurt daily anymore. If I am too physically active I can feel a little twinge that let's me I have over exerted myself. I'm just praying the little that was left will not grow and I end up having to have a repeat surgery.

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Post  let's kick this on Wed Jun 08, 2016 1:42 pm

Lonelyone 48,

How did the find the cyst ?

let's kick this

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Post  lonelyone48 on Wed Jun 08, 2016 1:50 pm

Vaginal examination. I had been to many doctors over the years and as soon as he look there he asked had anyone ever talked to me about this cyst. It amazed me that during those 10 years no one ever saw it. He says he may have taken that long to grow to the size it was to see with the naked eye and I'm assuming because he is a Vulvodynia specialist he knew exactly what to look for.

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Post  why57 on Thu Jun 30, 2016 12:13 am

I'm not seeing that anything will help The doctor says this is what I have. all I know is razor blade pain on the bottom of vagina if I try sex this all started about a year ago I have not been able to find help
I just signed up on this site and cant figure out how to send this message for help

does anyone have information for me I really really don't want surgery

thank you

why57

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Post  emalita on Thu Jun 30, 2016 12:49 pm

Hi why57,

To add your own post, just click on the grayish black button near the top or bottom of the page that says "New Topic". Can you tell us a little more about your pain?

- Do you only have pain with sex, or is it with any type of penetration (finger, tampon, etc.)?
- What treatments have you tried so far (antidepressants, anticonvulsants, lidocaine, physical therapy, etc.)?
- Do you know what triggered this pain (infection, trauma, etc.), or have you always had it with penetration?
- Have you AND your partner switched to all hypoallergenic products to rule out an allergic reaction? See the following post link for more info on that: https://vulvodyniasupport.forumotion.net/t2299-good-place-to-start-hypoallergenic-products-temporary-lifestyle-changes

emalita

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