Vulvodynia Support
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» Hope to all my suffering ladies
Steroid Ointments and Creams EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Steroid Ointments and Creams EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Steroid Ointments and Creams EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Steroid Ointments and Creams EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Steroid Ointments and Creams EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Steroid Ointments and Creams EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Steroid Ointments and Creams EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Steroid Ointments and Creams EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Steroid Ointments and Creams EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Steroid Ointments and Creams

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Post  Maple Mon Nov 30, 2015 5:32 am

I've had two cases of vulvodynia. They've been very different in terms of symptoms and types of pain, I figure I'll share how I rid myself of the first one (4 months). The second one, I still have but it has been getting significantly better (at 4.5 months presently)

The first:
-Cause: most likely by monostat 7 suppositories
-Symptoms: started with a typical yeast infection, but after treatment, vulva remained dry and stinging pretty much 24/7, peeled like a sunburn due to how dry it was.
-Doctor: Had tests for yeast, BV, and trichomoniasis (I wasn't sexually active at that age) and came back negative for all. Proceeded to be stuck in a ridiculous cycle of doctors.The 5th doctor I saw, the one who prescribed the ointment, told me that this was an "itch scratch cycle", and I swear I was not scratching it, apparently normal movement/underwear/anything can effectively "scratch" already weak skin.
-Showering: She also had me use Cetaphil non-soap cleanser. Normally I avoided soap in that region, but she said in order to remove any shampoo/conditioner residue this would be necessary.
-Laundry: I began double washing underwear in hypoallergenic detergent, though I don't believe it was the cause (because I went back to the regular stuff a few months after), it helps to eliminate all possible irritants down there.
-Cured: The ending cure for this was a steroid ointment (0.1% betaderm), I had tried a few steroid creams before this was tried, but for some reason the creams didn't work. The ointment was used twice daily and felt better within a week, but I continued to use it for the prescribed two weeks. In the first month or so after that I would occasionally have flare-ups and have to use the ointment 2-3 times but after 2 months I was rid of all symptoms for 2 full years.

The second:
-Cause: occurred after yet another yeast infection, treated with terazol cream. (Also occurred 4 months after starting birth control pill, but I believe that wasn't a large factor/cause, and will restart pill if/when I get everything cleared up).
-Symptoms: Vulva swelling, sometimes very red, periodic greyish discharge that stings on contact with skin. Stinging and burning pain.
-Doctors: I've seen 7 of them. Been STD tested twice, and vaginal cultures 3 times, everything is negative. Most credible doctor: infectious disease specialist.
-Tried (failed): Cetaphil + betaderm + new detergent = not cured, caused another yeast with the steroid ointment (betaderm). Probiotic suppositories = Resulted in yeast. Lactic acid tubes = soothing, but effectively did nothing. 7-diflucans over 7 days, this was a dumb idea by an idiot doctor. Improved the problem for about a 10 day period, then got worse.
-Tried (successes): Epsom salt sit-bath. Blowdrying down there after showering, swimming, or sit-bathing. Taking a Benadryl every night To relieve itching, therefore prevent unconcious scratching (whatever it is isn't an allergy because I tried going days without pants and with sink showers to wash my hair, and no gain). Hydrocortisone (0.5%) cream on the outer lips only (even though most of the pain is on the inner lips). Deep massage of groin region surrounding vulva trying to loosen muscles in the area.


Few things about me:

I'm a frequent swimmer. Presently I only swim about 4-5 times a week, but was at 11 times a week at my highest. Leading up to the first one I spent a full summer with biking as my only method of transportation and was swimming in a saltwater pool 6days/week. Thankfully, the problems set in after I was back at home and able to ditch the bike.

The second bout set in midway through a summer of biking as a primary transport.

I personally would much rather blame biking than swimming, but gynocologists disagree. I've tried quitting swimming but have never had any improvement from quitting, and have often gotten worse in my time off.

Maple

Posts : 2
Join date : 2015-11-30

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Steroid Ointments and Creams Empty Re: Steroid Ointments and Creams

Post  WaahwaahUK Tue Dec 08, 2015 5:16 pm

Thank you for this post. I'm going to try Epsom baths actually, and this has encouraged me more so.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

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