Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
Whoever needs help  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Whoever needs help  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Whoever needs help  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Whoever needs help  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Whoever needs help  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Whoever needs help  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Whoever needs help  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Whoever needs help  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Whoever needs help  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Whoever needs help

3 posters

Go down

Whoever needs help  Empty Whoever needs help

Post  Sugar Thu Dec 10, 2015 1:00 am

İ have being suffering with vulvoldynia almost 3 years now, and ladies pls pls pls be calm,the pain will not stay with you forever or let's say it's not gonna be as painful as it is now
Most important step to fight with this disease is being calm, stress free and believe, believe that it's gonna leave you soon and you'll be pain free Wink
Anyone needs help I am here to support whenever I could

Sugar

Posts : 2
Join date : 2015-12-10

Back to top Go down

Whoever needs help  Empty Re: Whoever needs help

Post  PainBlogger Thu Dec 10, 2015 8:58 am

That's good advice. Positive thinking is difficult, but studies have proven that patients with a more optimistic outlook generally have a better prognosis than those who are more pessimistic. It can be useful to adopt a 'one day at a time' attitude - this is how the pain is now, but that's not to say it'll be just as bad three or six months down the line.

PainBlogger

Posts : 219
Join date : 2015-07-27

Back to top Go down

Whoever needs help  Empty Re: Whoever needs help

Post  Sugar Thu Dec 10, 2015 11:00 am

I agree, and there are so many people in the world who has worse disease than vulvodynia such as cancer, I know this may not help people think possitive while they have pain, but ladies do not concantrate on your pain, make yourself Busy, when I was diagnosed with vulvodynia, I cried and cried and cried, I thought I would never be able to married, have sex and have kids
But I was wrong thanks to God Smile

Sugar

Posts : 2
Join date : 2015-12-10

Back to top Go down

Whoever needs help  Empty Re: Whoever needs help

Post  WaahwaahUK Fri Dec 11, 2015 12:05 pm

Sugar I agree that trying to stay positive is key to recovery, along with empowering yourself with information and strategies. Of course we are all only human and some days that's a more manageable task than others. But I personally try to keep going and stay positive as much as I can. May I ask what happened for you please? What your experience was?

WaahwaahUK

Posts : 117
Join date : 2015-07-31

Back to top Go down

Whoever needs help  Empty Re: Whoever needs help

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum