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Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Hello from Northern Norway
2 posters
Page 1 of 1
Hello from Northern Norway
Hi, very glad that I just found this forum. Today my fears became confirmed: The burning, itching everlasting pain in all parts of the vulva and the labia major is indeed generalized vulvodynia.
But let me introduce myself:
I am writing from Northern Norway, only a few hours drive south of the North Cape. Born German, I live there for nearly 30 years, teaching music at the local School for Culture. I am 66 years old and shall retire at the end of this year. I live alone after a marriage with an alcoholic long ago. I have no kids (due to heavy migraines all my life), but a precious cat-family of 5. Antaea is my pagan name, I am eclectic witch and deeply rotfasted in our subarctic nature - or in nature generally. But next year I shall move to the Swedish island of Gotland in the Baltic to live there with my sister for the rest of our lives.
I had an episode of nerve-pain in 2007/2008, when the doctor found out that my estrogen levels were extremely low. After 9 months they were normal and the pain ceased.
In March this year I had a cystitis and was treated with 3 different antibiotics. I got problems and pains in the vulva, but meant, it was due to the cystitis. But it never got away, it only became worse. Now I have it 24/7 and no painkiller, no topical treatment works.Only Tramadol takes the top of the pain at night and gives me a day with little pain the morning after. I observe all the general advices like no soap etc. But I have to admit: Pain will be a part of my life until I die. On Friday i'll start with Gabapentin, and a fortnight later I shall meet my doctor for an evaluation.
I need therapy suggestions and, first of all, input in how to live a good life in spite of the pain. I am open too for alternative therapies.
I also hope to be able to give something back to you. You can find me under my user name on Facebook too.
Whishing you a painless day in your part of the world. Here it is 8 pm.
God kveld (Good evening) from Antaea
But let me introduce myself:
I am writing from Northern Norway, only a few hours drive south of the North Cape. Born German, I live there for nearly 30 years, teaching music at the local School for Culture. I am 66 years old and shall retire at the end of this year. I live alone after a marriage with an alcoholic long ago. I have no kids (due to heavy migraines all my life), but a precious cat-family of 5. Antaea is my pagan name, I am eclectic witch and deeply rotfasted in our subarctic nature - or in nature generally. But next year I shall move to the Swedish island of Gotland in the Baltic to live there with my sister for the rest of our lives.
I had an episode of nerve-pain in 2007/2008, when the doctor found out that my estrogen levels were extremely low. After 9 months they were normal and the pain ceased.
In March this year I had a cystitis and was treated with 3 different antibiotics. I got problems and pains in the vulva, but meant, it was due to the cystitis. But it never got away, it only became worse. Now I have it 24/7 and no painkiller, no topical treatment works.Only Tramadol takes the top of the pain at night and gives me a day with little pain the morning after. I observe all the general advices like no soap etc. But I have to admit: Pain will be a part of my life until I die. On Friday i'll start with Gabapentin, and a fortnight later I shall meet my doctor for an evaluation.
I need therapy suggestions and, first of all, input in how to live a good life in spite of the pain. I am open too for alternative therapies.
I also hope to be able to give something back to you. You can find me under my user name on Facebook too.
Whishing you a painless day in your part of the world. Here it is 8 pm.
God kveld (Good evening) from Antaea
Antaea- Posts : 29
Join date : 2016-05-11
Age : 74
Location : Gotland/Sweden
Re: Hello from Northern Norway
Hi Antaea!
Those darn antibiotics are what do a lot of us in unfortunately. My pain was caused by 4 rounds of very unnecessary antibiotics that I had trusted my doctors to prescribe appropriately (I know better now).
I'm absolutely no expert, but I've been around the block more than once trying to relieve my pain the last 2 years. So, I'm happy to share what has and hasn't worked for me so far. Can you provide more details on your pain? You mention it is burning and itching on your entire vulva. Are any areas worse than others (e.g. inner labia, vaginal opening, etc.)? Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)? Is the pain worse at any particular time (e.g. going to the bathroom, after showering, etc.)? What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)? Do you have excessive discharge that makes your pain worse?
Sorry for all the questions, but the more details you can give, the better suggestions we can provide without boring you with some that probably won't be relevant to your pain. Obviously only provide information for what you are comfortable sharing. Nothing is too much information here...we've all heard it before
Those darn antibiotics are what do a lot of us in unfortunately. My pain was caused by 4 rounds of very unnecessary antibiotics that I had trusted my doctors to prescribe appropriately (I know better now).
I'm absolutely no expert, but I've been around the block more than once trying to relieve my pain the last 2 years. So, I'm happy to share what has and hasn't worked for me so far. Can you provide more details on your pain? You mention it is burning and itching on your entire vulva. Are any areas worse than others (e.g. inner labia, vaginal opening, etc.)? Are there any physical changes to your vulvar appearance (e.g. whitening, scarring, etc.)? Is the pain worse at any particular time (e.g. going to the bathroom, after showering, etc.)? What conditions have been ruled out for you (e.g. yeast, bacterial vaginosis, etc.)? Do you have excessive discharge that makes your pain worse?
Sorry for all the questions, but the more details you can give, the better suggestions we can provide without boring you with some that probably won't be relevant to your pain. Obviously only provide information for what you are comfortable sharing. Nothing is too much information here...we've all heard it before
emalita- Posts : 249
Join date : 2016-03-29
Location : USA
Re: Hello from Northern Norway
Hi Emalita,
thank you for asking. That's the reason why I am here.
I have no discharge at all. After the menopause I am very dry. The pain is mainly and worst in the vestibulum and the clitoris, but can change to the inner labia. The outer labia feel like sitting on a brush. All other conditions had been ruled out. No vaginitis, no bacteria, vira, no herpes or papilloma-virus. No lichen sclerosus. The vulva looks just fine. I use estrogen-cream (Ovesterin) which is not availalbe in the States, only in Canada. I used hyaloronic acid too, but it made things worse after a time. Just now I rinse with water only every time I am in the bath room and use almond oil. I also use Lidocain topical at night and Tramadol every second day. I shall start with Gabapentin and I am very afraid of the side- effects because I shall travel 2300 km by car on June 15th with the caravan and my cat-family. More about that in a second thread.
thank you for asking. That's the reason why I am here.
I have no discharge at all. After the menopause I am very dry. The pain is mainly and worst in the vestibulum and the clitoris, but can change to the inner labia. The outer labia feel like sitting on a brush. All other conditions had been ruled out. No vaginitis, no bacteria, vira, no herpes or papilloma-virus. No lichen sclerosus. The vulva looks just fine. I use estrogen-cream (Ovesterin) which is not availalbe in the States, only in Canada. I used hyaloronic acid too, but it made things worse after a time. Just now I rinse with water only every time I am in the bath room and use almond oil. I also use Lidocain topical at night and Tramadol every second day. I shall start with Gabapentin and I am very afraid of the side- effects because I shall travel 2300 km by car on June 15th with the caravan and my cat-family. More about that in a second thread.
Antaea- Posts : 29
Join date : 2016-05-11
Age : 74
Location : Gotland/Sweden
Re: Hello from Northern Norway
Hmm...I'm just going to start rambling off ideas, and I hope some are helpful
Since your pain started after taking antibiotics, have you tried supplementing with a good probiotic meant for vaginal health? I use Fem-Dophilus, but I'm not sure if that's available by you.
One of the first things my Naturopath and Functional Medicine Practitioner focused on was improving my gut health because a large part of your immune system is in your gut. They gave me all sorts of supplements, which did nothing, but a diet rich in whole plant foods as well as fermented foods or things like kefir can help. Unfortunately none of that made any difference for me, but it doesn't hurt to give your immune system a good boost with a healthy diet.
My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after every urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day. I personally haven't used it yet, but the other patients of his that I spoke to said it was a life saver. It is supposed to reduce inflammation, itching, and irritation. This may be worth looking into.
Now I'm sure you know this already, but I have to add it all just in case. Eliminate all chemicals that are coming into contact with your vulva. This includes: flushable or feminine wipes (they are the devil in wipe form), shampoo (my OBGYN has me washing my hair in the sink - he says it only takes a single drop in the shower to set off a reaction), laundry detergent (I make my own, but my OBGYN recommends All Free & Clear or Cheer Free & Gentle), shaving cream (my OBGYN recommends Vanicream Shaving Cream), super soft or scented toilet paper (lots of chemicals go into making super plush TP), douches, etc.
I hope you find relief soon! Hang in there, this doesn't have to be forever
Since your pain started after taking antibiotics, have you tried supplementing with a good probiotic meant for vaginal health? I use Fem-Dophilus, but I'm not sure if that's available by you.
One of the first things my Naturopath and Functional Medicine Practitioner focused on was improving my gut health because a large part of your immune system is in your gut. They gave me all sorts of supplements, which did nothing, but a diet rich in whole plant foods as well as fermented foods or things like kefir can help. Unfortunately none of that made any difference for me, but it doesn't hurt to give your immune system a good boost with a healthy diet.
My specialist recommends rinsing (not spraying) the vestibule with Gordon’s Boro-Packs after every urination (I believe the brand Domeboro is basically the same thing). It comes in a powder that you mix with water in a squirt bottle. I believe one packet should be good for the whole day. I personally haven't used it yet, but the other patients of his that I spoke to said it was a life saver. It is supposed to reduce inflammation, itching, and irritation. This may be worth looking into.
Now I'm sure you know this already, but I have to add it all just in case. Eliminate all chemicals that are coming into contact with your vulva. This includes: flushable or feminine wipes (they are the devil in wipe form), shampoo (my OBGYN has me washing my hair in the sink - he says it only takes a single drop in the shower to set off a reaction), laundry detergent (I make my own, but my OBGYN recommends All Free & Clear or Cheer Free & Gentle), shaving cream (my OBGYN recommends Vanicream Shaving Cream), super soft or scented toilet paper (lots of chemicals go into making super plush TP), douches, etc.
I hope you find relief soon! Hang in there, this doesn't have to be forever
emalita- Posts : 249
Join date : 2016-03-29
Location : USA
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Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer