Log in

I forgot my password

Latest topics
» 7 months since the diagnosis
Vulvodynia burning mouth and bladder discomfort  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Vulvodynia burning mouth and bladder discomfort  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Vulvodynia burning mouth and bladder discomfort  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Vulvodynia burning mouth and bladder discomfort  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Vulvodynia burning mouth and bladder discomfort  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Vulvodynia burning mouth and bladder discomfort  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Vulvodynia burning mouth and bladder discomfort  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Vulvodynia burning mouth and bladder discomfort  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Vulvodynia burning mouth and bladder discomfort  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Vulvodynia burning mouth and bladder discomfort

Go down

Vulvodynia burning mouth and bladder discomfort  Empty Vulvodynia burning mouth and bladder discomfort

Post  Annmaria on Sat Oct 15, 2016 12:35 am

I have been diagnosed with vulvodynia and I also have burning mouth pain at the same time. I was convinced I must have herpes simplex but I have exhaustively tested negative for this including having a western blot test which is the gold standard test for herpes simplex.
Now I just don't know what to do and would love to hear from anyone who might be able to advise... Is there anyone out there who has experienced burning mouth and vulvodynia together and if so did you find anything to help relieve the discomfort of the mouth?
I also find with the V symptoms I get a full bladder feeling... it isn't cystitis but is uncomfortable... any advice on dealing with this also?
I've given up on trying to get any medical support and I have been asked by doctors if I suffer health anxiety... no one seems to understand that this is real!
I just want one pain free day but suspect that this just isn't going to happen
I'm 57 and so post menopausal

Thanks very much

Annmaria

Posts : 7
Join date : 2016-05-01

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  PainBlogger on Sat Oct 15, 2016 10:21 am

With regards to the bladder symptoms I'd suggest (if you're not already doing this) cutting out: caffeine, alcohol, carbonated drinks, artificial sweeteners, and citrus fruits/juice. Decaffeinated tea/coffee is best avoided too as it's still acidic and can irritate. I still have some caffeine because I do eat chocolate, but by cutting out the above and switching to redbush tea or peppermint tea as my hot drinks I noticed a lot less urge to empty my bladder when I didn't really need to. I don't limit my fluids - in fact, I drink about 10-12 large mugs of (redbush/peppermint) tea per day plus plain water. When I empty my bladder now it is generally pretty full and I empty 6-7 times a day, which is normal.

I can't offer any advice on the burning mouth issue. I don't get that thankfully.

I hope you get some relief soon.


PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  Annmaria on Sat Oct 15, 2016 11:47 am

Thank you so much!

I do drink redbush as it's the closest to thinking you are drinking tea and I make a lot of teas from herbs I grow. Is the bladder thing a common symptom? I am so confused with this partly because of the mouth symptoms ( which now I think about it probably started first) I really struggle with not understanding why I have got this which is why I assumed I must have had herpes simplex .

I think some of this for me is learning to not overthink things and if I could just get one symptom under control it would be a relief!

Thanks again

Annmaria

Posts : 7
Join date : 2016-05-01

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  PainBlogger on Tue Oct 18, 2016 4:33 pm

A lot of women with vulvodynia also have some bladder involvement. It's not surprisingly really given how close together everything is down there.

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  Alana3 on Wed Oct 19, 2016 8:02 pm

Check out IC. Thar could result in bladder pain...

Alana3

Posts : 1093
Join date : 2012-09-25

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty To Annmaria

Post  Tilly56 on Wed Nov 30, 2016 9:55 am

hi, you sound similar to me I'm 56 menopausal. As regards bladder, I always show blood on urinalysis strip, suffer dys vulvo. Are there anyways that help you, Lyrica helps me.

Tilly56

Posts : 9
Join date : 2016-11-27

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  Eliza123 on Fri Dec 02, 2016 2:39 am

I used to have burning tongue and mouth....thought it would never go away. This was before I got vulvadynia. It did go away but I wonder if the burning is somehow related. I also got atrial fibrillation in between! It's been a tough couple of years.

Eliza123

Posts : 2
Join date : 2016-11-27
Age : 70
Location : Florida

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  Annmaria on Sun Dec 04, 2016 9:21 pm

Hi Eliza
Sounds as though you have had a tough time! I think the Vulvodynia started a little before the burning mouth for me but the mouth burning is what really gets to me. I have recently had some days where it has been OK and then it comes back. It doesn't seem as bad now though. I was wondering however: How long did you have it for and did you find you got some days without it once it started to go away?
I have some medication from the doctor but I've been coping better using meditation and trying to reduce stress by not obsessing over it !
I do think there must be a connection between the two conditions but I don't come across many people who experience it!
Thank you for your reply


Annmaria

Posts : 7
Join date : 2016-05-01

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  Zbrown on Fri Nov 10, 2017 7:26 pm

Yeah I have both aswell sorry I know this is a old post but yeah I do feel as if it's stress sometimes but I don't know the burning mouth pain is so annoying it comes and goes I can't pin point a trigger if I'm honest xx

Zbrown

Posts : 131
Join date : 2014-02-26

View user profile

Back to top Go down

Vulvodynia burning mouth and bladder discomfort  Empty Re: Vulvodynia burning mouth and bladder discomfort

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum