Thu May 10, 2018 9:43 am by Rosie21
Sat Aug 01, 2015 4:17 pm by Fielder
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Fri Mar 08, 2019 10:57 pm by Persevere1990
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Thu Feb 21, 2019 5:49 am by Jet227
Thu Feb 28, 2019 11:33 pm by PANDORA123
Fri Feb 08, 2019 7:35 pm by rl2091
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Tue Jan 08, 2019 3:55 pm by flissyg
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Wed Dec 05, 2018 3:26 pm by Cin124
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Wed Jan 09, 2019 9:09 pm by Jma990o
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
I have been suffering with Vulvodynia since 2013 when I was 21. Had previously not had any problems down there other then the occasional yeast infection. It started in 2012 when I was put on Beyaz birth control. After a couple months on bc, I got a kidney/bladder infection that lasted for 5 months. First one in my life! Was placed on Bactrim (didn't work) and Cipro numerous times. My Gyn finally gave me a 20 day supply of Cipro that did finally get rid of the infection. During the last course of Cipro I started getting the signs of Vulvodynia starting around my anus. I also want to mention during these 5 months I was also getting recurrent yeast infections from the antibiotics. I was prescribed the standard Diflucan for that along with getting otc Monistat. After visiting my Gyn and telling her the syptoms, she referred me to a Urogynecologist. He asked me questions and did the Q-Tip test which did not cause pain. He also told me my pelvis was normal. I was prescribed cream compound of Amitriptyline with Baclofen to apply when needed. The cream gave instant relief. I was pretty much symptom free for 2 years! I was able to wear jeans, sit for as long as I wanted and have sex. It was great! I started to forget that I had Vulvodynia until September 2015 when I got Bacterial Vaginosis and haven't been right ever since. Went back to the Urogynecologist who told me to keep applying the cream (still am) and to take birth control (no way!). I found a doctor in the next state over who specializes in Vulvar pain and she prescribed me oral Amitriptyline low dose. I took that for 4 days and had a panic attack (didn't see any difference in pain, maybe too soon?). Then we tried the lowest dose possible of Gabapentin, took for 1 day and it was horrible, could not remember a thing. The doctor wanted to keep pushing medication which I'm now scared to death of so I stopped going there. I'm now trying physical therapy, on my 3rd week, not sure if it's helping or not but I'm doing the exercises everyday. I am wondering what to try next? My sypmtoms are confusing and contradictory. Usually I am in no pain during my period but sometimes it makes it worse. All other days I'm in pain except during the few days of ovulation. Standing up and laying down feels ok, sitting for the most part feels bad. My Vulvodynia is good in the morning and gets worse towards the end of the day. It's not affecting my sleep, but it's hard to wake up knowing I'm going to be in pain that day. Tampons don't hurt nor does sex. However, a day or so after sex I get flare ups that can last for months. Also I'm still getting sharp pains in my anus. Pretty much get pain all over down there.. One of my doctors thought it was from nerve damage hurting my tail bone 15 years ago, but I'm not too sure, why would it start now? I've been putting coconut oil on, it's not helping though. I think I'm going to try shaving a little down there even though it hurts so my compound cream can reach my skin better. I do oatmeal sitz baths once in a while and while in gives me relief, the pain always comes right back. I'm seeing my Urogynecologist next week and would like to be able to give him recommendations on things to try. Thing is I don't want to try something that isn't worth it because it costs a lot of money for testing with my insurance! I'm trying to narrow this down between nerve damage, hormones, yeast, etc..? I've been thinking of Acupuncture but am a little skeptical. Any advise? This all feels like a bad dream that I can't wake up from!
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Join date : 2016-11-27
If you go here: https://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement you can read what I've tried.
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Age : 29
Location : Dorset, Near Dorchester
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Join date : 2013-09-28
Age : 27
Location : Brighton, England, UK.
I feel like I could have written your story!!
I have been dealing with the same issues for 2 years and it started after taking Cipro.
I had a bartholin cyst abscess and took several courses of it. I started having rectal pain, then pelvic pain.
Sitting is the absolute worst and my pain is most intense in the evening and at night.
I can go for periods of time where I have no pain at all then something (I am never sure what) will flare it up again.
I have tried Amatryptiline, Gabapentin and other medications and I cannot tolerate them at all.
I tried acupuncture and I think I will be going back to that because it did seem to help some.
This is a terrible pain that you cannot really describe and certainly not discuss openly.
It's not like you can say you have a headache or a backache.
It's exhausting and overwhelming.
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Join date : 2016-12-13