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    » 7 months since the diagnosis
    Has anyone tried Reflexology as a treatment EmptyWed Aug 14, 2019 2:38 am by agtoronto

    » Gabapentin Gel. or other topical creams
    Has anyone tried Reflexology as a treatment EmptySat Jun 15, 2019 5:22 pm by mary jane

    » IMPORTANT FOR UK SUFFERERS
    Has anyone tried Reflexology as a treatment EmptySat Jun 15, 2019 5:21 pm by mary jane

    » Help New Diagnosis
    Has anyone tried Reflexology as a treatment EmptySat Jun 15, 2019 5:07 pm by mary jane

    » 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
    Has anyone tried Reflexology as a treatment EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

    » Vestibulectomy next week in London!! - questions!!
    Has anyone tried Reflexology as a treatment EmptyWed Apr 24, 2019 8:32 pm by HedvigB

    » Dating with Vulvodynia and Vaginismus advice
    Has anyone tried Reflexology as a treatment EmptyFri Apr 19, 2019 10:25 pm by Tartufo

    » Research Participants Needed!
    Has anyone tried Reflexology as a treatment EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

    » Does anyone else have Endometriosis?
    Has anyone tried Reflexology as a treatment EmptyMon Apr 08, 2019 7:54 am by Jo44

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 2

    Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

    Sat Aug 01, 2015 4:17 pm by Fielder

    Hi everyone,

    I'm a newbie.  I live in the UK.  

    I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

    I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

    Comments: 11

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

    Thanks

    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3


    Has anyone tried Reflexology as a treatment

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    Has anyone tried Reflexology as a treatment Empty Has anyone tried Reflexology as a treatment

    Post  Roselilyflower on Wed Nov 30, 2016 8:54 pm

    Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an official diagnosis of vulvodynia. I was perscribed steroid cream and licodine which burnt and didnt make much difference to the pain. I was then put on nerve blockers such as amitotrypline (forgot how to spell it lol) which have worked but then I decided to try reflexology which was very relaxing. I have only had one session and I have booked another in 2 weeks time. Have any of you lovely people tried this method of treatment if so please tell me your experience and whether there are any other treatment options you have used which have been successful? Thanks for reading :-)

    Roselilyflower

    Posts : 4
    Join date : 2016-11-30
    Age : 29
    Location : Dorset, Near Dorchester

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    Has anyone tried Reflexology as a treatment Empty Re: Has anyone tried Reflexology as a treatment

    Post  LuLu81 on Sat Dec 03, 2016 11:29 am

    Hi Roselilyflower,
    I know how much you're wanting answers to all of your questions...I too am on the hunt to understanding this. I'm currently trying dietary changes. Nothing working yet ;(
    I just wanted to suggest you join the SECRET facebook page run by the lovely ladies who also run this forum. Contact Sebby or Naomi on your private messages. More people on that that can probably give you advice Smile
    Good luck with your journey...

    LuLu81

    Posts : 5
    Join date : 2016-09-19
    Location : Australia

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    Post  Roselilyflower on Sun Dec 04, 2016 10:50 am

    Thank you Lulu :-) thats A great help, good luck with yours too x

    Roselilyflower

    Posts : 4
    Join date : 2016-11-30
    Age : 29
    Location : Dorset, Near Dorchester

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    Post  Persevere1990 on Wed Feb 22, 2017 12:34 am

    Hello... our experience of getting vulvodynia sounds very similar so I wanted to reach out and see how you are. I just began using lidocaine nightly a week ago... no change yet....

    Persevere1990

    Posts : 4
    Join date : 2017-02-22

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