Vulvodynia Support
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» Hope to all my suffering ladies
New to forum and despairing with vulva pain EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
New to forum and despairing with vulva pain EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
New to forum and despairing with vulva pain EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
New to forum and despairing with vulva pain EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
New to forum and despairing with vulva pain EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
New to forum and despairing with vulva pain EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
New to forum and despairing with vulva pain EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
New to forum and despairing with vulva pain EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
New to forum and despairing with vulva pain EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


New to forum and despairing with vulva pain

2 posters

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New to forum and despairing with vulva pain Empty New to forum and despairing with vulva pain

Post  Sap22 Tue Dec 06, 2016 9:37 am

I am in feeling very down and in despair. I just can't see any light at the end of the tunnel. After months of bladder problems in August 2015 I got better then was diagnosed with Vaginal Atrophy in May 2016, which was improved by systemic HRT and vagifem. When I went to see my menopause specialist for follow up this September she diagnosed Lichen planus and told me to use steroid cream and vaseline. I didn't believe her (gut feeling!) and went to see another sexual health consultant in London who did an internal and gave me a good report regards the vaginal health (PH, no inflammation, VA or lichen planus etc). However, that caused a lot of delayed pain but improved after 10 days. Both she and the menopause specialist decided I should see a vulva dermatologist to definitely rule of LP as they disagreed. I saw her three weeks ago and although she can categorically say I do not have LP and is glad I didn't use the steroid cream, ever since she did the Q tip test I have had vulval pain/tenderness and it's getting me down so much. She diagnosed vulvodynia and secondary vaginismus. I can't use the vagifem I am supposed to use, as it makes it worse and this is worrying me because I don't want the atrophy coming back. Haven't used it for 14 days now. Last night I tried to gently put on a little barrier emollient to protect the area but I woke up in agonising burning pain at 2am. I am also having breakthrough bleeding (possibly from increased oestrogen) and will soon have an ultrasound, but I know I won't tolerate the transvaginal ultrasound, as I have significant touch tenderness now.

I just don't understand how the vulvodynia can worsen when I have used HRT and moisturisers recommended to treat the vaginal atrophy, and improved the situation enormously, but now am left with what I am told is neuropathic pain and cannot continue with local HRT treatment, or get on with life - just the simplest things like sitting is uncomfortable or wearing clothes down there is difficult. I am aware of it all the time and had to give up my job. I am just so depressed about it, as I can't get on with life. I started acupuncture (2 treatments) which I think helped with the prickly pain I was having, and am due to go this thursday but the touch tenderness is really bad.
I wondered if anyone else can identify with this and how they moved forward. Is it a question of time and not touching it. How can I move forward. Thank you for reading and sorry it's such a depressing post... xx

Sap22

Posts : 2
Join date : 2016-12-06

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New to forum and despairing with vulva pain Empty Re: New to forum and despairing with vulva pain

Post  PainBlogger Tue Dec 06, 2016 4:33 pm

Have any drugs such as amitriptyline, pregabalin or duloxetine been mentioned to you? i.e. drugs used for nerve pain. These can be really helpful to some people. I'm doing really well on duloxetine. The cause of my pain is different to yours (https://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement) but nerve pain is nerve pain, whatever the root cause.

Acupuncture can be good too. If you've had some success with that then I'd definitely suggest continuing with it.

I hope you soon feel more positive. This is a horrible condition, but it doesn't have to be forever.

PainBlogger

Posts : 219
Join date : 2015-07-27

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New to forum and despairing with vulva pain Empty Re: New to forum and despairing with vulva pain

Post  Sap22 Tue Dec 06, 2016 6:35 pm

PainBlogger wrote:Have any drugs such as amitriptyline, pregabalin or duloxetine been mentioned to you? i.e. drugs used for nerve pain. These can be really helpful to some people. I'm doing really well on duloxetine. The cause of my pain is different to yours (https://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement) but nerve pain is nerve pain, whatever the root cause.  

Acupuncture can be good too. If you've had some success with that then I'd definitely suggest continuing with it.

I hope you soon feel more positive. This is a horrible condition, but it doesn't have to be forever.

Hi and thanks for your response. I have the option of nortryptaline, as tried amitrityline but didn't like the side effects. Fortunately the burning pain has subsided but it's really hard to accept this condition and I will look up the duloxetine, so thank you x

Sap22

Posts : 2
Join date : 2016-12-06

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New to forum and despairing with vulva pain Empty Re: New to forum and despairing with vulva pain

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