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» 7 months since the diagnosis
Long time vulvar vestibulitis/vaginismus sufferer EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Long time vulvar vestibulitis/vaginismus sufferer EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Long time vulvar vestibulitis/vaginismus sufferer EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Long time vulvar vestibulitis/vaginismus sufferer EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Long time vulvar vestibulitis/vaginismus sufferer EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Long time vulvar vestibulitis/vaginismus sufferer EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Long time vulvar vestibulitis/vaginismus sufferer EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Long time vulvar vestibulitis/vaginismus sufferer EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Long time vulvar vestibulitis/vaginismus sufferer EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Long time vulvar vestibulitis/vaginismus sufferer

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Long time vulvar vestibulitis/vaginismus sufferer Empty Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Sun Dec 11, 2016 3:44 pm

Hi all,
So I have been struggling with vulvar/vaginal pain for a long time now to the point that I've never been able to have intercourse or use a tampon. I am currently seeing a specialist doctor and have gone through physical therapy but it has mostly taken care of the day to day pain and the pain when I work out, still no sign of the pain on contact decreasing. One of the things that annoys me the most is that I am also anorgasmic so I pretty much can only do things *for* a partner during sex which is really one-sided and I can't masturbate. I've brought that up with my doctor but he didn't have any suggestions. My sex drive has also plummeted in the last year or two. Not sure if it's because I associate sex with pain or what. My mom has been wanting me to get my hormone levels tested but I'll have to press for it more with my doctor since he's mostly tried to augment my estrogen using birth control so far.
I'm on:
currently 5 gabapentin a day
topical estrogen and a gabapentin/other drug mixture
stretches which I should be doing daily but haven't been doing as much these days
I'm also trying the anti-oxalate diet and have cut out a bunch of foods for that.

Anyone who can relate/with advice? Neutral

speechie123

Posts : 6
Join date : 2016-12-11

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Post  PainBlogger on Tue Dec 13, 2016 7:13 pm

Have you tried acupuncture? What about lidocaine gel/ointment for the contact pain?

PainBlogger

Posts : 219
Join date : 2015-07-27

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Long time vulvar vestibulitis/vaginismus sufferer Empty Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Thu Dec 15, 2016 9:34 pm

I think I've been given lidocaine at least once. Never tried acupuncture though I'm sure I will at *some* point. There seems to be a lot of different things causing the pain (nerve stuff and muscles and possibly skin irritation or even an estrogen deficiency).

speechie123

Posts : 6
Join date : 2016-12-11

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