Vulvodynia Support
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» Hope to all my suffering ladies
Does it go away? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Does it go away? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Does it go away? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Does it go away? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Does it go away? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Does it go away? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Does it go away? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Does it go away? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Does it go away? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Does it go away?

3 posters

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Post  cam4221 Fri Apr 28, 2017 12:16 am

I started having problems in May 2016 and it took seeing 5 doctors to finally get diagnosed after 6 months of pain. I've been taking ami @ 75mg and also taking gabapentin 600 mg multiple times a day. It seems that there are times that this condition just disappears and then comes back at random times. Does anybody go through that? Also does anybody else get infections more often than they did before this condition came on? Also does anybody feel like when they are ovulating that it's extra gunky down there? I'm not sure if maybe I notice my ovulation more because of this condition and it may be the normal amount but I just am unsure on how everyone feels and sometimes it's hard to describe to a doctor when they don't have that condition and it seems that not many doctors know about this condition....

cam4221

Posts : 1
Join date : 2017-04-28

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Post  SinclairSassy Mon May 22, 2017 1:55 pm

Hey there!

When I am on my period, I feel completely fine. I can wear jeans, underwear, you name it. But once I am off my period, my symptoms come back at random times. I might have a few days where I don't feel much pain (of course, I take my gabapentin every day, regardless of pain), then bang, I'm back to sitting on an ice pack. Recently, the pain has been gone during the day and around 9:30pm it returns. Just in time to guarantee a sleepless night. My IC is like this, too. I am fine during the day, but once it is about time to go to bed, I start feeling pain. My IC is not affected by diet. About every other year I get a huge flare that lasts a month or two. Sorry, I am rambling. Cool

SinclairSassy

Posts : 27
Join date : 2016-08-02
Location : Huntsville, AL

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Post  mary jane Mon May 22, 2017 2:12 pm

yes, it will and the more you believe it the better these chances are.
It can go away forever or come back again after some years but it is still very possible to achieve at least a remission. Don't let anyone tell you it's for life because people are different and don't forget there is also something called spontaneous remission.

Some years ago, I had a very bad nocturnal panic attack and the ambulance was called because I was hysterical and telling everyone I'm dying Shocked l, in an effort to calm me down, one of the ambulance ladies told me she once had cystitis for 6 full months ! and that one day it disappeared the same way it appeared for her...for no obvious reason. So there you go!

Try and read positive stories and maybe buy some positive books on remissions from illness, it helps a lot to stay positive
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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