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» 7 months since the diagnosis
Pain management - what works for me  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Pain management - what works for me  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Pain management - what works for me  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Pain management - what works for me  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Pain management - what works for me  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

» Vestibulectomy next week in London!! - questions!!
Pain management - what works for me  EmptyWed Apr 24, 2019 8:32 pm by HedvigB

» Dating with Vulvodynia and Vaginismus advice
Pain management - what works for me  EmptyFri Apr 19, 2019 10:25 pm by Tartufo

» Research Participants Needed!
Pain management - what works for me  EmptyThu Apr 11, 2019 2:09 pm by PelvicPainProject

» Does anyone else have Endometriosis?
Pain management - what works for me  EmptyMon Apr 08, 2019 7:54 am by Jo44

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Pain management - what works for me

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Pain management - what works for me  Empty Pain management - what works for me

Post  sj17 on Tue May 16, 2017 4:11 pm

Hi all,
This is a quick message just to let you know what has been the only thing really to significantly reduce my pain and that is CBD oil. I would recommend you do a bit of research before buying it however it is largely available in the US and in the U.K. through CBD brothers. It is much more effective than nerve medications such as Neurotin or Gabapentin etc. and has less side effects. It is completely legal as it does not contain the illegal properties made from cannabis which is the THC nor is it medical marijuana. It's a type of hemp oil that has been repeatedly effective for people with nerve pain, epilepsy and so forth. I have had unprovoked Vulvodynia now for five years; burning, itchy and soreness on my vestibule region and this is the only thing that takes the pain away. Happy to answer any questions or PM me for any advice.

sj17

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Pain management - what works for me  Empty Topically?

Post  amyhp on Tue May 16, 2017 10:17 pm

Do you put it on topically? My symptoms are similar to yours minus the itching. I have also had surgery which has increased my pain.

amyhp

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 8:07 am

Hi Amy. What surgery did you have? And no, I ingest the oil - I put about four drops on my tongue as required. The taste isn't great but worth the relief.

sj17

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  amyhp on Wed May 17, 2017 12:46 pm

I had a full vulvar vestibulectomy

amyhp

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  sj17 on Wed May 17, 2017 1:45 pm

Was your pain provoked or unprovoked and how long a ago was it?

sj17

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Post  amyhp on Wed May 17, 2017 1:50 pm

I sent you a private message.

amyhp

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 1:42 pm

Hi sarahjane!

Which oil do you use? I see five on the CBD Brothers website.

Thank you!

SinclairSassy

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  sj17 on Mon May 22, 2017 3:00 pm

The blue edition one x x

sj17

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  SinclairSassy on Mon May 22, 2017 8:05 pm

Awesome! Thank you so much for getting back to me.

SinclairSassy

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  SinclairSassy on Fri May 26, 2017 6:21 pm

I just tried to purchase some oil from the CBD Brothers website and my credit card company denied the charge and is sending me all kinds of text and email alerts saying that there is a possible security breach on my credit card. I guess that is because I am in the US and not the UK. I must be an idiot for not being able to figure out how to buy this stuff without an international incident happening. Wink

I filled out the form on the website and chose the US for shipping. I guess I need to call my credit card company to see what is going on.

SinclairSassy

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  Lisa1627 on Tue Jun 06, 2017 11:37 am

Hi Ladies,

I have purchased the oil and Sarahjane I am praying it works as well as you say it does.
I wonder if you can use it topically also? I just ordered yesterday, so will update as soon as I know anything. Thank you!
Lisa

Lisa1627

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  SinclairSassy on Fri Jun 09, 2017 5:15 pm

I finally got everything straight with my credit card company and my order should be here any day now. Fingers, eyes, and toes crossed that it will provide relief.

SinclairSassy

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Post  SinclairSassy on Mon Jun 26, 2017 11:07 pm

Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

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Pain management - what works for me  Empty Re: Pain management - what works for me

Post  sj17 on Sat Aug 12, 2017 9:49 am

Sorry ladies. I didn't receive any notifications for this thread of forum. I ingested 4 or 5 drops in my mouth and it seemed to help with the pain dramatically xx

sj17

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Post  sj17 on Sat Aug 12, 2017 9:58 am

Just to add I have never used it topically. It might be worth adding a few more drops to your tongue and seeing if the increased concentration helps

sj17

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Pain management - what works for me  Empty CBD oil

Post  Jo44 on Tue Apr 24, 2018 3:41 pm


SinclairSassy wrote:Yes - I also wondered if you can use it topically.

I have tried it three times orally and it has not helped. (So very sad. I wanted this to work.)

Hi huni, I belong to a Facebook CBD oil support group & one thing I have now learnt with CBD oil is that it needs to be started very slowly & taken every day twice or 3 times a day. It needs to build up in your system it doesn’t work like a “paracetamol “ would for a headache Ie; straight away.

Start week one with one drop twice/three times a day, then second week 2 drops each times etc & so on.

I am taking CBD oil & 10 days in, still early days but have had some good days & some not so good! X

Jo44

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