Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
The possibility that for SOME women vulvodynia is a Mindbody syndrome EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


The possibility that for SOME women vulvodynia is a Mindbody syndrome

Go down

The possibility that for SOME women vulvodynia is a Mindbody syndrome Empty The possibility that for SOME women vulvodynia is a Mindbody syndrome

Post  mary jane Tue Jun 20, 2017 9:22 pm

I am posting this here from another forum, it;s a true story of a user called "ozagnes".
I think that it's possible to have severe stress and anxiety and long term repressed emotions turn into psychosomatic illnesses or central sensitization even.
My pain had no apparent reason apart from a cyst which shouldn't have caused such pain. I also discovered recently that if I am really angry or stressed I get breakthrough nerve pain. I control this using mindfulness. I got the idea from another user called Mouse on this forum.

so here goes:

"Hi all,

I have just been reading all the posts about pelvic pain, and although there are a few women that had (and hopefuly treated?) vulvodynia, I could not find much in 2011.

I am new on this forum, I have been suffering from undiagnosed mild vestibulitis since I had my first intercourse, and 3 years ago it got far worse after a yeast infection (and a lot of stress with my phd, let's face it...). Then it's been 3 years of medical nightmare, I have been on 3 continents, seen the best gynesurgeons and pain specialists, was told I had vestibulitis, vulvodynia, pudendal neuralgia, even IC (which wasn't true since I don't have frequency, but surely the hydro-distention done under general anesthetic said yes). I have tried all the treatments including botox injections (the most painful thing I've had done in my life!), countless needles, and even 2 surgeries.
I've also had back pain as a kid (they said it was my scoliosis...yeah right), anorexia, neck pain, psoriasis, leg itching and my body is full of trigger points, particularly in the shoulders, back, gluts and you guessed it, in the pelvis!

I finally found out about TMS about 2 months ago, have read schubiner and Sarno, and I know now that my "infection pain" was in fact stress, and all the rest that followed was pure nocebo. Incredible when I think about it, as soon as I was told I had vulvodynia, I thought "Oh my god, some women can't even sit because of shooting pain! at least I am not that bad!!!" and bingo, 2 weeks later I was that bad...

I am having progress and regress...some days when I "feel" that I am not sick, it is like enlightment, and of course my pain is much lower, and it feels so light on my shoulders...and then a few days later my old mood is back, the pain increases, and my worries come back. Arrrgggg!
I AM GETTING SO ANGRY AT MYSELF! I know my mind is doing that to me. Until now I think I was scared of "upsetting" my unconscious. I am such a nice goodist person I could not even "hurt" my mind! And today I finally bursted and shouted at myself.
But it is hard to know what to do and what to think, I think I have to reassure the child and shout at the parent.

Anyhow, it would be great to hear from other women, or men that have suffered from pelvic pain (because I am sure that prostatitis, IC, pudendal neuralgia, vulvodynia, piriformis syndrome, pelvic floor disfunction is just the same thing).

Thanks
Smile

agnes"


and


"Hi all,

It has been a while since i have been on this forum because i gave birth!!! A beautiful and healthy baby boy Smile
I had a c-section because i did not want to add the stress and fear of a natural birth since i have pudendal neuralgia/VVS, although i know that natural birth really should not improve or worsen my condition even if that is exactly what ob/gyn are saying...

Now, for those suffering fron chronic pelvic pain, here are some interesting facts about my pregnancy that really make no sense if one was to beleive the medical theories of nerve entrapment/inflammation:
- while putting on 13kgs and therefore clearly adding pressure on my pelvis, particularly sitting, the pain did not get worse! If my nerve was entrapped, how could it not be worse?
- my hormone levels clearly have been up and down, but not my pain, so again, it is not a problem of oestrogen (an ob/gyn had told me that pregnancy often improved the pain momentarily because oestrogen levels rise)
- pregnancy hormones help losen ligaments and muscles, but my pain did not improve during pregnancy, so if my pelvic muscles are tight and sore, it is not just physiological.
My take on this: my pain is caused by tight muscles and blood restriction due to psychological tension that even the most drastic physical changes will not affect.

Oh, and surprise surprise, the pain is barely noticeable since i gave birth, which i think is due to my mind being busy with my new bub rather than focussing on my own emotional pain...although i still have big issues with my mother!
And just the fact of saying "i have improved" brings on the fear that it will all get bad again...damn conditioning and fear!!!

So i hope this will give some reassurance to others on this forum that have been "diagnosed" with pudendal neuralgia or other forms of chronic pelvic pain.

Cheers! "


Please take the time to read what she said here. in her last post ever she said she still has some pain but overall she also had long periods of remission and that things were under control for her.

Source: http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=7017
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum